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TCA

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Everything posted by TCA

  1. TCA
    How old is your son? does he have symptoms? My son's bloodwork was inconclusive, but he was very symptomatic. He's also DQ2 & 8 positive. He was diagnosed because of positive dietary response. Testing on kids under 5 can be inconclusive.
  2. TCA

    ARCHIVED Sulfites

    TCA replied to Rhonda's topic in Related Issues & Disorders

    Thanks for posting this! I wanted to let you know I called Neocate today and asked about sulfite content. they said they'd have to call me back, so I'll let you know what I learn. As for Megan's meds. I don't know what I can do about prevacid right now, but I'm trying to figure it out, but her Reglan is liquid and is corn free. The sorbitol issues is...
  3. TCA
    I'm on the opposite end of town near Lacey's Spring. We use Pediatric Gatroenterology in Hville. Dr. Laney is our Dr., but the other is good from what I've heard. I use Dr. Gardepe sp?) for a dermatologist. I've only been once, but she seemed great on the first visit. I think I have DH too. There is a GIG that meets here too. I'll get the info for...
  4. TCA
    I have the same thing on my right hand. If I get glutened, it breaks out in blisters, but otherwise it's just kinda dry. Dermatologist thinks it's DH, but couldn't biopsy because of location. It itches like CRAZY when I get glutened.
  5. TCA
    Just wanted to let you know that gummy vites are gluten-free!
  6. TCA
    Welcome! I hope you feel better soon! It's probably best to start off with unprocessed fruits,veggies, and lean meats for weight Watchers. Anyway, here is a thread I started a while back that might be helpful Open Original Shared Link
  7. TCA
    good morning! Just wanted to check in. I actually got to sleep until almost 9 this morning!!!!! (I guess Superwoman crashed, Ha!) I still feel like I could sleep for days, but that's amazing for me!!! My hubby got up with Meg last night and let me sleep, God bless him! I barely even heard the alarm when it went off at 3 for her meds. She had a few...
  8. TCA
    Shai, I just had to check in - have you heard anything yet??????
  9. TCA
    WOW vincent!!! I've even talked to you on the phone and I didn't realize about Timmy's hearing!!!!! What a wondeful praise!!!!!! I'm so glad he's doing so well. You never know what trials we my face, but isn't it wonderful to look back and see how God's carried you through it all? thanks for sharing all of this! Hugs! Tanya
  10. TCA
    Thanks for checking in everyone, especially Vincent and Kristi for the calls. It's such a blessing. I am soooo glad to be home. sorry I didn't write in earlier, but it's been one heck of a day. I'll try to answer everyone's questions, but forgive me if I forget something. The drs. did witness a few of Megan's spells, though none were as bad as the...
  11. TCA
    WOW! Thanks Rhonda for the info. Welcome to the board and thank you soooo much for responding. I'm trying to get the @#$@#$#@$ printer to work here at at the hospital to print this off to show the drs. It's a lot to absorb in one reading! I sooo appreciate you taking the time, though. so many things I thought were good are actually possibly hurting...
  12. TCA
    Just wanted to let you all know that we're back at Vandy. They want to observe Meg to see what may be going on. She's hooked up to everything now and not happy about it. so far she hasn't had any spells, so we'll see how long they want to observe her. Surgery may be iminent, but we don't know yet. They're doing lots of tests. Her surgeon is out of town...
  13. TCA
    Your description of your daughter could very well be me as a child. It's almost scary! I was diagnosed as having joint hypermobility symdrome and was told the pains were just growing pains, but I wass still having them at 29. I went gluten-free while nursing my celiac daughter and feel better than I ever have in my life. I never thought I could have it...
  14. TCA
    Well, I called the local cardiologist this morning and have a 10:00. I don't really like him, but he's the only one in town, so trying to work with him. Hopefully he'll have some answers as to why Meg is feeling so bad. She had another bad night and feels bad this morning. I'll let you all know what he says....
  15. TCA
    Bravo to you for being so proactive. My 3 y/o kept having symptoms that keppt bringing us back to celiac too. He had major D, tooth problems, FTT, mouth sores, etc. After inconclusive bloodwork and 2 negative biopsies, we did a diet trial and the difference is amazing. If you do want to go ahead and do bloodwork it is no problem. If you have a good dr...
  16. TCA
    *Best Bread = Cause You're Special *Best Bagels = don't eat it *Best Pasta = Tinkyinada *Best Pizza = Chebe and Kinnikinnik frozen crusts *Best Rolls = don't eat it *Best Crackers = Blue Diamond Nut thins *Best Cereal = Panda PB puffs *Best Waffles = LifeStream Buckwheat *Best Donuts = Kinnikinnik *Best Muffins = Authentic foods Blueberry *Best...
  17. TCA
    So glad he's feeling better. I'll pray that the scan turns out wonderful!!!
  18. TCA

    ARCHIVED Need Help

    TCA replied to chris hudson's topic in Coping with Celiac Disease

    This link is a good place to start Open Original Shared Link Welcome!
  19. TCA
    Thanks everyone for the support and prayers. I'm now glad they're moving it up too. Let's just get it over with since we know we have to do it anyway and I hope and pray it makes all the difference in the world in her health. Some of the drs. seem to think so. some don't, but I have faith that it will. I have to! Thanks for the scriptures Andrea....
  20. TCA
    Not at all. I just don't want you guys to get tired of hearing from me!!! Meg didn't have a great night with the choking. She had 2 spells where she started turning blue, but her color came back right as I was about to take her to the ER. I'm calling the cardiologist tomorrow to talk about all of this. She's sleeping a lot more and very lethargic. She...
  21. TCA
    Some people may have had success with this, but I didn't. I cleaned my old one as thoroughly as I could and got glutened by it. sorry!
  22. TCA
    I appreciate you wanting to hear. I should have posted that I was going out of town for a couple days. My husband's grandparents are still relatively healthy, but have a hard time getting around. He wanted me to take her down to see them before surgery. They just love her so much. it's about 3.5 hrs. away so we got dr. permission first. I'm glad they...
  23. TCA
    I was just getting on line to check on you!!! What good news! The prayers paid off! Enjoy the garden, but don't get carried away!!!!!
  24. TCA
    I don'thave documentation, but my son has had the same symptoms and was allergic to milk too. His speech and walking were delayed, but he's very intelligent. We're probably going to have to start speech therapy soon. Are you gluten and casien free while nursing? I'm nursing my daughter now and have to avoid both of these and eggs for her.
  25. TCA
    Shai, So glad the tests went well and that it's all behind you. I know how relieved you must feel to just have it over with. I hope the tests come back good!
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