Jump to content

TCA

Advanced Members
 View Profile  See their activity

  • Posts

    897

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by TCA

  1. TCA
    You just made my day!!!!!!
  2. TCA

    ARCHIVED New

    TCA replied to gavinsdaddy's topic in Coping with Celiac Disease

    Welcome!
  3. TCA
    Thanks for your positive attitude Bridgette. I told someone the other day that I think God allowed my kids this diesease because he knew I needed something that I could have some control over. I can't control my daughters open heart surgeries, but I can control what she eats. It gives me some comfort to know that I can make her healthier. I sooo need...
  4. TCA
    Welcome to all the Newbies! This was helpful to me when I found it. It doesn't include known gluten-free companies, just mainstream stuff. These companies do not hide gluten and always list Wheat, Oats, Rye, or Barley if they use them: Aunt Nelly's Balance Oasis (Balance Bars) Baskin Robbins Ben & Jerry Betty Crocker Blue Bunny Breyers...
  5. TCA
    I've noticed that my son will break out in a rash on the back of his neck and it spreads to his back when glutened. It also itches like crazy. I don't think it's DH because it's not blisters. He's also been gluten-free since Jan, so we're still figuring all this out. I get the blisters at my joints when glutened and I do think that's DH, but I haven...
  6. TCA
    Karen - You're such a trooper. Know that my prayers are with you. Tanya
  7. TCA
    Megan's is also a 14 French. We haven't had any issues withthe Mic-key button. I'm not familiar iwth the others you mentioned. I have changed the Mic-Key and haven't had any problems with it. The pureed avocado goes in great. I just mix it with the breast milk ahead of time and put it in with her feeds at night. We have a Ross pump and haven't had any...
  8. TCA
    My grandmother passed last Sept, but I now think she had celiac. She had thyroid problems all her life and had it removed in the 1940's. My grandfather died in 84 and her health plummeted. She lost down to under 100 lbs, she had to have her gallbladder removed, she had D all the time and vomitting spells. She lived another 21 years, but was never really...
  9. TCA
    I'm so glad your tests went well and I hope you feel much better tomorrow. I think we all need a day from time to time to just be bummed, but like armetta said, we have to decide to keep going. My son has problems with control if he ever gets glutened, so I keep pullups for him. I know it's more acceptable for a kid, but it happens with adults too. If...
  10. TCA
    Another approach is to explain it for what it is - A genetic autoimmune disorder where the body mistakes gluten for a toxin. The toxin (gluten) damages the body causing multiple health issues, leading to premature death. Someone on here once said to insert the word arsenic for gluten when explaining it to people, Will a little arsenic hurt anything...
  11. TCA
    My pediatrician thinks that the results we see are Dx enough. Everyone has to make their own decisions, but for us, it's an easy one. If they decide they want to go back on gluten when old enough to decide for themselves, I will support them, but as long as we're the ones deciding for them, we're not worried about the formal Dx. My son will ask, " Does...
  12. TCA
    Gluten DEFINATELY can be in breastmilk. My daughter was sooooo sick until I went gluten-free and it made all the difference in the world. She stopped bleeding from her stomach through the g-tube, she started gaining weight, she stopped vomitting, and she wasn't lethargic. It was amazing...
  13. TCA
    My daughter was diagnosed with eczema today. Another one to add to the list...... Kristy - It took my son about 3 weeks for the D to stop and about a month to start looking healthy. I don't know for sure what the answer is, but those were my observations. With the developmental delays - my son was almost walking around 9 mos. old, around the time...
  14. TCA
    Tracey, sounds like our kids have a lot in common. My daughter is 1 and has been tube fed all but 11 days of her life. She has terrible wretching and gagging constantly. She can't yet tolerate anything more than a bottle orally. She has a Mic-Key button. The ONLY thing she has been able to tolerate in her feeds is a mixture of breast milk, pureed avocado...
  15. TCA
    Just a thought. OUr local chapter of the Gluten Intolerance Group is ogin to air an ad durinthe show to invite folks to our meetings. Thought you might want to do the same.
  16. TCA
    If I remember correctly, you're pretty new to the diet. It takes time for the gut to heal and for things to get better. If her D is stopped, I would refuse to take her off the diet. Just make sure you are giving her the highest calorie/fat choices you can. Try something called MCT (medium chain triglyceride oil) You have to have a prescrition to get...
  17. TCA
    We do organic milk, but not cheese. It's a cost issue, but we do what we can. I too have heard that the hormones in milk are spurring early menses in young girls. I was 11 myself and drank milk all the time. I can't imagine my daughter starting any younger. It just makes sense to me. The only way we can get my son to eat yogurt is in the sticks that...
  18. TCA
    I have a list of foods my son will eat (very picky) if anyone wants a copy - just PM me.
  19. TCA
    Here I am Fiddle-Faddle! Thanks for your concern. It's just been one of those weeks. My best friend got married this weekend so I was busy doing bridesmaid stuff and still trying to pump and all that other fun stuff for my daughter. Exhausting. We also had to go to Nashville today for her to see an endocrinologist. They're now concerned about growth...
  20. TCA

    ARCHIVED Finally A Great Doctor

    TCA replied to sarahjo's topic in Doctors

    My kids drs. are convinced for the most part too. It's to the point that the ped GI asks me if I want any other tests run. Their pediatrician took a continued learning type of class on Celiac to help my kids. It's so great when they care. I'm also glad your doctors are listening. I've been thinking about you. How is your little girl doing?
  21. TCA
    Thanks so much for the prayers. That is all that has gotten us through. I will pray for your family too. I hope your husband comes around. When my husband saw the improvement in the kids he was amazed and got on board in a hurry. I also wanted to let you know that my son, who had been on a nebulizer and inhalers has not shown one symptom of asthma...
  22. TCA
    Sarajo, I have been where you are and my advice is to FOLLOW YOUR GUT!!!!!!!!! Both my kids have had a lot of problems and my gut feeling is the only thing that has kept my daughter alive. My son is 3 and had 2 negative biopsies and inconclusive bloodwork. I found out later that testing is often inconclusive in kids under 5. I finally said to heck...
  23. TCA
    I can't imagine what you're going through, but know that my prayers are with you, your daughter, and the rest of your family. Hugs coming your way.....
  24. TCA
    I know EXACTLY how you feel when you talk about being your daughter's only food source. My daughter is the same way and she's over a year old now. She won't eat anything and gags horribly when I do sneak a little into her mouth. I am gluten-free, thus she is. She has horrible reflux and a feeding tube. It's so much pressure, expecially since I'm pumping...
  25. TCA

    ARCHIVED Vision

    TCA replied to whitball's topic in Coping with Celiac Disease

    I went gluten-free in Sept. I've worn glasses for 22 years and for the first time ever my Rx improved in Jan. Since then I have heard that gluten can cause damage that leads to needing glasses. My Rx is about 1/2 what it was. I was amazed as was the doc!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.