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Feeneyja

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Everything posted by Feeneyja

  1. Feeneyja
    Ennis, Egg yolks are what make custard based ice creams. But you have me thinking. I make a frozen peanut butter pie where I make a Swiss butter cream frosting with added peanut butter. It tastes amazing. For my kids with lactose issues, butter isn't a problem (just fresh milks and cheeses), so I add butter to the whipped cooked egg whites then room temperature...
  2. Feeneyja

    ARCHIVED Anemia

    Feeneyja posted a topic in Related Issues & Disorders

    I underwent a 1 month gluten challenge for testing. No blood work was run (grrr), endoscopy was normal. Oh well. NCGS, I guess. One of the symptoms I had was headache, dizziness, and my eye lids and gums started getting pale, my fingernails thinned and started to get spoon shaped. I suspect anemia. I have a history of anemia that I never linked to gluten...
  3. Feeneyja
    It's a personal choice (obviously). i have a daughter who did not test positive on her gluten challenge. We were told to continue eating gluten. I took her off of it. She did so well before the challenge when gluten free that to make her sick for testing was just heartbreaking. And her symptoms are primarily neurological. When I told her GI that she...
  4. Feeneyja
    And the key to making a custard base (which is what ice cream with eggs is), is to temper your eggs with the warm milk solution and wisk continually (with no heat) when you add the tempered eggs back to the milk base. Slowly heat, wisking continually, until your custard forms. Do any of this too quickly or hot and you have scrambled eggs in milk. Gross....
  5. Feeneyja
    I used to work as a lab assistant in a parasitology lab. Once a week at lab meetings, someone would pick a paper, present it, and then we would analyze it and pick it apart. It was then that I realized that much research has holes, there are always more questions, and nothing is ever "proven" in science...unless you are Newton and discovering basic Laws...
  6. Feeneyja
    That's great to know. Thank you! I think I will give it a try.
  7. Feeneyja
    I'm wondering how the psyllium husk in the bread makes you feel? We follow SCD because of my daughter's SIBO and have steered clear of harsh fibers. But she's doing really well right now so I'm tempted to add the Julian's bakery paleo bread. Thoughts?
  8. Feeneyja
    Right, I've read something of the sort too. I was just thinking of Fasano's triad for autoimmunity and this sort or fits. Just speculation.
  9. Feeneyja
    Jmg, another question I have had is whether or not NCSG is a possible precursor to celiac. I think the Columbia U paper only established that there was intestinal permeability and innate immune system activation in folks with NCGS. That doesn't really rule out future celiac. And doesn't Volta speak of adaptive immune system response in NCGS because...
  10. Feeneyja
    Jmg, thank you for the resources. Terrific list. And thanks for the symptom info. I really feel much better overall , but the digestion (which was just perfect before the challenge!) is bothersome. My history of anemia and stress fractures has me concerned. I'm looking for another doctor that will be willing to monitor my health in light of my gluten...
  11. Feeneyja
    Also want to add: I have a history of anemia. I was not anemic prior to my challenge. No feratin levels checked. But I noticed after about 2 weeks of my challenge that when you pulled my eyelids down it was pale and my hands and feet would be cold a blue, both symptoms I used to get when anemic as a young adult. Can you become anemic that quickly? And...
  12. Feeneyja
    Sorry for the TMI in advance. And I have posted my story in another thread, but here's a recap: My biopsy Was negative after my 1 month gluten challenge (almost 3 years gluten-free) and I'm trying to get my GP to run the celiac panel which the GI wouldn't do because the biopsy is the gold standard. So technically I have NCGS. So does my daughter, by...
  13. Feeneyja
    Jmg, I agree about Kresser. I really like the information and citations, many times scratching my head about the conclusions drawn. But a good place to start.
  14. Feeneyja
    This post cites the studies that link the two. But I haven't read all of the studies so I don't know how directly the link is demonstrated. Open Original Shared Link
  15. Feeneyja
    Thank you Jmg. Yes, I read with interest that paper in 2016. There certainly is much they still do not know. And hopefully in the somewhat near future there will be celiac tests that don't require an extensive challenge and additional tests to solidify just what is going on. And yes, there really is great comfort in knowing I was feeling great before...
  16. Feeneyja
    My head is feeling mostly better (today is day 5 gluten-free post endoscopy), not the brain fog, some slight dizziness -NOTHING like before)...but I'll be honest with you posterboy, I'm having a tough time concentrating through your entire post. I will repeat that I was very healthy, gluten free, no processed foods, nutrient dense diet prior to the...
  17. Feeneyja
    Thank you Ennis and Posterboy. I feel very much frustrated right now as to what to do. Yes, gluten free. We were there already. I am good at that one. We are actually grain and lactose free. When we went gluten free for my daughter, my history of anemia and headaches went away. No more hair falling out and loose stools. In fact I was feeling pretty...
  18. Feeneyja
    The biopsies came back negative. No blood work was run, and with only a month long challenge, I doubt it would show anything anyway. So I'm stuck in the land of NCGS with doctors recommending low Fodmap diets. Of course the doctor doesn't hear when I say it's not a Fodmap issue. I eat a high Fodmap diet and never have any problems...unless...
  19. Feeneyja
    Here's our go to travel food box (we have this available at all times): Nuts, dried fruit, coconut chips, veggie chips, hard salami, Kind Bars, Lara bars, fresh veggies in a cooler (just change the ice), fruit and veggie pouches (go go squeeze, as well as other brands) lots of recipes at this site: Open Original Shared Link
  20. Feeneyja
    I have been taking Hydro C (Open Original Shared Link) which has the same effect. I was instructed to take it first thing in the morning on an empty stomach. That increases the absorption and then elimination with water into the colon. I take 1 tsp, plus use a glycerin suppository (otherwise nothing happens) and have a BM within 30 minutes.
  21. Feeneyja
    So when potatoes are whipped instead of mashed, it breaks the starch molecules and they become gummy and really sticky. I'm guessing that's what he was referring to. But clearly he doesn't know that the gumminess of gluten and the gumminess of potatoes are not the same thing. It's like glutinous rice. It's just starchy rice. No gluten at all. The lack...
  22. Feeneyja
    Just saw the GI. He is going straight to endoscopy on Monday. I will have been 4 weeks on my gluten challenge. He is confident that is long enough for endoscopy. He also said he prefers to NOT rely on the blood test first because too often you are not positive yet but the damage or inflammation shows on endoscopy. I have been feeling worse and worse...
  23. Feeneyja
    I'm actually thinking of insurance and approval of tests such as bone density. With a celiac diagnosis, they have to approve it even if you are "too young" to qualify for it. That's the one that comes to mind.
  24. Feeneyja
    A gluten challenge is terrible. I'm on week 4 of a 6-12 week gluten challenge and I want to just cry most days. You may not get the health care and screening you need without an official celiac diagnosis. I know it's aweful to go back to gluten now, but you are very close to being done.
  25. Feeneyja
    It makes a difference if you are Catholic. Don't want to get into a debate about why, but Catholic's must use some form of wheat in the host. There is no such thing as a gluten free communion wafer at a Catholic Mass. The solution for a celiac is a LOW gluten host made from wheat starch. That is not a solution that works for many celiacs. You could...
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