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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    There usually is a learning curve in truly attaining a gluten-free lifestyle and it can take a couple of years to get a handle on the many places gluten is found that you would never expect. Perhaps this will help:
  2. trents
    That would be a good experiment to separate reactions to CC from nuts vs. the nut protein itself. Many people have an intolerance or an allergy to tree nuts and peanuts.
  3. trents
    And this has a bearing on hair loss? I'm just looking at the original topic.
  4. trents
    In my experience since being diagnosed with celiac disease over 20 years ago I have developed a number of food intolerances/sensitivities. For the most part they manifest themselves in headaches and brain fog but with occasional GI involvement. They include eggs, coffee, nuts in general but especially peanuts (a legume). I believe I also have histamine intolerance...
  5. trents
    Welcome to the forum, Allyson V.! Many spices can be a problem because of cross contamination during production but I have not heard of that being true for salt. Personally, I wouldn't worry about it. Are you a super sensitive celiac?
  6. trents
    Welcome to the forum, Ramncats! How long have you been diagnosed? How long were you eating shelled nuts before you realized that they were cross-contaminated?
  7. trents
    I'm not sure why you asked for gluten-free milk as gluten is found only wheat, barley and rye. It's a grain protein that does not pass into milk from what the cows eat. When you have a gluten disorder and been off gluten for a significant amount of time, you will have a stronger reaction to it than you originally did when eating it regularly. When you...
  8. trents
    This can be a legitimate concern for celiacs as most of us eat a lot of rice-based products. https://www.verywellhealth.com/rice-arsenic-and-the-gluten-free-diet-4135181
  9. trents
    There is research that links long term therapy with acid blockers like Lansaprozole to the development of celiac disease. Yes, I would certainly make an effort to communicate with your doctors as soon as possible, particularly about the missing field value for T-transglutiminase and possibly getting an earlier date for the endoscopy/biopsy. Is it taboo...
  10. trents
    Welcome to the forum, RJR! Many celiacs are of the "silent" type, meaning the "typical" GI distress symptoms were not experienced prior to diagnosis. I was one of those and what actually led to my diagnosis of celiac disease was persistently elevated liver enzymes that could not be explained otherwise. But this took years to run down. I had very minimal...
  11. trents
    Sorry for any misunderstanding my original post may have caused. I am aware I can be knitpicky sometimes. Please keep us posted about what you find from the genetic testing. Concerning the New Test explained in the article, I note the article is now three years old and I have not heard any more about it so I'm wondering if any further vetting has...
  12. trents
    You only have to be on gluten for two weeks if you can find a doc willing to do an endoscopy/biopsy without first doing the blood antibody test. It sounds like you have periods off and on where you are back on gluten anyway. The blood antibody test would require going back on regular amounts of gluten (defined by the Mayo Clinic as two slices of wheat bread...
  13. trents
    Welcome to the forum, Estrata! Have you been officially diagnosed with celiac disease?
  14. trents
    Dawn, Lactose is not the only potential problem with dairy for celiacs. Some celaics are also intolerant of the main protein in dairy (casein) which mimics a gluten reaction for them. Also, about 10% of celiacs cannot tolerate the protein found in oats (avenin).
  15. trents
    I take issue with what Jefferson Adams said in his subtitle: "Anyone who has ever tried to get an official diagnosis for celiac disease has likely experienced one very unpleasant reality: Having to eat wheat for a couple of weeks to make sure the antibody tests are accurate. Currently celiac diagnosis requires glute" Two weeks for the antibody pretest...
  16. trents
    20 times? A bit of an exaggeration, don't you think? I only brought the issue up of celiac disease not being an allergic reaction to gluten because those of us with celaic disease constantly run into that misconception in the general public and I had no idea of what your level of knowledge is about celiac disease.
  17. trents
    Many members on this forum have experienced the degrading attitudes of which you write on the part of medical practitioners who dismissed them as "head cases" and would not take them seriously. It can result in many years of suffering and diagnosis delay. Do you have options of switching doctors in your health care system? With oats, it's not always...
  18. trents
    "Gluten allergy"? Celiac disease is not an allergy but an autoimmune disorder that generates inflammation in the lining of the small bowel when gluten is consumed. We know less about the immune modulation of NCGS (Non Celiac Gluten Sensitivity) but it is probably not an allergic reaction either. It is possible to be allergic to gluten, as it is possible to...
  19. trents
    NCGS and celiac disease share many of the same symptoms and abstinence from gluten is the remedy for both. There currently is no test for diagnosing NCGS. Celiac disease must first be ruled out. If celiac disease is ruled out and the symptoms persist, then the next step is committing to a gluten free diet. If the symptoms improve on a gluten free diet then...
  20. trents
    Until all testing is done for celiac disease you would need to continue eating regular amounts of gluten or you would invalidate the test results. Yes, inactivity and/or pain meds that you might have been taking for the broken foot will certainly increase the chances of developing constipation. How long have you been on lansaprozole?
  21. trents
    "C reactive protein level" is a test to measure inflammatory processes in your body. It is weakly positive in your case. This could be caused by a number of inflammatory processes. The one test that would be specific for celiac disease in the data you have supplied is the Anti-tissue transglutaminase was left blank for some reason. The IGA must...
  22. trents
    Welcome to the forum, Marianne82! Unfortunately, to get tested for celiac disease you would need to go back on regular amounts of gluten for a period of time leading up to the testing in order for the test results to be valid. The Mayo Clinic guidelines for the pretest gluten challenge are the daily consumption of two slices of wheat bread (or the gluten...
  23. trents
    Welcome to the forum, SKS76! Recovery time from a "got glutened" experience is as individual as is the nature of the reaction itself. When I consume a substantial amount of gluten as you did, I get the same reaction as you: nausea followed by diarrhea but with each faze lasting about 3 hours. As the old saying goes, "this too shall pass," but I can't...
  24. trents
    This might be helpful:
  25. trents
    Here in the states, I can call the medical group the physician is with and leave a phone message for the medical assistant connected with that doctor. The assistant will then communicate with the physician and get back to me with the answer to my question.
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