trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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ARCHIVED Not Understanding Lab Work
trents replied to mbg98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd look for another GE doc. No one should have to put up with a doctor who makes you feel uncomfortable in asking questions for clarification sake. -
Thanks, Lollie, for the extra detail. Helps me understand your situation and appreciate your reluctance to proceed with Celiac testing, at least until your finances permit. And I certainly understand about the blood draw traumatization issue. We went through it to some extent with our daughter who has a bone marrow anamoly. Kids have such tiny prephrial blood...
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ARCHIVED How Do You Cope With Multiple Food Intolerances?
trents replied to covsooze's topic in Related Issues & Disorders
Was the York test done before or after going gluten-free? I wonder what our allergy tests would show before and after going gluten-free and if the healing in the mucosa would make a difference, i.e., not so many large molecules of incompletely digested food leaking into the blood stream. What a grocery list you have there and what a nightmare to sort out... -
There is plenty of info on the internet and probably even on Celiac.com that will give detail about the blood tests so that the physician can order them. Just do a little research and be armed with the information when you go into her doctor's office at the next appointment. With regard to the tests, they check two, sometimes three antibodies. Are you...
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Lollie, I'm not aware of a direct or even a statistical link between Celiac disease and reoccuring pneumonia. However, there could be an indirect link in two ways: 1. nutrient malabsorption 2. An overtaxed immune system. What makes you think she may have Celiac disease? Does she have GI symptoms? Does anyone else in the family have it? Have you had...
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ARCHIVED The Pros And Cons Of The Food Intolerance Testing
trents replied to Claire's topic in Related Issues & Disorders
Assuming it proves to be accurate in real life, yes. Keep us posted. So where are you going from here? Are you going to start by eliminating all 16 of those foods? What if there were false negatives that prove to be the real culprit rather than the 16 positives you are working from? It has a high degree of reliability according to who? According to what I... -
ARCHIVED The Pros And Cons Of The Food Intolerance Testing
trents replied to Claire's topic in Related Issues & Disorders
Had the skin testing done several years ago, even before I was diagnosed with Celiac disease. It showed mild allergic reaction to only one inhalent (cattle dander) but mild to moderate reaction to a number of common foods such as rice, corn, peanuts, filberts, yeast, coffee and milk fat. Cost about $1100 to have it done. Interestingly (or not so interestingly... -
Okay, Sorry for the original post. After doing more research, it is apparent the Lame Advertisement test was misrepresented in a positive light by it's marketers and some others, based on limited anecdotal evidence. Here is a better perspective: The Leucocytotoxic Test (Bryan’s Test) Bryan’s Leukocytotoxic test was originally developed in 195...
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ARCHIVED The Pros And Cons Of The Food Intolerance Testing
trents replied to Claire's topic in Related Issues & Disorders
Nevadan, That article you site does indeed mention the Lame Advertisement Test, aka Bryan's Test, the leukocytotoxic test, the Nutron test. Apparently, it has been around since the 1950's an good studies have shown it to be bogus. The Leucocytotoxic Test (Bryan’s Test) Bryan’s Leukocytotoxic test was originally developed in 1956 by a Dr Black, an... -
The Lame Advertisement Test This is a blood test designed to determine food sensitivities, based on the swelling of white blood cells when they are incubated with extracts of different foods, chemicals, colorings, etc. The test has significant diagnostic value and has an 85% accuracy rating when compared against the gold standard, elimination diet. The...
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What has been your experiences with the Lame Advertisement test? Was it helpful? Do you think it is the best food sensitivity/allergy test out there? How do you go about getting it done? Can your family doctor order it and is this a test most labs can do? Is it expensive?
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ARCHIVED Anemia.....just Happend Upon Some Blood Test Results
trents replied to wolfie's topic in Related Issues & Disorders
It's interesting that your MCH (mean corpuscular hemoglobin) is high when your RBC is low. Looks like an inverse relationship. Our daughter has a bone marrow anomaly and with her there seems to be an inverse relationship between her RBC (which has tended to be low) and her MCV (mean courpuscular volume) which is always high. It's like the marrow is trying... -
ARCHIVED Anemia.....just Happend Upon Some Blood Test Results
trents replied to wolfie's topic in Related Issues & Disorders
Those lab values are very close to normal range. No physician is going to think twice about those numbers. You need to get a CBC done now that you are gluten free so you have something to compare those numbers with. -
Cassidy, I ran across this today and I was reminded of your post: Open Original Shared Link Here's the relevant part of the article: Adults Malabsorption. The varied signs and symptoms of malabsorption may be caused by celiac disease or many other diseases. Mild malabsorption may be asymptomatic. With its gradual onset, the classic manifestations...
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Have you had your electrolytes checked? How's your lower extremity circulation? Are you diabetic?
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ARCHIVED What Is Your Ethnic Origin?
trents replied to Emme999's topic in Related Issues & Disorders
I don't know about there being a higher incidence of Celiac's disease in the Scandinavian countries but it must also be quite common in Italy because in that country they routinely screen children going into school for it. BTW, I'm English with maybe a little Scotch-Irish from mom's side. -
Mostly English on both sides with a little Scotch-Irish. perhaps. on mom's side.
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It certainly can get expensive if approach the gluten free diet from the angle of relying heavily on the ready-made gluten free stuff in the healthfood store. For the most part, the only ready-made gluten free staple we purchase is the hot cereals. But even then, if you purchase them in bulk online, say from Bob's Red Mill, you can save a bunch. Bob's offers...
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What is it?
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Lauren, I would suggest getting allergy testing done by a qualified allergist. They test for all common food allergens, including corn. I have a mild allergy to corn and several other foods in addition to being gluten intolerant. There are different types of allergy tests available. I'm not sure what the latest and greatest technology is for allergy testing...
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My liver enzymes were moderately high for years before Celiac diagnosis but they returned to normal within three or four months of going gluten free. What hasn't returned to normal in the two years since going gluten free is my albumin/total protein. That puzzles me. Makes me wonder if some liver damage was done by all those years of being stressed. Or, maybe...
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See following. I goofed on my edit.
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ARCHIVED Increased Intestinal Permeability/leaky Gut
trents replied to Claire's topic in Related Issues & Disorders
Trouble is, how do you get it diagnosed definitively? Those symptoms are very wide ranging and general and as the article suggests, could be caused by many things. -
ARCHIVED Autoimmunity Diseases Gluten Connection
trents replied to Claire's topic in Related Issues & Disorders
So now we have the SCD diet on the table. What's that? Can we eat anything? Seems to me there is this unspoken philosophy out there that says if we just find the right diet and lifestyle we will be perfectly healthy and live forever. Now, don't misuderstand me. I certainly believe we have a responsibility to give reasonable attention to our health... -
ARCHIVED Low Albumin/total Protein
trents posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have any of you experienced moderately depressed albumin/total protein levels in your celiac experience? Mine began to drop about 10 years ago. At the same time my liver ezymes became mildly elevalated. This phenomenon continued without any answers from my family doctor who tested me for all the hepatitis strains which were all negative. Finally, a gastroenteroligist...