GF-Cheetah Cub
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Latest Celiac Disease News & Research:
Everything posted by GF-Cheetah Cub
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With the exception of Barley tea, tea, like coffee is naturally gluten free. Barley tea is actually rare in China, it is more common in Japan and Korea, and it is more often served cold. Tea is serious business in Asia countries. Tea plantations specialize in their specific type of teas, and take pride in its purity (I have visited tea plantations...
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- food allergy
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ARCHIVED Frustrating endoscopy!
GF-Cheetah Cub replied to Sarahp5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
" Has anyone else had a seemingly normal exam during endo. But the biopsy came back positive? " Yes. Right after my daughter's endoscopy, the GI doctor told me that the intestine looked pretty good. Then two weeks later, they called to tell us that the biopsy results were positive for celiac. -
" My question is:. Will I experience physical symptoms after being gluten free. " I can only give you an input on the above question. My daughter is a silent celiac. She was diagnosed with blood test and endoscopy 3 years ago at the age of 10. She is now 13, and she is still a silent celiac. When she was first diagnosed, I was told that...
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ARCHIVED Do Doctors Diagnose without an Endoscopy?
GF-Cheetah Cub replied to Madeline A's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My daughter's TTG was through the roof high at age 10. Her doctor offered to formally diagnose her with celiac without the endoscopy. We decided to go with the endoscopy anyway to confirm the diagnosis. We heard that blood tests can be wrong, and we did not want to accept that she has celiac. The endoscopy was a simply procedure, she has celiac... -
ARCHIVED How do I go out to eat?!
GF-Cheetah Cub replied to Washingtonmama's topic in Coping with Celiac Disease
Chinese food is very difficult for celiacs. Unless we are going to PF Chang's, when I had to go to a Chinese restaurant with family, I would bring a home made gluten-free meal for my celiac daughter. I usually buy these frozen gluten-free potstickers, and cook them at home and bring them to the Chinese restaurant for my daughter. -
We were diagnosed with Diabetes first, but I think she already had celiac prior. Our doctor told us that she has celiac only 3 months after diabetes. Her TTG was off the chart high. Our endo offered to formally diagnose her with celiac without the endoscopy, but I refused to believe she had celiac. She had no symptoms. An endoscopy confirmed...
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You are not alone. My daughter also has elevated TTG after 3 years on very strict gluten-free diet. My household is also gluten-free. My daughter is a silent celiac. So, I have the NIMA gluten tester, and also use the EZ Gluten test kits to test outside foods. I understand that you are careful with her gluten free diet, as we are careful with...
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ARCHIVED Road Trip Seattle to LA - 100% Gluten Free Places to Eat
GF-Cheetah Cub replied to EssEd's topic in Traveling with Celiac Disease
Patti's Perfect Pantry in Morgan Hill is a 100% gluten-free bakery, and they also make gluten-free breakfast and sandwiches. They are just off of Highway 101, when you are about to leave the San Francisco/San Jose area on your way to L.A. This would be a good place for you to stock up something to eat, because there are not much options (or city... -
ARCHIVED Road Trip Seattle to LA - 100% Gluten Free Places to Eat
GF-Cheetah Cub replied to EssEd's topic in Traveling with Celiac Disease
Copita Tequileria Y Comida in Sausalito (just north of San Francisco) is 100% gluten-free restaurant. Great restaurant too! We love this place. Open Original Shared Link -
ARCHIVED Road Trip Seattle to LA - 100% Gluten Free Places to Eat
GF-Cheetah Cub replied to EssEd's topic in Traveling with Celiac Disease
In Santa Barbara ( 2 hours north of LA along 101), right on State Street, there is a 100% gluten free bakery. We think it is the best gluten-free bakery in the world! You must go there and eat something! They also make great sandwiches. Open Original Shared Link -
ARCHIVED Help! Want to go out for bubble tea....
GF-Cheetah Cub replied to GlutenedCN's topic in Gluten-Free Foods, Products, Shopping & Medications
" I'm asking about bubble tea in general. If contamination were not a problem, is bubble tea usually gluten free? " Yes. My celiac daughter likes boba tea. I have tested her favorite tea with ezgluten test kit as well as NIMA, and they have always tested negative. We only get our tea at this one specific tea shop (they have 3 different locations... -
ARCHIVED Tried out my new Nima sensor
GF-Cheetah Cub replied to tessa25's topic in Gluten-Free Foods, Products, Shopping & Medications
We loved Peru! We found Peru to be pretty gluten-free friendly. It is the land not just corn, but also potatoes. So, lots of corn and potatoes, and grilled meats, ceviche, etc. They are also big in farming, so the vegetables and meats were very fresh. Lots of dishes were naturally gluten-free. We spent 3 nights in a small town in Sacred Valley... -
ARCHIVED Tried out my new Nima sensor
GF-Cheetah Cub replied to tessa25's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree it is very handy for international travel. We just took it to Peru for 2 weeks. I wish we had this when we went to Europe for a month the previous summer. We love our NIMA. It is just a tool. When I shop or when we go out to eat, we still have to ask questions, then sometimes I like to test the food with this device. It is compact, and... -
ARCHIVED Colorado Ski Resorts - gluten free friendly??
GF-Cheetah Cub replied to GF-Cheetah Cub's topic in Traveling with Celiac Disease
Thank you both very much! We love Canyon Bakehouse's gluten-free bread and bagels, so it is nice to know that we can go there to get sandwiches. We will be sure to go that crepe place in Vail! My daughter loves crepes. Yes, I have noticed that most high end ski resorts have good gluten-free options, but it varies from resort to resort. ... -
ARCHIVED Colorado Ski Resorts - gluten free friendly??
GF-Cheetah Cub posted a topic in Traveling with Celiac Disease
Hello! My family is going to Colorado to snowboard for one week in February. My 13 year-old has celiac. We are going to stay in the Frisco area, and are planning to go to the different big ski resorts there: Vail, Breckenridge, Keystone, Copper, and A-Basin. Anyone know if we expect to find gluten-free lunch options on the slopes of these... -
ARCHIVED Bob and Ruth's Travel Tours - Has anyone tried it?
GF-Cheetah Cub replied to Victoria Prad's topic in Traveling with Celiac Disease
Cyclinglady, YES!, it was the Pod Baranem in Krakow. We ate there 3 nights straight. We loved this place. I also bought their gluten free bread and a side of butter to go when we left every night, and made breakfast for my daughter the next day. -
ARCHIVED Bob and Ruth's Travel Tours - Has anyone tried it?
GF-Cheetah Cub replied to Victoria Prad's topic in Traveling with Celiac Disease
I think since your daughter was just diagnosed, everything seemed kind of overwhelming at first. But you can still travel. Some countries are easier than others. Europe can be easier, as they generally have good gluten-free awareness. My family traveled to Europe for a whole month in the Summer of 2015. My younger daughter has celiac disease... -
ARCHIVED How much is too much gluten?
GF-Cheetah Cub replied to jkittyberry's topic in Coping with Celiac Disease
"What I'd like to know is how much gluten will start to damage my intestines." I don't think anyone here or even the G.I. doctors can definitively answer your question. But what you can do is shortly after your cheat day, go take a blood test, and see what your ttg and other celiac related numbers are. If your ttg number is elevated, then without... -
ARCHIVED Nima Sensor
GF-Cheetah Cub replied to katesyl's topic in Gluten-Free Foods, Products, Shopping & Medications
We just received our Nima two days ago. It is very fast and easy to use. You put a small food sample into the capsule, push a button, wait 2 to 3 minutes for results. It is very compact and cute looking. Easy to carry in a purse for going out. So far, I have tested Nima twice against known samples. A regular wheat flour cookie tested positive... -
ARCHIVED Nima Sensor
GF-Cheetah Cub replied to katesyl's topic in Gluten-Free Foods, Products, Shopping & Medications
I have pre-ordered a NIMA, and is waiting for its arrival. Supposedly soon. When we go to unfamiliar restaurants, I always bring backup dinner for my celiac daughter. If the restaurant does not have gluten free meals, or does not seem confident with their gluten free meals, then my daughter will eat the meal that we brought from home. If the restaurant... -
ARCHIVED genetic test back with DQ2 and DQ1 gene
GF-Cheetah Cub replied to vickyloveaimee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you suspect that your child has celiac disease? My understanding is that those without the celiac gene can not develop celiac disease. Those with the celiac gene can develop celiac disease, but most still will not. So, generally, the genetic test can rule out, but does not confirm celiac. If you think you child has celiac, then you might want... -
ARCHIVED Gluten intolerant or Celiac?
GF-Cheetah Cub replied to Jasminem's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You could take the genetic testing to see if you carry the celiac gene first. If you don't carry the celiac gene, then you can not have celiac disease. If you do carry the gene, it still does not confirm that you have celiac, but then it might make more sense to consider doing the gluten challenge for the endoscopy to see if you have celiac disease. ... -
ARCHIVED Cherrios and the Celiac Disease Foundation
GF-Cheetah Cub replied to cyclinglady's topic in Gluten-Free Foods, Products, Shopping & Medications
I am also waiting for my NIMA on order! They said that they will be shipping at the end of this month. I have tested the gluten-free Cheerios with my EZ Gluten test kit, twice, and they tested negative. My celiac daughter loves cereal for breakfast. -
ARCHIVED Birthday and Food related depression/anxiety
GF-Cheetah Cub replied to Scormier44's topic in Coping with Celiac Disease
I don't think you are alone in this at all. But the thing is do now is to find a new set of favorite restaurants to go to. Your old favorites will not do if the only thing you can eat there is salad. But you may be able to find new pizza places that serve gluten free pizzas, new Italian restaurant with safe gluten free pastas, and new Mexican places... -
ARCHIVED Traveling in Europe 2016
GF-Cheetah Cub replied to cyclinglady's topic in Traveling with Celiac Disease
We love the Pod Baranam in Krakow, Poland!! This restaurant is how we survived Krakow for our 3 nights stay last summer. We had dinner there every night. At the end of the meal, I would purchase an extra gluten-free bread and butter to go. Then next day, I would use their bread and butter to make breakfast and lunch sandwiches for my celiac daughter...