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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    In the media I have seen several times lately the assertion that Celiac disease is caused by the inability to break down gluten, i.e., the lack of an ezyme or something. I'm not sure that is the nature of the disease. My understanding is that it is actually an abnormal immune response to gluten rather than in inability to break it down.
  2. trents
    I've been using Aquafresh for sensitive teeth because I read somewhere when I was first dx with Celiac disease that it was gluten free. Can anyone confirm this and does anyone know of other gluten free tooth paste products that are for sensitive teeth, especially one that is commonly found in chain grocery stores? The Aquafresh for sensitive teeth is hard...
  3. trents

    ARCHIVED Body Pains

    trents replied to murlene's topic in Coping with Celiac Disease

    Glutened from the drywall paste being used in your house? Are you serious? Do you mean the fumes or what? I thought gluten had to be ingested to cause Celiacs a problem.
  4. trents
    Someone else posted a topic about warts which prompted me to throw this out to the community for input. Sometimes I get these dry, rough patches on the underside my fingers. Usually they are most noticeable on the index and and middle finger but sometimes the thumb is involved. They typically appear between the second and third joints, that is if I'm counting...
  5. trents
    Don't know if this has already been posted. My son saw it and sent it to me. One of several promising medication therapies being developed that, if they pan out in clinical trials, will be a blessing to Celiacs. Here's the link: Open Original Shared Link Steve
  6. trents
    How was the Celiac diagnosis made? What kind of tests were done? Steve
  7. trents
    You ask how high my iron ever got? Two or three months after my diagnosis and the initial iron supplementaion I spoke of, the Hemaglobin was 15.0 and Hematacrit was 45.1. That was in January of '04. That held steady for about a year and a half. I started donating blood again sometime after that as the blood center finally cleared me as a doner. (My liver...
  8. trents
    Okay, I was diagnosed with Celiac disease about 2 1/2 years ago and a recent antibody test showed that I am being successful at gluten-free compliance. I was mildly anemic at time of diagnosis so the GI doc put me on an iron supplement for a couple of months and that brought my hemaglobin/hematacrit nicely up into the middle of normal range. A year after...
  9. trents
    How are your liver enzymes doing since going gluten-free? Have you had allergy/food sensitivity testing done? It is well-known that Celiacs typically develop other food sensitivities because of the leaky gut issue. Also, the anti glidden antibody tests can be falsely positive, that's why they do the small intestine biopsy to confirm what the antibody tests...
  10. trents
    I'm not so sure it is correct to say that "typically, Celiacs are underweight". I think that might be true for those who have the classic symptoms of the disease, esp. frequent diarreah and dumping when they eat gluten, but we now know that most Celiacs don't have dramatic GI distress. If you read this board topic about weight issues, there are an awful lot...
  11. trents
    I am a 55 yr. old male and went gluten free about 2 1/2 years ago after having developed, in hind sight, Celiac disease in about 1990. I noticed that within 2 months of going gluten free I put on about 10 lbs. which I attribute to better absorption of nutrients. I've put on about 2 more pounds since then. I exercise semi-regularly. At my stage of life some...
  12. trents
    I have read the chances are somethng like one in ten or one in twenty (depending on the expert) that you will be a Celiac if you have a "close relative" who is one. I think "close relative" was defined as someone in your immediate family, like a parent or a sibling. If your brother has lactose intolerance, you may already know that this is very common with...
  13. trents
    I'd push for a hide-a-scan if I were you. It's a gallbladder test that checks for ejection factor. You many not have gallstones (what the ordinary ultrasound checks for) but your gallbladder may not be contracting well enough to push out the bile. It can stay in there too long and get foul. Or, you may have some small stones that are blocking the duct but...
  14. trents
    Lymphaderma? Do you mean lymphadema? Steve
  15. trents
    Have any of you tried Amaranth grain as a hot breakfast cereal? I got some recently and its delicious! It has a mild sweet flavor, packed with fiber, too. I like it much better than teff and qinoah which to me have a stong, acrid or musty smell and flavor to them. The only two drawbacks with Amaranth is that its spendy and it takes 20+ minutes to cook.
  16. trents
    You probably had a lot of stored energy and you were rested. The second time around may be a little more laborous. But I rejoice in your report. Seems like your body has experienced healing. Steve
  17. trents
    Costco sells some gluten-free protein bars and protein mix. From just looking on the ingredient lable, the Fudge Graham flavored Zone bars (but not the Chocolate Peanut flavor Zone bars) appear to be gluten free and the Pro-Rated protein whey protein powder is gluten free. The Alpine Vanilla Pro-Rated whey protein powder is pretty tastey.
  18. trents
    I had a routine colonoscopy done in October and there was a small polyp found. I don't remember how large it was. The doctor said they find them about 70% of the time in people over age 60. I'm 55. He was not concerned. The biopsy indicated it was benign. The import of finding this was that it moved the recommended repeat colonoscoy interval up from 10 years...
  19. trents
    I've had them before I was diagnosed with Celiac disease and was on a gluten free diet. Didn't notice any adverse affect but then I'm one of those Celiac's without a lot of overt symptoms. If you're concernced about the potential for gluten in the drug, ask the doctor's office where they get it from, i.e., who manufactures it and call that company to inquire...
  20. trents
    I wonder if anyone has done genetic studies on Celiac disease that would shed light on why the disease begins to express itself in infancy/early childhood with some people but not until adulthood with other people and why some show the classic GI symptoms and some, like me, have the "silent" form with little or no obvious GI distress? Steve
  21. trents
    A+ Steve
  22. trents
    ESR is "erthrocyte sedimentation rate" a test for arthritis. Erthrocytes are red blood cells. Ferritin is a protein in the body that binds with iron. "Is there anything else I should know? Ferritin is normally found mainly inside of cells, with only a small amount in the blood. When there is damage to organs that contain ferritin (especially the liver...
  23. trents
    I developed an eye disease in my mid-30's but I can't exactly remember the name of it. Something like "Kukendahl's spindle". Anyway, I have a real problem with glare, especially when looking out into a sun-lit window when I'm indoors or driving at night when streetlights are shining off wet pavement. I also developed a floater about two years ago. I'm now...
  24. trents
    Ditto. Yes, the test is called hemoglobin A1C.
  25. trents
    It would be difficult to establish a definite connection between the two statistically since pars plantis is such a rare disease. I note from a little quick internet research that some feel pars plantis is an immune mediated disease, which of course, Celiac disease is as well. As the US medical community is finally beginning to catch on to the frequency of...
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