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GF-Cheetah Cub

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GF-Cheetah Cub last won the day on December 4 2017

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  1. icon ShariW reacted to a post in a topic: Allergy or Preference? Waiter asks
  2. icon notme reacted to a post in a topic: "Skeptical" doctors?
  3. icon Mbajwa reacted to a post in a topic: 6 year old requires biopsy
  4. GF-Cheetah Cub
    My daughter had the endoscopy when she was ten. It is a rather simple procedure. We went to the hospital early in the morning. They put her out first, which took just a few minutes. I got to stay with her and held her hands until went to sleep. Then the procedure itself took about 10-15 minutes. She came out, and stayed in a bed for an hour or...
  5. GF-Cheetah Cub
    If you were diagnosed 6 years ago, and have maintained a gluten free diet, your blood tests and endoscopy are supposed to be normal. It means your body has healed, but Celiac is a lifelong disease, you can not go back to eating gluten. Sorry. My daughter is also a non-symptomatic celiac. She was diagnosed by blood test, followed by the endoscopy...
  6. icon apprehensiveengineer reacted to a post in a topic: "Skeptical" doctors?
  7. icon Jmg reacted to a post in a topic: "Skeptical" doctors?
  8. GF-Cheetah Cub
    I agree. What you need is a good doctor. You shouldn't have to worry about how to convince a doctor about feeling sick and helpless. Crohn's is indeed a very serious disease, and even more difficult to control than celiac. People with Crohn's tend to avoid a lot of food, including gluten. Good luck to you!
  9. GF-Cheetah Cub
    I am sorry to hear about your frustrating experience with the physicians. To me, the real question is: are you on a strict gluten free diet, and are you feeling better and healthier? If you are, you don't need to "convince" any doctors, you don't need their blessing, certainly not their attitude. It is your own body, if you know that gluten makes...
  10. GF-Cheetah Cub
    Oh! That is good to know. I always wondered about the two different spelling myself. So, it is like center vs centre!
  11. GF-Cheetah Cub
    "Is it also possible to see absolutely no damage, but then the biopsies come back showing damage?" Yes. This happened to my daughter. After her endoscopy, the two doctor came to tell us that they did not see damage. But two weeks later, the doctor called to tell us that her biopsies came back positive. So, just sit tight and wait for the official...
  12. GF-Cheetah Cub
    You don't have to have all the celiac genes to have celiac. One such gene is enough. Yes, if you have positive biopsy, you have celiac disease. Yes, your son, as well as all close family members should be tested.
  13. GF-Cheetah Cub
    "I think its important for the person I share a living space/kitchen with to understand it but I could be wrong. " -- You are not wrong. " ... to consider ordering from a place that has gluten free option ....Was I in the wrong to make that request? " -- Absolutely not. Celiac is an auto-immune disease, and the only treatment option is a gluten...
  14. GF-Cheetah Cub
    My daughter also loves to make ginger bread house every Christmas. I buy this gluten-free kit every December from a gluten free bakery called Sensitive Sweets. They ship the kit to our house. Open Original Shared Link
  15. GF-Cheetah Cub
    Oh, thank you so much!! The Larkburger and Beau Jo's are perfect. They both have locations in Ft. Collins. We will be having a few family gather catered meals and a church pot luck lunch, so I need to be able to go somewhere and pick up a quick burger or pizza to go just for my daughter. Thanks!
  16. GF-Cheetah Cub
    Oh, we are actually going to Ft. Collins this weekend to attend a funeral service. If anyone know of any good gluten-free restaurants there, please let me know!
  17. GF-Cheetah Cub
    Maui is quite a gluten free paradise. It has a 100% gluten free restaurant, as well as a 100% gluten free bakery. Many restaurants offer gluten free menu or options, generally, great awareness of gluten-free dinning at most restaurants. Some ice cream shops even offer gluten-free cones, kept sealed in a container in its own area! We live in Northern...
  18. GF-Cheetah Cub
    Don't be sad. You can most certainly eat out and enjoy travel (big and small trips). It does require a bit of research and planning, that's all. Everything is online nowadays, so researching is easy. My family loves to eat out and we LOVE to travel. Many restaurants offer gluten free options. After my daughter was diagnosed, we traded our old...
  19. GF-Cheetah Cub
    cyclinglady, I think Joseph is hoping to exclude celiac disease. I feel for him, as I also had a hard time accepting my daughter's celiac. I had this gene test done hoping our GI doctor made a terrible mistake. But now I have triple prove that my daughter really does have it! I agree with you and others, that if biopsy confirmed celiac disease...
  20. GF-Cheetah Cub
    Our doctor ordered the Prometheus Celiac Plus test for us. It is some sort of in depth celiac blood test. This test report showed which celiac gene my daughter has. I think you can ask your GI for a celiac blood test with EMA. When I asked for the EMA test, we got this Celiac plus results back. I believe Prometheus is the name of the lab. ...
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