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artistsl

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Everything posted by artistsl

  1. artistsl
    Also, does anyone know whether there is a specific gene associated with dermatitis herpetiformis and/or gluten ataxia or is it the same genes expressed in those who suffer from intestinal issues?
  2. artistsl
    Thanks guys. I used to get really bad spells of dizziness which has seemed to have gone away since going gluten free. I never would have connected the two issues together. I used to work in a bakery for Kellogg which was when I ended up going to the hospital for what they diagnosed as vertigo. But I'm kind of starting to think that my dizziness could have...
  3. artistsl
    I get blisters from soy just as I would from gluten. It took an extremely strict elimination diet for me to figure it out.
  4. artistsl
    What is peripheral neuropathy? I have had total numbness at the tips of my toes for maybe twelve years now. It's accompanied with other strange symptoms such as symmetrical rash, joint pain, fatigue and brain fog. The doctor told me that I probably stubbed my toes or injured them by wearing uncomfortable shoes. I'm wondering if it could be peripheral neuropathy...
  5. artistsl
    My son is 5 and his symptoms are all behavioral and neurological. If he eats a few pretzels he will develop something called a stereotypy where his fingers become sort of stuck in distorted positions for days. Before we removed gluten from his diet, he experienced auditory and visual hallucinations, insomnia, loss of balance and fine motor, periods of confusion...
  6. artistsl
    r
  7. artistsl
    My son reacts with neurological symptoms when he comes into contact with gluten. He is NCGS. We are doing Paleo diet right now to include avoiding all dairy and he's doing well. They sell a coconut based kefir at Whole Foods and I don't believe it has a lot of additives like guar gum or locust bean gum. I personally have found, through elimination diet, that...
  8. artistsl
    Probiotics help with anxiety.
  9. artistsl
    Very good to know in that 8 of the 20 best selling probiotics claim gluten free yet test positive for gluten.
  10. artistsl
    I would argue that NCGS is a worse prognosis. Many who are afflicted suffer from neurological and psychiatric symptoms ranging from psychosis to epilepsy to MS like symptoms. It should not be diminished as it has been in this article.
  11. artistsl
    Has anyone ever suffered a reaction from swimming in the pool? Is that even possible? Just curious. Thanks in advance
  12. artistsl

    ARCHIVED Rash

    artistsl replied to Lori0467's topic in Dermatitis Herpetiformis

    Cortisone cream for the itch and neosporin for the sore.
  13. artistsl
    I've experienced POTS along with some strange issues with my peripheral vision when driving. Water definitely helps. I've heard iodine intake can cause DH to flair. I wonder if the high water intake flushes iodine. ? Again, just another deep thought from Stephanie.
  14. artistsl

    ARCHIVED Lotions

    artistsl replied to artistsl's topic in Dermatitis Herpetiformis

    Thank you! Words cannot describe how much this sucks. I am about to lose my mind over this rash. I think I'm going to go back to the dermatologist today to have it swabbed again for infection. It seems like either the infection may be coming back, my DH is flaring like crazy or both. While I'm there I'll see if she can prescribe some dapsone. After that I...
  15. artistsl
    I'm just thinking, if you have sores in your mouth then wouldn't the antibody be present at that site, just as it would be with dermatitis herpetiformis, and could this area provide promise for a positive biopsy?
  16. artistsl

    ARCHIVED Lotions

    artistsl posted a topic in Dermatitis Herpetiformis

    I have a rash that is suspected DH. The biopsy results won't come back for another 7-10 business days. I am currently recovering from a gluten challenge where my DH had subsequently turned into a very nasty bacterial infection. It is such a miserable situation. If I eat anything with gluten blisters will form underneath the infection sight. So in addition...
  17. artistsl
    I've had it twice and it was served to me different each time. The first time it was served warm in a sealed bag. The second time it was served warm, not in a sealed bag, but on their traditional paper. I should have refused the possible contaminated order, but I was hungry and in a hurry so I accepted it. My symptoms are a rash so it's not extreme intolerance...
  18. artistsl
    I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of...
  19. artistsl
    Sorry. I can't get the pictures to upload. If you are interested I can send them to your email. Since reading your post I got to thinking about handsoaps and lotions. I have no idea which brands do or do not contain gluten, but I tend to use Eucerin and Dove brands. Has anyone researched which brands to avoid and which can be considered go-to?
  20. artistsl
    It takes weeks, maybe months. The first two pics are days after I stopped eating gluten. The last picture is one week after I stopped eating gluten. Neosporin seems to help alleviate the open wounds. I keep it wrapped in gauze since it's on my hand, to keep from geeked infected. Good luck! It took me about four months to get it to go away completely the first...
  21. artistsl
    My son was borderline Hashimoto's. He tested out of range on his TSH. We removed gluten from his diet a week after having been tested and he was retested four months later. His thyroid is now within range. I plan to retest again. I have five family members with Hashimoto's and my son is suspected NCGS and myself celiac (hope to get positive biopsy via DH...
  22. artistsl
    I called my dermatologist back and she said that it needs to be biopsied when a blister is starting to form. This makes sense to me because if I were to perform a twelve week gluten challenge then by that time the area in question would likely be all scab and no longer show any blistering. I'm going to try her method and let you know how it goes. I made an...
  23. artistsl
    My son had keratosis pilaris covering his entire torso at one point. I believe it was caused by elevated thyroid and/or gluten consumption.
  24. artistsl
    Please keep us posted on what you find regarding the process for DH diagnosis. I've had a bilateral rash on my knuckles for eleven years that drives me nuts. Sometimes it itches so bad that it consumes every thought and keeps me awake throughout the night. I went gluten free and after four months it went away entirely for the first time in eleven years. I...
  25. artistsl
    Interesting. I will have to try niacin to see if it can control this agonizing itch. I'm currently doing a gluten challenge and this rash is driving me nuts!
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