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Irene Joanne

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Irene Joanne

  1. Irene Joanne
    You'd need to see a doctor for blood work anyways if you think it could be celiac. I wouldn't rule out appendix problems yet. I had horrible stomach pains for months before doctors figured out it was my appendix. That's not common- but it does happen. If the pain keeps getting worse- don't waste time getting her to a hospital or doctors office. It took doctors...
  2. Irene Joanne
    Where is the stomach pain? Could it be her appendix? She really should see a doctor.
  3. Irene Joanne
    Remember if you're in Canada- these may not be gluten free. I made the mistake of eating rolo's once because on this site someone said it was gluten free. I painfully learned that this does NOT apply to Canada.
  4. Irene Joanne
    My in laws are very understanding about celiac but prefer I bring my own food, which I am happy to do because even if they tried I'd have a hard time trusting it was okay. It's an adjustment for sure- because I hate being different and eating something different than everyone else. BUT it sure beats getting sick. This is easy because I don't have to travel...
  5. Irene Joanne
    I can relate. I was diagnosed one month before you- I did have two accidental glutenings though and a dose of antibiotics that really put me back. I'm booked to see an allergist today because I'm having multiple reactions to gluten free foods as well. My dietician told me it's normal to have other food sensitivities come up when a person goes undiagnosed...
  6. Irene Joanne
    I was diagnosed almost four months ago- I'm having reactions to many gluten free foods as well. My dietician told me it's not uncommon when a person has undiagnosed celiac for a long time. As my intestines heal- that should get better. From all the reading I've done I understand that could take a year or more.
  7. Irene Joanne
    Just the gluten free diet. No need for antibiotics. I needed a dose of antibiotics over Christmas for strep throat- with my intestinal damage from celiac, my body did not handle the antibiotics very well....
  8. Irene Joanne
    I felt the same as you- but honestly I've been baking some pretty fantastic gluten free foods- plus real food is gluten free:) I won't lie- it is hard.... But it gets easier and when you feel better you won't mind so much. I just look around me at all the people with undiagnosed celiac or other health issues and I'm just so grateful to know what's wrong...
  9. Irene Joanne
    Oh funny! Since going gluten free- my moods have gotten much better- I am finding a sense of humour very valuable!
  10. Irene Joanne
    Good point!
  11. Irene Joanne
    I did that today- freaked out a little because my husband was drinking beer while we were eating supper. It makes me feel a bit panicky when people eat gluten around me. The gloves is a great idea- I might try that too.
  12. Irene Joanne
    I had quinoa today and had horrible stomach pain. This is the first time since diagnosed with celiac last November that I tried it. Sadly, like gluten free oats- this is another grain I can not have? From what I've read it seems as though theres a chance I would react to millet too if I react to quinoa. I'm tempted to go completely grain free as I'm a little...
  13. Irene Joanne
    That's interesting. I have celiac - my ferritin is low and my B12 level quite high. When you get the celiac blood work done- you should also get your thyroid checked. Don't stop eating gluten until you've had the good work and biopsy done for celiac
  14. Irene Joanne
    Even if you have a negative biopsy, you could still have a gluten sensitivity and still do much better off gluten. I can understand it's a hard decision to make. I'm in Canada and don't know how your health care compares. Because I don't have a lot of willpower when it comes to diet- it helps me to know 100% for sure that I have celiac. I can relate to the...
  15. Irene Joanne
    Any chance it's lupus and celiac? I have celiac but also a lot of lupus symptoms....
  16. Irene Joanne
    Welcome! Just hang in there and keep eating gluten until the biopsy is done.
  17. Irene Joanne
    Have you had your iron and B12 levels tested? How about your thyroid? I can relate to what you're saying- it's been three months for me and I'm kind of in the same boat. My ferritin levels are very low though and I'm getting iron injections which help a lot. I'm also learning that healing takes energy and I need to give my body a break and rest often
  18. Irene Joanne
    I don't think you're crazy- but keep eating your cookies! You need to keep eating gluten for a accurate diagnose.
  19. Irene Joanne
    HI! I'm glad I had the biopsy but if I had to wait six months, I'm not sure if I would have waited. BUT on the other hand I would rather stay on gluten for three or more months than go off and do the challenge. after being off of gluten for even a month your reactions could become so much worse and a challenge would be unbearable. I've been gluten free since...
  20. Irene Joanne
    As a child I had a grumbling appendix- horrible stomach pain for months before doctors figured out it was my appendix.
  21. Irene Joanne
    Absolutely a connection between celiac and brain fog- problem for me is that I have been off gluten for over three months and I still have lots of brain fog that gets really severe soon after eating. I'm careful with my gluten free diet- but maybe not careful enough... My thoughts are that I'm having other food sensitivities that are also causing the brain...
  22. Irene Joanne
    My anxiety was really bad the six months before I was diagnosed too. My mental health is so much better after going gluten free.
  23. Irene Joanne
    I agree- but it's hard to find a thyroid doctor that agrees? The doctor doesn't believe I would swing from hypo to hyper because I had a hyperactive thyroid when 17 and the meds I took for that made me hypo active. Doctors theory is that there isn't enough thyroid left to become hyperactive. My symptoms disagree.... Thanks for the link- I have read...
  24. Irene Joanne
    My appointment went okay. I guess I wanted answers because I've still been ill a lot- yet all he really said is get your thyroid levels checked every six months for now because I am at high risk of needing treatment at some point. My antibodies have gone down some in the last few months being gluten free- so hopefully that keeps getting better. I was on a...
  25. Irene Joanne
    Don't try going gluten free until you've had the celiac blood test and a biopsy- otherwise you'll never really know one of my bigger symptoms of celiac was sleeping all the time! Naps during the day and then 12-14 hours at night. I also have the scalp issues. Dont let a doctor tell you constipation isn't a symptom of celiac- because it sure is...
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