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Fiddle-Faddle

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Jaded, celiac disease is NOT an allergy. It is an autoimmune reaction triggered by gluten, which results in the immune system attacking one's own body as well as the gluten. In wheat allergy, it is generally the protein--gluten--that triggers an immune system response, but not an autoimmune response.
  2. Fiddle-Faddle
    Even if you picked off the croutons, it is almost certain that there would be crouton crumbs in your salad--and it only takes a crumb to set off that reaction. That's not even considered "cross-contamination." That would be considered a gluten-containing meal. You wouldn't tell someone who is allergic to peanuts to wipe the peanut butter off the bread...
  3. Fiddle-Faddle
    I did a quick google search, and found that Lyme Disease and Lupus are often diagnosed (or mis-diagnosed) as each other. Apparently, Lyme can also cause high ANA levels. (Open Original Shared Link) A few years ago, there were a few members here who had Lyme Disease, and who had been previously diagnosed with Lupus, MS, and various neuro disorders. Not...
  4. Fiddle-Faddle
    I think that it's possible that some of us here are simply sensitive to maltodextrin in a way that might have nothing directly to do with gluten. I don't have terrible, immediate reactions to gluten. My reactions to maltodextrin are quite similar, but much STRONGER than my reactions to gluten.
  5. Fiddle-Faddle
    The words of this article totally undermine those who have severe, even life-threatening "gluten intolerance" or undiagnosed celiac. There are plenty of people--many here on this board--who for various reasons were not diagnosed with celiac, yet were either later diagnosed with celiac, or who were diagnosed with severe gluten intolerance. They need to avoid...
  6. Fiddle-Faddle
    I had been told that that is a sign of dehydration. The black, as mentioned above, can also mean blood in the stool, but also occurs for some reason when the child eats a ton of blueberries (!); the black is also seen with iron supplements, but I can't remember why.
  7. Fiddle-Faddle
    Rice Dream, as mentioned above, is processed with barley enzymes. Their own tests do not say that the levels are too low to be tested, but that the levels are under 20 ppm, which LEGALLY lets them call it "gluten-free," as the current labeling laws follow the 2006 Codex standard. Many, many celiacs report reacting to those 20 ppm levels. Wheat starch...
  8. Fiddle-Faddle
    All I can offer is what so many of us have been told at one time or another after saying that we can't eat anything made from wheat: "Oh, that's all right--all our breads are made from WHITE flour, not wheat! You can have them, no problem!" At one of these episodes, I lost my patience, and said, "Okay, so you know that wheat flour comes from the wheat...
  9. Fiddle-Faddle
    Panko is Japanese dry bread crumbs--very light and delicate. Most of the time, I just use plain old cornmeal--it works great, it's cheap, and fries up golden-brown. Add whatever seasonings you like--garlic powder, seasoned salt, Chesapeake seasoning, etc. I've even been to a seafood place that uses nothing but cornmeal for their fried foods, not because...
  10. Fiddle-Faddle
    Crimsontopper, when I first went off gluten, I had trouble with dairy, gluten-free breads, and chips that contained maltodextrin. Ironically, I did NOT react as strongly to gluten, at least as far as obvious intestinal reactions were concerned, but I was not tempted to cheat--I'd read enough posts from old-timers here who'd had serious--I mean really serious...
  11. Fiddle-Faddle
    I'm in Pittsburgh! There will be a celiac awareness day at a Pirates game at PNC Park in late September--I think it's posted on the home page of this forum. MSG is not gluten, btw. I have had very good luck with Thai restaurants in general.
  12. Fiddle-Faddle
    There are some very good reasons listed above for repeat endoscopies. However, there is another aspect to be considered: I believe that it's possible that something invasive like and endoscopy, ESPECIALLY if biopsy samples are taken, could trigger problems. Scar tissue can sometimes trigger more scar tissue to grow...and grow...and grow. Anything...
  13. Fiddle-Faddle
    Gluten-free frozen meatballs! I'm sorry, I can't remember the brand name, but I have found two different brands of frozen chicken or turkey meatballs there!
  14. Fiddle-Faddle
    If totally eliminating gluten and dairy (and it MUST be 100%--unfortunately, it's an all-or-nothing situation) does not ease your joint pain, then you might have to look into other possibilities, such as Lyme disease. According to all the Lyme sites, the first symptom of Lyme disease is severe pain in the large joints. But Lyme is tricky to diagnose,...
  15. Fiddle-Faddle
    Over the past few years, there have been many reports on this forum from members who had every symptom of celiac--INCLUDING positive dietary respons--but had negative tests. In your case, it's difficult to tell whether or not the tests they did run were complete. Endoscopies do not necessarily go to the small intestine; I had two that didn't, because...
  16. Fiddle-Faddle

    ARCHIVED Celiac Or Lyme?

    Fiddle-Faddle replied to AConSmith's topic in Doctors

    Excellent advice from Beverly above. I know quite a few people who've had Lyme, and all except one (who was diagnosed within a few weeks of the tick bite) had to go off gluten, dairy, and aspartame (the sweetener in diet sodas--apparently, it has some kind of neuro effect in combo with the Lyme, or maybe even without the Lyme). One also swears that refined...
  17. Fiddle-Faddle
    The celiacs I know who suffered from joint pain all have had to eliminate dairy from their diet as well. One of them told me that there was an article in "Rheumatoid Arthritis Today" magazine a few years ago which mentioned the combination of wheat and dairy as being particularly common RA triggers.
  18. Fiddle-Faddle
    You may find that, after being gluten-free for a while, that you might be able to reduce or eliminate your use of omeprazole, as acid reflux is a common symptom of celiac disease. For many of us, it's not the acidic tomato sauce that causes the reflux, it's the gluten-containing pasta! There are a couple of very important things I learned about acid-blockers...
  19. Fiddle-Faddle
    Joint pain seems to be easily triggered in susceptible individuals by gluten AND dairy. I know that's a lot to give up at once, but there are better dairy substitutes than there used to be. Coconut oil and dairy-free margarines are good (Fleishmann's makes a dairy-free margarine that is available at Kosher stores and areas with lots of Orthodox Jewish...
  20. Fiddle-Faddle
    I agree about getting to the doctor ASAP, but also wanted to mention that tinnitus can be a symptom of B12 deficiency. Both dry eyes and tinnitus can be symptoms of autoimmune problems.
  21. Fiddle-Faddle
    I have met Chinese, Indian, and African-Americans with celiac disease. Perhaps this might be useful: From Open Original Shared Link "HLA typing and Celiac Disease Some people have had the notion that Celiac was almost totally absent in African-American and Asian populations, however clinical observations and some studies of immigrants who...
  22. Fiddle-Faddle
    Wheat allergy (as opposed to celiac disease) can cause high histamine levels, and can also cause similar symptoms to celiac disease, including vitamin deficiencies (such as folic acid). The symptoms mentioned of both undermethylation and overmethylation are also symptoms of over-active and under-active thyroid, and may be related. However, celiac disease...
  23. Fiddle-Faddle
    If she has been gluten-free for the last 6 months, then her TtG is SUPPOSED to come down. In fact, I have always read on this site that if you have been gluten-free for more than a week, your blood tests will likely be a false negative. If you are not eating gluten, you will not be producing antibodies against it, and you will be unlikely to be producing...
  24. Fiddle-Faddle
    Sure, it's possible--but did those symptoms begin when your fillings were first installed? Or were the symptoms more recent? Cilantro is supposed to bind with mercury in small amounts--I wonder if it decided to bind with the mercury in your fillings, and if that was why your headaches got worse. Do you drink diet sodas, or eat anything with Aspartame...
  25. Fiddle-Faddle
    My neurologist actually recommended butterbur (similar effect as feverfew) as well as riboflavin and magnesium.
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