celiacsojourness
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celiacsojourness reacted to a post in a topic:
Glutened, only new product udi's bread
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Glutened, only new product udi's bread
celiacsojourness replied to Lakegirl's topic in Super Sensitive People
I'm also really sensitive. I do eat Udi's now, though I didn't eat any packaged products for years after my diagnosis. I have, however, been glutened by other gluten free products. When was the last time you called the companies of foods you eat regularly? There was a peanut butter I used to eat that changed processing facilities. I was sick for over... -
Wow you sound very similar to me in demographic and symptoms! Let me assure you that having celiac disease is nowhere near as terrible as the symptoms I experienced before going gluten free. I would joyfully give up gluten again for how well I feel now, even though I admit there have been some lifestyle sacrifices along the way. I also didn't have terrible...
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ARCHIVED I'm sort of terrified. Please help!!!
celiacsojourness replied to katiedeer's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Immune and Autoimmune responses can be so strange. When I was diagnosed with celiac disease, eating small traces didn't bother me one bit and I had a grace period for getting the hang of the gluten free diet. 2-4 moths later? WHAM - cross contamination could knock me out. It actually got better over time, and a little cross contamination gives me mild symptoms... -
ARCHIVED Help: Celiacs in the navy- told to bring my own food on deployments
celiacsojourness replied to Cheerymarie's topic in Coping with Celiac Disease
Wow I really feel for you here. I used to work on ships doing research and I eventually quit and changed careers because no one was able (ahem, or willing) to try and accommodate me; I got many of the same "a little won't hurt" comments. While I quit because I was in the early stages of my recovery and very sensitive and nervous, I have learned a few tricks... -
It's been years since my celiac diagnoses and I still get the occasional surge of anger, though more for the fact that celiac is continuing to be misdiagnosed in others than for my own personal experience (I had to badger for a celiac test when they were trying to test for stomach cancer instead - I was terrified!). It helps me a lot to write posts on this...
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ARCHIVED 21 and I feel 90
celiacsojourness replied to GabriellaMarie's topic in Coping with Celiac Disease
When I was in the early stages of recovery after my celiac diagnosis (and by early, I mean 18-24 mos), a friend told me about a friend of hers who was really sick and was still not able to eat much without feeling terrible, until 5 years after going gluten free when she could eat almost anything. I clung to that for years, and around 4.5-5 years I felt great... -
ARCHIVED does sugar free chewing gum cause problems
celiacsojourness replied to blahblah's topic in Coping with Celiac Disease
YES. I was never able to find a chewing gum that did not bug me, for whatever reason. -
ARCHIVED Meeting celiacs in Seattle
celiacsojourness replied to Hobbes's topic in Coping with Celiac Disease
Hi! I'm a celiac in Seattle. Nice to meet you. I do not know any other celiacs in Seattle. When I was first diagnosed, I emailed around to some celiac awareness groups to find out that there were none actively meeting at the time. I do suppose there are celiacs around, however, since the gluten free restaurant in Capitol Hill (Capitol Cider) knows a lot about...