Juca
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Latest Celiac Disease News & Research:
Everything posted by Juca
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Anyone live in Switzerland?
Juca replied to healthysquirrel's topic in Introduce Yourself / Share Stuff
Most supermarkets will offer at least Gluten free bread and rice crackers. If they are on the bigger size, the gluten free section will be more significant. Organic stores will have a lot of gluten-free products, but usually poorly organized, you will have to look thoroughly. I can usually always find something gluten-free to eat in restaurants, the... -
"Don't worry, I disinfected everything." said the cook, spraying a flour filled kitchen with rubbing alcohol... yes, you can "kill" gluten like that.
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Before my diagnosis I had gotten to the point I had a hard time remembering in the evening what I did that very morning. I was also living in a foreign country since years, and trying to learn the language. Though I understood a lot of it and had a good vocabulary, I could not put a sentence together. I simply could not remember words when I needed them or...
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Hi Beth, I was lucky enough to be diagnosed just before I tried conceiving. I was a Marsh 3C, severely anaemic and with several vitamin deficiencies. I was told (by gastroenterologist and nutritionist) to wait 1 year before conceiving and take care of myself in the meantime. I started with easy to digest meals (low carb, no sugar, no sweeteners...
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Time to change doctors. I went through quite a few family doctors (and took about 2 years) until I found one that could diagnose me. A doctor that takes you seriously and is able to diagnose celiac is a keeper. He is better than most but still has a limited understanding of the disease, so I stick with him for general complaints. For celiacs, I am now...
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My Tissue Transglutaminase IgA took more than 2 years to normalize, even on a very strict gluten-free diet. Symptoms regressed pretty fast (about 6 months) but my latest endoscopy shows that I am still a Marsh 3C, which would officially, make me a "non-responsive" celiac. However, I am followed by excellent specialists and a nutritionist who is a celiac herself...
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The brain fog/memory problems were caused by the gluten. However, I felt even worse in the beginning of the diet, but it eventually gets much better and goes away completely. Some people give up on the diet too soon because of this, that you might feel worse in the beginning, and not give it enough time to work.
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Hi everyone, I am doing great on the gluten-free diet and my antibody tests finally normalized after 3 years. However, my repeat biopsy revealed that I am still a Marsh 3C and I am still unable to absorb any iron. Specialists assume I might never heal or, at best, might need quite a few years more for the situation to improve. I have tried both...
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How Long Does It Take For Villi To Regrow?
Juca replied to hicupingandburping's topic in Coping with Celiac Disease
3 years on gluten-free diet: I feel great but still flat villi and zero iron absorption. -
Before my diagnosis, my stool would turn much lighter before a flare up. Followed within a few days of fat malabsorption and later all the other nasty and unconfortable symptoms. It seems to be quite typical. I read the old book on celiac disease by Dr. Sidney Haas, and in there he describes this in detail. (Back then there were no tests, they had to rely...
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Yes, it is normal to have more gas.. especially if you are eating more fruits (more FODMAPS). It will be temporary, though. Check which foods are FODMAP rich and don't eat too much for a while. Early in my gluten-free diet, I had so much pain, that I almost went to the emergency room. It turns out it was almost always because I ate too much mangoes...
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Celiac Disease Diet - Advice Needed
Juca replied to Sam100's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Why are you on the Fasano diet? Isn't it meant to eliminate contaminations on patient's diets, when they are not responding to it? By what you are saying, you seem to be responding positively. In any case, all celiacs benefit from a easy to digest diet in the first few months (or longer): - meat, fish and eggs (no eggs on your case) - plenty... -
I might have not understood your predicament exactly but... let me try to help. If your stool isn't completely flat, that leads me to conclude that the "round end" is probably harder that the "flat end". I have had problems with stools that started hard/normal and progressed to soft or even liquid. This happened when I was well into my gluten-free diet...
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During my initial recovery period I found that having digestive enzymes with meals (look for ones that also have some acid in it) helped a lot. I keep the ones from Solgar around for any tummy issues. I later found peppermint oil to be quite useful. Whenever necessary, I take a capsule 30min before a meal.
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Very interesting information about cross contamination.. I had no idea. At first I also thought ot could just be a Oligos sensitivity. If you miss hummus, you can make baba ganoush instead. It doesn't have the same nutritional profile (so important to vegetarians) but is very very tasty.
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Can celiac suddenly 'occur'?
Juca replied to sezza61's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also felt the disease came suddenly. I was already in my 30s. I guess you need the right constelation of factor to allign and make you vulnerable enough for it to manifest itself. This seems to match the views of Dr. Alessio Fasano, a very respected specialist in celiac disease (check out some of his interviews on youtube). In my case, I had moved... -
I just found a nicer compilation of her work, much easier to understand. She also makes the connection between Sleep apnea, vit. D and the gut. Maybe you will enjoy it too: https://www.vitamindwiki.com/Handout+on+Vitamin+D+(Hormone+D)+and+sleep+-+Gominak+2012 She mentions autoimmune diseases in general but not Celiacs. But I think it all connects...
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Sorry, I am new here.
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Hi Monica I hope you are feeling better now. In any case, your post made me think of something I have been reading about lately - Dr. Satsha Gominak's work. It connects sleep disorders and body aching. She corrects it by tightly controlling the levels of vit. D and B complex. Be aware that this can be caused not only by too little panthotenic acid...
