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Latest Celiac Disease News & Research:
Everything posted by trents
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Is there a way to totally remove a posted message you have submitted to the message board? Occasionally I have inadvertantly submitted a post twice because it didn't seem to show up the first time I submitted but later I realized it was on a new page or something.
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ARCHIVED More Questions On This Milk Reaction...
trents replied to VydorScope's topic in Related Issues & Disorders
I've been reading a book on food allergies and it points out that there are several proteins in milk that can cause allergic reactions. Casseine is jus the most common one. -
ARCHIVED More Questions On This Milk Reaction...
trents replied to VydorScope's topic in Related Issues & Disorders
Deleted. -
ARCHIVED More Questions On This Milk Reaction...
trents replied to VydorScope's topic in Related Issues & Disorders
I'm not sure Zrteck or any antihistimine is effective in surpressing allergic reactions in the gut. They work for the nasal passages and epidermal areas but I'm not sure it would impact problems in the gut. Maybe somebody else could address this question with more authority than I. -
ARCHIVED Milk - Alergy Vs Intolerence Vs ?
trents replied to VydorScope's topic in Related Issues & Disorders
Have you actually been diagnosed as a Celiac by antibody tests and endoscopy or was this a self-diagnosis? As you probably are aware, any allergy testing, whether it be by skin or by blood, is far from completely reliable. They are all subject to the possibility/probability of not only some false positives but also false negatives, i.e., indicating an... -
Seldom is someone totally lactose intolerant. Most adults who have a problem with milk sugar still make some of the digestive enzyme (lactase) and it may be just a matter of reducing the amount of noncultured milk products you use or adding some of the commercial enzyme products to them. Try some different brands of soy milk. They vary tremendously in...
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ARCHIVED Poll: How Many Of You Had Elevated Liver Enzymes?
trents replied to trents's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No one knows for sure what the connection is. The best theory I've heard has to do with the leaky gut syndrome caused by the inflamation of the autoimmune response to gluten in people with Celiac disease. According to the theory, the gut lining becomes more permeable and allows larger than normal protein molecules from incompletely digested food to pass into... -
ARCHIVED Poll: How Many Of You Had Elevated Liver Enzymes?
trents posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was wondering how many of you had elevated liver enzymes as one of your presenting medical conditions in the process of Celiac diagnosis. In retrospect, that was the first tip for me that something was wrong. I was first made aware of the liver enzymes being a little high when I went to donate blood in about 1990 at a Red Cross bloodmobile. They continued... -
ARCHIVED Poll: How Many Had Elevated Liver Enzymes?
trents posted a topic in Related Issues & Disorders
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis? -
Was the second test of the same type as the first? If not, that could explain the difference. Aside from that, there's the leaky gut issue. If there has been healing in your gut lining then some of those larger than normal protein molecules of an incomplete digestion stage are no longer getting into circulation.
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Is there a way to check the spelling on the posts you create either before or after you send them? I have seen this feature on other forums.
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Found this article to be very enlightening: Open Original Shared Link It indicates that many labs don't purify the antigen extracts they use to test your serum's antibody production. Thus, the test may really be finding antibodies to fungus, bacteria and other pathogens that were in the antigen as contaminates rather than intrinsic immuno properties of...
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ARCHIVED Pernicious Anemia (megaloblastic Anemia) And celiac disease
trents replied to Robix's topic in Related Issues & Disorders
Were you guys aware that mega oral doese of B12 (1000-2000 mcg daily) is also effective in treating pernicious anemia? Thought you might like to know as that is now an acceptable alternative to shots. -
ARCHIVED Not Understanding Lab Work
trents replied to mbg98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd look for another GE doc. No one should have to put up with a doctor who makes you feel uncomfortable in asking questions for clarification sake. -
Thanks, Lollie, for the extra detail. Helps me understand your situation and appreciate your reluctance to proceed with Celiac testing, at least until your finances permit. And I certainly understand about the blood draw traumatization issue. We went through it to some extent with our daughter who has a bone marrow anamoly. Kids have such tiny prephrial blood...
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ARCHIVED How Do You Cope With Multiple Food Intolerances?
trents replied to covsooze's topic in Related Issues & Disorders
Was the York test done before or after going gluten-free? I wonder what our allergy tests would show before and after going gluten-free and if the healing in the mucosa would make a difference, i.e., not so many large molecules of incompletely digested food leaking into the blood stream. What a grocery list you have there and what a nightmare to sort out... -
There is plenty of info on the internet and probably even on Celiac.com that will give detail about the blood tests so that the physician can order them. Just do a little research and be armed with the information when you go into her doctor's office at the next appointment. With regard to the tests, they check two, sometimes three antibodies. Are you...
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Lollie, I'm not aware of a direct or even a statistical link between Celiac disease and reoccuring pneumonia. However, there could be an indirect link in two ways: 1. nutrient malabsorption 2. An overtaxed immune system. What makes you think she may have Celiac disease? Does she have GI symptoms? Does anyone else in the family have it? Have you had...
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ARCHIVED The Pros And Cons Of The Food Intolerance Testing
trents replied to Claire's topic in Related Issues & Disorders
Assuming it proves to be accurate in real life, yes. Keep us posted. So where are you going from here? Are you going to start by eliminating all 16 of those foods? What if there were false negatives that prove to be the real culprit rather than the 16 positives you are working from? It has a high degree of reliability according to who? According to what I... -
ARCHIVED The Pros And Cons Of The Food Intolerance Testing
trents replied to Claire's topic in Related Issues & Disorders
Had the skin testing done several years ago, even before I was diagnosed with Celiac disease. It showed mild allergic reaction to only one inhalent (cattle dander) but mild to moderate reaction to a number of common foods such as rice, corn, peanuts, filberts, yeast, coffee and milk fat. Cost about $1100 to have it done. Interestingly (or not so interestingly... -
Okay, Sorry for the original post. After doing more research, it is apparent the Lame Advertisement test was misrepresented in a positive light by it's marketers and some others, based on limited anecdotal evidence. Here is a better perspective: The Leucocytotoxic Test (Bryan’s Test) Bryan’s Leukocytotoxic test was originally developed in 195...
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ARCHIVED The Pros And Cons Of The Food Intolerance Testing
trents replied to Claire's topic in Related Issues & Disorders
Nevadan, That article you site does indeed mention the Lame Advertisement Test, aka Bryan's Test, the leukocytotoxic test, the Nutron test. Apparently, it has been around since the 1950's an good studies have shown it to be bogus. The Leucocytotoxic Test (Bryan’s Test) Bryan’s Leukocytotoxic test was originally developed in 1956 by a Dr Black, an... -
The Lame Advertisement Test This is a blood test designed to determine food sensitivities, based on the swelling of white blood cells when they are incubated with extracts of different foods, chemicals, colorings, etc. The test has significant diagnostic value and has an 85% accuracy rating when compared against the gold standard, elimination diet. The...
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What has been your experiences with the Lame Advertisement test? Was it helpful? Do you think it is the best food sensitivity/allergy test out there? How do you go about getting it done? Can your family doctor order it and is this a test most labs can do? Is it expensive?
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ARCHIVED Anemia.....just Happend Upon Some Blood Test Results
trents replied to wolfie's topic in Related Issues & Disorders
It's interesting that your MCH (mean corpuscular hemoglobin) is high when your RBC is low. Looks like an inverse relationship. Our daughter has a bone marrow anomaly and with her there seems to be an inverse relationship between her RBC (which has tended to be low) and her MCV (mean courpuscular volume) which is always high. It's like the marrow is trying...