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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Rice Dream changed their label, not their formula. They use barley in the processing. According to them, Rice Dream contains less than 200 ppm gluten, so they are legally allowed to call it, "gluten-free," but it isn't. Many here have reacted to it, and contacted them, which is how we found out that it really does contain gluten.
  2. Fiddle-Faddle
    Congratulations!!!!!! Giving him formula does cause low milk supply, unfortunately (been there ) I would forget the formula completely. If he needs to nurse every hour, then let him nurse every hour. That is the fastest way to build up your milk supply, and far better for him than chemicals out of a can. Formula is also a big factor in juvenile...
  3. Fiddle-Faddle
    This thread might have some helpful info for youy: Open Original Shared Link
  4. Fiddle-Faddle
    Endoscopies are NOT accurate in children under 6, based on what I have read on this board! Also, endoscopies are invasive and risky. ANY procedure involving anesthesia for toddlers carries a fair amount of risk. WHY is he having an endoscopy? If it is to rule out celiac, then I would say that the gluten-free diet is a far more accurate diagnostic...
  5. Fiddle-Faddle
    I was going to suggest this, too. My grandfather was put in a nursing home after a stroke--but my mother searched long and hard to find one that actually did rehab instead of just shunting him off to die. They began PT and OT the day he arrived. Within a week, they had him up and kneading bread. Some nursing homes have critical care abililty, and...
  6. Fiddle-Faddle
    I am convinced that biopsy of the small intestine is NOT as accurate a diagnosis as dietary response. If villi damage is often patchy and not visible to the naked eye, and they only take a few 1/2" samples out of 20 feet of intestine, then even if you do have villi damage , you are likely to get a negative biopsy. Plus, endoscopies are invasive and somewhat...
  7. Fiddle-Faddle
    Obviously, neither Donna nor Scotty bothered to read ViktOr's first post, nor did they check his profile. He does have celiac, according to his bloodwork. He also maintained in the first post on this thread that people don't have digestive systems built for gluten, anyway.
  8. Fiddle-Faddle
    I do see what you mean, and I didn't think you were incoherent!
  9. Fiddle-Faddle
    Can you make your own, and use broiled salmon or even canned? It's really not hard to make. Mine never look as neat and perfect as the ones at restaurants, but they taste just as good! If you don't want to bother rolling them up, you could serve broiled salmon with gluten-free teriyaki salmon over sushi rice (which is regular rice mixed with a combo of...
  10. Fiddle-Faddle
    I would not be surprised if it turns out that most human beings are not able to process the amount of gluten in today's standard Western diet without their immune systems turning on their bodies, especially with the ever-increasing number of antibiotics and vaccines (with various preservatives, contaminations, and side effects) being administered. Look how...
  11. Fiddle-Faddle
    Actually, no, I don't. My endocrinologist told me that she is now routinely testing diabetic patients for celiac via bloodwork. Those who test positive and go off gluten are able to normalize their blood sugar by being off gluten. Not off carbs, but off gluten. It appears that at last SOME people presenting with classic diabetic symptoms actually...
  12. Fiddle-Faddle
    I'm sorry--I don't like ANY of them. No matter what I do (nuke, toast, bake), they crumble as soon as I try to get them out of the package. The taste isn't bad, but the texture is awful--coarse, dry, and crumbly. They also gave me stomach-aches, and I always felt like I'd swallowed a brick after one slice. I finally decided that, even though there...
  13. Fiddle-Faddle
    I think what ViktOr is trying to say (correct me if I'm wrong!) is that we should use the term "damage" rather than "disease." Those celiacs who have been gluten-free with no other causes of damage are perfectly healthy; they do not have a disease. They have recovered from the damage. Those who have not yet gone gluten-free are still damaged. But...
  14. Fiddle-Faddle
    Just thought of something else--let's not forget that there is a link between autistic kids with celiac and mercury poisoning...
  15. Fiddle-Faddle
    Perhaps both Tarnalberry and ViktOr have valid points. When we hear about poisonings (intentional or otherwise), we hear about nausea, vomiting, severe diarrhea, severe stomach pain--same symptoms as celiac, how about that? I'm guessing that this is what ViktOr meant, although, technically, Tarnalberry is correct.
  16. Fiddle-Faddle
    :lol: I actually had a great experience at Uno's in Deep Creek Lane, Maryland. I asked if the y could make me a gluten-free "pizza" using unbreaded eggplant as the crust. The manager totally understood (I hadn't even asked for a gluten-free menu), and even made sure that it would be cooked in its own little casserole dish. It was delicious, and...
  17. Fiddle-Faddle
    Sounds like your boss is TOTALLY addicted to gluten (Atkins diet, you said?)and in total denial of what gluten is probably doing to him, hence the pretense that he doesn't know what it does to YOU. Why don't you bring in a copy of Peter Green's book, or maybe print out a couple of pages from celiac.com showing the link between gluten intolerance/celiac...
  18. Fiddle-Faddle
    Apparently, the people who have posted in this thread DO care, some of them passionately. I'm glad you are able to "move forward" in your own way, but for some of us, the way to move forward is to discuss our feelings about it, even if we are not quite in sync with you.
  19. Fiddle-Faddle
    I agree with Vyktor. People who are allergic to peanuts or shellfish are not considered to have a disease. Yes, I know celiac disease is not an allergy, but the comparison is between two groups of people who can't eat a certain food because it makes them ill. And I don't agree that lactose intolerance is an enzyme deficiency. Are we SUPPOSED to...
  20. Fiddle-Faddle
    Is an endoscopy the only way to diagnose h. pylori? I thought there were other, less invasive ways to diagnose it.
  21. Fiddle-Faddle
    Seen from another angle: theoretically, someone WITHOUT celiac disease could have a stem cell transplant (for leukemia or whatever)from someone who DOES--and then develop celiac disease.
  22. Fiddle-Faddle
    from the Pittsburgh Post-Gazette, October 4, 2007: It's Celiac Awareness Month To mark October's Celiac AAwareness Month nutritionist Judy Dodd and gluten-free baker/cookbook author Lori Karavolis will present sessions on Gluten-Free Cooking and Nutrition from 10 am to 2 pm today at the Giant Eagle Market District store, Village Square, Bethel Park...
  23. Fiddle-Faddle
    You're probably right, but--try googling "celiac Singapore" and "sprue Singapore" and several things will pop up. Since there are British and Australian nationals in Singapore, there might be a British or Australian gastroenerologist located in Singapore. That might be a place to start, too. Villi damage is often patchy, and not visible to the naked...
  24. Fiddle-Faddle
    Ali, I think you need to take your birthday off your profile, and maybe change your username--name plus town plus birthday gives way too much information. I think your old posts will remain, just the username will change.
  25. Fiddle-Faddle
    When I first went off gluten, I did not know for a couple of months that there was wheat in most soy sauces (and we eat a lot of Asian food in our family--hubby is Japanese)--yet I still felt about a million percent better. Later I read somewhere that the fermenting process does something-or-other to the gluten, making it somehow either easier to digest...
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