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lonewolf

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Latest Celiac Disease News & Research:

Everything posted by lonewolf

  1. lonewolf
    Hi Judy! The cookies and sorbet both have soy lecithin in them. I'm very sensitive to soy, but the lecithin doesn't bother me at all. I know it does some people though. (The Food Allergy and Anaphalaxis Network says that soy lecithin is safe even for people with severe soy allergies.)
  2. lonewolf
    I wanted to make something yummy for dessert tonight, so I just kind of used my imagination and thought of some of the good tips I'd seen here. Here's what I came up with. Decadent Coconut K-Too Pie 1 Package Kinnikinnick K-Too's 2 pints Sharon's Coconut Sorbet, softened 1/4 C Slivered almonds 1/4 C + 1 Tbs. Butter, Margarine, coconut oil or other...
  3. lonewolf
    Glad things are going well. Please stick around!
  4. lonewolf
    Welcome! How nice of you to be trying recipes for a friend. I've never had much luck with plain rice flour - especially white rice flour. You have several options - you can buy prepackaged gluten-free flour (something like Bob's Red Mill G F Flour Mix) or buy a few different flours and some xanthan gum and mix it up yourself. The xanthan gum is pretty...
  5. lonewolf
    Hi Carla - I never post here in OMG, but I saw that you were the last poster and was wondering how your appointment in NY went. I hope you got some answers and will start getting better soon!
  6. lonewolf
    Yum - pineapple jello. I think coconut would be a great addition. I make jello out of "Sir Strawberry" or cherry juice from Trader Joe's. I heat part of the juice first, then add cold. You can make all kinds of jello salads with this - our favorite is strawberry with banana slices, frozen strawberries and chopped walnuts.
  7. lonewolf
    Hi Fajitas, Glad to see you're posting now! I hope things are still going well. I hope you stick around and introduce yourself to the whole group.
  8. lonewolf

    ARCHIVED Celiac Sprue & Doctor Too!

    lonewolf replied to RKB-MD's topic in Doctors

    Sorry to break in on this thread, but I can't believe you had this problem. My dad had the same thing, but with both his eyes for the last several years of his life. He had to open his eye lids with his fingers. I'd never heard of anyone else having this. My husband (then boyfriend) only met my dad once before he died and that's what he remembers about...
  9. lonewolf
    Ursa gave you good advice. I get joint pain almost immediately after eating dairy or soy - and I've heard from others that it's not uncommon. Check out the information that Ursa suggested and maybe you'll discover something. It's really common for Celiacs to have other food intolerances that show up AFTER going gluten-free.
  10. lonewolf
    I have twenty 5th graders, twice a week for 45 minutes. I have the whole band together and I'm supposed to get them to the point where they can play a "piece" for the end of the year assembly. I'm going to be enlisting the help of some of the 8th graders to help with the woodwinds, since I can play "Mary had a little lamb" on most instruments, and that...
  11. lonewolf
    Welcome! How wonderful that you are such a caring mother - your son is lucky to have you! Yes, you are very welcome here. There are other mothers who will chime in who have done the same thing as you're doing.
  12. lonewolf
    I just had to share a funny turn of events. I teach PE and health at a small Christian K-8 school. One of our middle school teachers had to quit mid-year and he taught band to the middle schoolers and 5th graders. Another teacher offered to take the MS band. So, who do they ask to fill in for the 5th grade band? Me! I played the trumpet growing up ...
  13. lonewolf
  14. lonewolf
    YES! It's totally worth it. Almost 11 years ago I was told to eliminate wheat/gluten, dairy, soy and eggs and to make it a bit more restrictive throw out meat and poultry, legumes, potatoes, tomatoes, peppers, bananas and a few other things that I can't remember. Several friends and relatives told me that "it isn't worth it" and to just find medications...
  15. lonewolf

    ARCHIVED Hi All.

    lonewolf replied to missy'smom's topic in Coping with Celiac Disease

    Welcome! We've "met" on my thread about kidney problems. Please stick around and keep joining in!
  16. lonewolf
    Nephrotic Syndrome is a different kind of kidney disease than what you have. It's an autoimmune or "idiopathic" condition where the filters in the kidneys allow protein to "leak" through into the urine. It also goes along with increased cholesterol, elevated liver enzymes, high blood pressure and a few other symptoms. I certainly wouldn't say that a gluten...
  17. lonewolf
    Is he already gluten-free? It certainly isn't a cure-all for everything, but I've read several people's stories that it has helped their children with ADHD and ADD. My son's teacher wanted him tested for ADD last year. To make a long story short, we tried a gluten-free diet, it helped and his homeroom teacher this year laughed when I told her about last...
  18. lonewolf
    No way! The first sign that I had that something was wrong with me was pain in my feet and the feeling that I had no padding. It's gone now (almost 11 years after eliminating wheat and being extremely gluten "light"), but I still remember that awful feeling. I had to wear aqua socks in the shower for a long time because I couldn't stand barefoot.
  19. lonewolf
    I haven't seen anything like this on my board - it's pretty much just for support for people who have nephrotic syndrome, sorry.
  20. lonewolf
    I'm on a yahoo group for people with Nephrotic Syndrome, which I have been successfully controlling with a gluten-free diet, and I post every once in a while about my success at staying in remission. Usually those posts are ignored. I tried again last week and have gotten several emails asking for more information. Several people said that they have come...
  21. lonewolf
    Welcome to the board! You'll get lots of good tips and advice here - and some support that it sounds like you need. Stick around and ask lots of questions - we're happy to help!
  22. lonewolf
    Wow - that looks just like my dad used to look (I think, I always saw him with clothes on). Luckily, I have a little bit more female shape than that.
  23. lonewolf
    I'm in Federal Way. A lot of roads are still slick here, but we've been getting around pretty well - just driving slowly on the side streets. Three of my kids are sleeping in and I'm just starting to make a brunch of waffles and sausage. It is beautiful to look at out the window! We'll be outside playing soon, I'm sure. I think I'm going to take a...
  24. lonewolf
    This is crazy for Western Washington. We can go for years, literally, without seeing as much as a flake. Now, I LOVE the snow, but missing all this school is getting old. We got 6 inches last Wednesday, so school was closed Thursday, it was down into the teens Thurs. night and they closed school on Friday too. (Don't laugh all you people who live in places...
  25. lonewolf
    Welcome back! Sorry to hear about the Crohn's, but at least you have more infomation.
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