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Newly Diagnosed

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Newly Diagnosed

  1. Keep in mind that you have to continue eating gluten for accurate test results. Good luck!
  2. I was taking Protonix when I was diagnosed. It is not the same drug but is also a proton pump inhibitor.
  3. We have a shared kitchen in my house too. However, more and more of what we eat is gluten free. The kids and husband sometimes eat toast, but not often. I buy my pancake loving son the frozen kind rather than making them from scratch or bisquick (he doesn't like the gluten free kind and I've never been a big pancake eater anyway). The fridge was not as...
  4. I get it. My birthday is coming up in October and it will be my first gluten free birthday too. I always used to get ice cream cake (can't because of the crunchies, and there is no Carvel near me to get a special order cake) and I have already been thinking how much I will miss that tradition. Vacation was difficult this past July because all of our "favorites...
  5. I agree. Plus soda for me is an appetite suppressant. It fills you up and then you don't feel hungry. It also helps the appetite to have foods that you can look forward to eating. At first I thought I would never find anything I liked again, but trial and error and going back to basics that I have always enjoyed really helped. Also, for me depression...
  6. I was diagnosed in December 2015 too. It takes a lot of adjustment and honestly sometimes I just get depressed by not being able to do things I used to do. My husband is very supportive but I have sometimes lashed out at him when he tries to be helpful. It is just a lot to get used to and takes time. Is he still having digestive symptoms or is the lack...
  7. I broke out for a while after going gluten free. It was probably the shock to my system. Eventually my skin cleared up, better than it was before going gluten free. I've been gluten free for nine months now and I would say it took two to three months for the skin issues to resolve.
  8. I had an acne flair up after going gluten free but it ended up improving and some long-term back acne I had been dealing with actually went away. I think going gluten free was a shock to my system and at first I actually felt worse but after about a month things got better.
  9. It is overwhelming at first. I tend to google things (and usually google brings me to past conversations from this group) when I want to know if they are gluten free and I can't tell when I read the ingredients. There is also an app called "allergenie" that I use, but only if I am almost sure it is gluten free and just want to confirm. I have definitely...
  10. It does seem that doctors do not think about cross contamination. I guess that's why mine referred me to a nutritionist, who did give me excellent advice about toasters, pots, colanders, etc. When I went back to my dr for a follow up and said that eating gluten free was "so complicated" he asked why it was complicated and I explained about cross contamination...
  11. I am going on vacation in two weeks (my first vacation since diagnosis) and am wondering how to prepare and plan ahead. I will be staying in a place with a full kitchen so I will be able to eat in and cook my own meals. There will be kitchen stuff available for use, but am wondering if I should bring my own pot/pan or if maybe I can just wash the stuff...
  12. Hi, I came to the forum for coping with this morning because I have been pretty down recently about the diagnosis. I was diagnosed in December and for a while I was doing well by telling myself that I am eating lots of good foods and thinking positively. But recently I have been invited to a whole host of birthday parties and it has hit me again how limiting...
  13. Hi, I was diagnosed in December. Prior to diagnosis I had no symptoms except heartburn and the heartburn hasn't completely gone away yet so I am thinking the heartburn may not even be related to celiac. For me the most frustrating thing is that it seems sometimes that my entire life has changed and I wasn't even feeling sick before diagnosis (I know, that...
  14. It is very overwhelming at first for sure. I had a positive blood test in November and I was in denial until the biopsy came back and it was positive too. As the months go by it has gotten easier but I do still feel sorry for myself sometimes. Whenever I start to feel sorry for myself I focus on the positives. There are so many wonderful gluten free...
  15. What brand of hamburger buns does everyone like? I have not yet found one that I like after a few bites. Maybe it takes time to get used to the different texture/flavor of the gluten-free bun? I would love to hear if people have found brands that they really enjoy so I can try them!
  16. That's good news! I guess that means my response to the original question isn't valid though. I remember when I read the label the ingredients seemed okay, but then I googled it and there was a chart with the juices that contain gluten and the juices that do not. Thanks! But I think I will still stick with water!
  17. I don't remember. I think it was "Simply Cranberry" but I can't say for sure. It was one of the juices they keep in the refrigerator at work, not something I bought myself. Right now we have Very Fine juices which I believe are all gluten-free. When I looked on-line there was a chart with all the juices and most were gluten free but the cranberry juice...
  18. I accidentally glutened myself a few months after going gluten free (a cranberry juice got me) and I had the worst heartburn ever that night and the heartburn didn't go away for a few weeks even though I had only a few sips before I thought to check the brand on-line.
  19. I have celiac disease and when I began the gluten free diet I did have withdrawal symptoms. I felt really awful for about five or six days, and it gradually got better. I don't know whether withdrawal symptoms are indicative of having celiac, or just because it can be a major dietary change to suddenly eliminate gluten which is in a LOT of foods! I agree...
  20. Everyone has different symptoms. My only symptom was heartburn and when I went gluten free after diagnosis my heartburn did improve. I was not eating gluten free prior to my blood tests as I was certain that I did not have celiac (wrong again!). You definitely need to have been eating gluten for a longer period than three days for the tests to be accurate...
  21. I recently read that chick fil a grilled nuggets are no longer gluten free because they changed the marinade. I could not find anything to confirm this. Everything I have seen about chick fil a says that they are a good option. Does anyone know any different? I do not get major glutening symptoms, just heartburn. I have been having mild acid indigestion...
  22. When you had your tests done were you eating gluten? If you have been gluten free for any period of time or even cutting back on your gluten intake this would affect your results and give you a false negative. I believe there is also a celiac gene test, but I am not sure of the details on that. As to tips for going gluten free I think the newbie section...
  23. Is it necessary to use gluten-free shampoo, hand lotion, etc? I got rid of all of my lipstick and chapstick and went gluten free on lip products when I was diagnosed in December, but now I am thinking that maybe I should also think about replacing some of my other products, like shampoo and hand lotion, maybe face lotion and other makeup. I don't eat my...
  24. I was diagnosed in December also. I also have developed back acne but somehow my facial acne has improved. I have small rashes now that I did not have before. I did not have many symptoms prior to being diagnosed, except heartburn every single night, so I initially felt worse because all of a sudden my body was adjusting to a new diet. I think I had gluten...
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