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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, AIW! Have you been officially diagnosed with celiac disease? Celiac disease is the only known cause for DH but I was wondering if you have also had either celiac antibody testing done or endoscopy with biopsy or both? Have you begun a gluten-free diet yet and if so, how long have you been on it? If you intend to pursue other...
  2. trents
    Technically speaking, RMJ is correct. Celiac disease is also known as "gluten sensitive enterophathy". But still, there are those with celiac disease who are the outliers and don't have enteric involvement but do have DH. I do not think it would be correct to isolate DH from celiac disease since the vast majority of suffers have both together. But that is...
  3. trents
    DH and villi blunting of the small bowel lining are both manifestations of celiac disease. The vast majority of celiacs have villi blunting. A smaller percentage also have DH. Still a smaller percentage have only DH. We don't really know why there is this variation but suffice it to say we are all different and our immune systems will not all react in the...
  4. trents
    No, it is not true that most celiacs "get so sick that they avoid it completely". That is a misconception. Most do not get very sick from consuming gluten until after they have been gluten free for a significant time. Jamie678, you need to quit making excuses and buck up! Millions of celiacs around the world are in your same situation and manage to pull...
  5. trents
    Sounds like you were in fact eating enough gluten to generate valid tests results. I don't have DH and so I'm not that familiar with what it looks like but there may be other skin diseases that look a lot like it. You need to get a biopsy from a dermatologist to confirm.
  6. trents
    Just to make sure, I'll ask this question: Were you eating regular amounts of gluten (2 slices of wheat bread or the gluten equivalent) most days in the two months leading up to the antibody testing? If so, there is no indication from the test numbers that you have celiac disease. You could be one the small percentages of people with celiac disease that have...
  7. trents
    WhatstheDealiac, you posted no reference ranges with the test result so we can't say much about the results until you do. Every lab uses different reference ranges. There is no standard. You only have a short time windows to edit a post so you'll have to post all those numbers again along with the reference ranges. If you have DH you have celiac disease...
  8. trents
    Are you a celiac, DeannaM and if so are you diligent about eating gluten-free?
  9. trents
    If you don't plan on getting an endoscopy/biopsy for confirmation of celiac disease (or as a further diagnostic step if the imaware antibody tests are inconclusive) then you can start the gluten-free diet any time. If you are entertaining the idea of further testing then hold off. It is a good idea to repeat antibody testing in 6 months or a year to see if...
  10. trents
    First of all, let's discuss some terminology as I'm not sure you and your physician are using some terms the same way that I would and many others in the gluten disorders community. On this forum, tend to use the term "gluten intolerant" as an umbrella term to refer to both celiac disease and NCGS (Non Celiac Gluten Sensitivity). NCGS is often referred...
  11. trents
    Flow charts and decision trees are great as long as the data is up to date. But most of us on this forum will attest to the fact that this is seldom the case. The medical community in general is pretty behind the curve when it comes to knowledge of gluten related disorders.
  12. trents
    Are the worms sometimes introduced orally?
  13. trents
    Not necessarily, I would think. Though gluten may not be intentionally added as an ingredient in spices, cross contamination is more likely than with frozen vegetables as the equipment used to dehydrate, grind an process spices may also be used to process wheat/barley/rye in other of their food products. The point the article is making is that frozen vegetable...
  14. trents
    It is a misconception that celiacs will necessarily be underweight. Many of us were not, even before going gluten-free. Some celiacs will just consume more calories trying to make up for poor nutrient absorption. The caloric part of nutrition doesn't seem to be affected as much by damage to the villi.
  15. trents
    If the inflammation is low grade it may not produce symptoms but still damage villi over time.
  16. trents
    Welcome to the forum, cstutz! First, DH is definitive for celiac disease. There is no other known cause of DH. Second, most all of your antibody tests were strongly positive, despite your total IGA being low. Low total IGA will lower the numbers of individual IGA antibody tests. You have many classic symptoms of celiac disease, including constipation...
  17. trents
    GliadinX and similar products are designed to neutralize small amounts of gluten like you would get from cross contamination.
  18. trents
    To add pictures you would need to start a new post as there is a time limit on editing any existing post. So, sounds like you need to invest in a gluten free high quality B-complex vitamin product, zinc supplement and Betaine HCl with pepsin (for the low stomach acid). Low stomach acid inhibits the absorption of zinc and other minerals, by the way, such...
  19. trents
    You should probably be taking some high potency vitamin and mineral supplements to offset the deficiencies that inevitably accompany celiac disease.
  20. trents
    Actually, I researched my own question and it's technically illegal to propagate your own hookworms in the USA. But I doubt that would be high on the cops' agenda. Look at "Warnings and Disclaimer" here: https://www.foodsmatter.com/natural_medicine_comp_therapies/helminthic_therapy/articles/how_i_maintain_vibrant_hookworm_colony.pdf
  21. trents
    I scanned the wiki link you gave. Couldn't tell for sure but providers' payment guidelines gave clues as to where they are located. Doesn't look like there are any worm providers in the USA, maybe one in Mexico. Looks kind of spendy as well. I wonder if you can grow your own.
  22. trents
    I edited my previous post and my edit must have been in progress when your reply was in progress. How long after introduction of the worms does it take for the therapy to be effective?
  23. trents
    If someone was interested in trying this hookworm therapy for celiac disease, how do you go about finding a practitioner who will administer it and do follow-up? I mean, I suppose do it yourself hookworm kits are not yet available on Amazon. Also, dixonpete, in your experience, how long does it take for the therapy to be effective once these critters...
  24. trents
    I read a recent update on the hookworm treatment and the results are far from consistent. They are looking at the variables that might effect outcome and also trying to figure out why and how the mechanism works (at least sometimes) so as to be able to deliver it in a different way.
  25. trents
    Hearing about how you improved on an anti-inflammatory focused diet (FODMAP?) I would suggest researching MCAS (Mast Cell Activation Syndrome) and histamine intolerance. These two are closely related. In the meantime, you have some clues about triggers it seems like as you have experienced remission of symptoms on a focused diet. I cannot do alcohol. It triggers...
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