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lonewolf

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Latest Celiac Disease News & Research:

Everything posted by lonewolf

  1. lonewolf
    Well, here I am trying to keep up my will-power. We're short on money, so all we have in the house is carbs, so I've been trying to just limit my portions. Tomorrow is payday, so I'll be able to go shopping for some meat. Here's what I've eaten so far today: B- 3 small (2-1/2") pancakes with about 1 Tbs. raspberry jam S - 3 canned pear halves L...
  2. lonewolf
    Hi Everyone - I had two really busy days in a row and am just getting on. I can't even remember what I ate for sure yesterday and today, but it was too much. Eating on the go usually means eating fast and too much. I started out well each morning - protein with a little applesauce (homemade, sugar-free) each day, but ended up eating too many carbs. I...
  3. lonewolf
    I've read through this thread with a lot of interest. I've suspected that my husband and several of his family member are undiagnosed "Aspies", but now am convinced. The joke definition of an NT, as written by an Aspie, pretty well describes how my husband views me. He thinks I am crazy and that he is completely normal. He is extremely difficult...
  4. lonewolf
    I knew quite a bit about Celiac Disease before I figured out I couldn't have gluten (I've never actually been diagnosed). I was very thankful that I didn't have to avoid "hidden glutens" or barley malt or any of those other things that Celiacs couldn't have. I thought I was allergic to wheat and just couldn't handle barley, rye or oats. I was pleasantly...
  5. lonewolf
    I'm late to chime in here, you've probably made them already... I make my G F Pantry rolls in muffin tins. They work great and I even serve them to company.
  6. lonewolf
    You sound like my son's pediatrician. We were in for son's well-child visit and the gluten-free diet came up again. All tests have been negative, but he does SO MUCH better gluten-free. The doc said that tests can't tell us everything and keep up what works. At some point I think research will show that celiac disease is a very small part of the gluten...
  7. lonewolf
    Another thing to think about is that you could be gluten intolerant, but not have Celiac Disease. If this is the case, you'll NEVER have a positive biopsy or blood test, but gluten will still be poisonous to you. Some will argue that only those with true Celiac Disease should avoid gluten, but "anecdotal" evidence proves otherwise.
  8. lonewolf
    Okay, I think I'll start posting my meals tomorrow - I can't even remember what I ate today -it's been a long one and I'll be ready for bed soon. I was at the doctor's today and just flat out told her that I'd gained weight because I've discovered all these really yummy gluten-free recipes and I love to cook and bake and I've overdone it. This is my downfall...
  9. lonewolf
    I don't "know" any of you, but I sure need some accountability. May I join too?
  10. lonewolf
    Yeah, but who's older?
  11. lonewolf
    Two of my brothers-in-law are from Iran and they make delicious rice dishes. Try adding cooked lentils, sauteed onions, garlic, butter and salt to taste. Or sautee onions, carrots and raisins in butter or olive oil, stir into rice and add some chopped pistachios. My kids' favorite way to eat brown rice is in "Plov". Cook brown rice. While the rice...
  12. lonewolf
    Yay! It's great that he is willing to try it! You are sounding awfully "evangelistic" about this now... Isn't it interesting that all of the sudden you can really see what's been there all the time. You're probably right about all the members of your family. Hope they'll all be as open-minded as your brother.
  13. lonewolf
    I'll try to answer a few of your questions. Casein is the protein in milk. It is in every dairy product - milk, yogurt, cheese, butter - and also can be found in things with whey, sodium caseinate or milk solids. Gluten free specialty foods are expensive, but many "normal" foods are naturally gluten-free. Things like meat, poultry, eggs, beans, fruits...
  14. lonewolf
    You've gotten some good ideas. The only other one I can think of is to cook chicken tenderloins in taco seasoning, wrap in a lettuce leaf and then wrap in a corn tortilla. Secure with a toothpick. You could put on some cheese and sour cream too (we don't do dairy). I make these and wrap them in foil for when we need to eat on the go.
  15. lonewolf
    You don't happen to live in Western Washington do you? I'd love to find a business partner and do something like this. Sorry I don't have any pointers for you, but I want to encourage you to go for it!
  16. lonewolf

    ARCHIVED Naturopathic Doctor

    lonewolf replied to mtdawber's topic in Doctors

    Bastyr has a good reputation. You should still ask some questions, but it is a good sign.
  17. lonewolf
    I have an 11 year old son who we've had the same battles with. He's been mostly dairy free since he was 18 months old, and has been gluten "light" for his whole life since I've been wheat free since he was an infant. But something about going completely gluten-free was a battle. He tested negative on all the tests, so it was extra hard to convince him...
  18. lonewolf
    Sorry to butt in here, but this topic really interests me. I read somewhere (I'll try to find where, I think it might have been on Enterolab's website or a link from there) that 1% of non-DQ2 or 8 Celiacs had DQ3, subtype 7, which is almost exactly like DQ8. My son, who is not officially diagnosed Celiac, has a double copy of DQ3,7 and is DEFINITELY gluten...
  19. lonewolf
    Unless you are VERY sure that the dietician knows about Celiac, bring your own food. I wrote about my experience in September with day surgery, so I won't go into details here. To sum it up - I did all the RIGHT things, had flags on my chart, an allergy allert bracelet, told EVERYONE how careful I'd have to be. The first nurse said, "Oh, it's okay. They...
  20. lonewolf
    Oh, and how about some challenges? Going for 9 hours without food because nothing was "safe" and then taking some kind of memory or coordination test. Or - Having 10 minutes to find 7 different public restrooms in the downtown area. Or - making a loaf of bread without gluten, dairy, eggs or soy and convincing at least one child to eat a whole slice...
  21. lonewolf
    Welcome Fajitas! I'm so glad to see you introduce yourself. You've definitely found the right place. I hope we can all be of help to you!
  22. lonewolf
    Mango - I thought I was the only one here who gets info from the Weston A. Price foundation. Yay! You can trust the info from them!
  23. lonewolf
    They do rise a little - not the same as "regular" ones. Fiddle-Faddle - I hope you like them! You'll have to tell me one way or the other. (I promise to not take it personally if you don't like them.) My kids like them with honey butter or jam the best.
  24. lonewolf
    Don't even worry, Fajitas. I know what you mean about stressing over the labwork. I hope you show a lot of improvement since going gluten-free. I see on your signature that you like pasta. Have you tried Tinkyada yet? It's really good. We eat pasta regularly around here. Everyone eats gluten-free pasta and I even serve it to company - no one can...
  25. lonewolf
    Gene testing would rule out Celiac, but wouldn't rule out non-Celiac gluten sensitivity. I had many Celiac symptoms and have improved greatly on a gluten-free diet, but my gene test was negative. To tell someone that they don't need to worry about gluten, because they don't have the Celiac genes isn't necessarily a good thing.
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