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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Find out EXACTLY what bloodwork was done and EXACTLY what the numbers were. My doctor either misread my tests, or was an idiot and didn't realize that a high IgG means a problem with gluten, even in the absence of high IgA or transglutaminase. Bloodwork is often misread or misunderstood by the docs. Sad, but true. It's up to you if you want to go...
  2. Fiddle-Faddle
    You might try equal amounts of apple juice, grape juice, or cranberry juice, with maybe a teaspoon to a tablespoon of vinegar thrown in. I wouldn't use broth as a sub for wine unless it's unsalted.
  3. Fiddle-Faddle
    Perhaps one problem is that the doctors assume that if villi in the spots they've biopsied are fine, then you have no villi damage at all. But it seems that malabsorption problems begin before the villi get to the point where the damage is visible to the naked eye, plus villi damage can be patchy. So diagnosing by biopsy is just plain inaccurate unless...
  4. Fiddle-Faddle
    Absolutely, which makes me wonder why the focus is on celiac instead of gluten sensitivity or gluten intolerance. Villi damage is just one manifestation.
  5. Fiddle-Faddle
    I have found it in cans at the Asian food store, but the one they have contains wheat starch.
  6. Fiddle-Faddle
    Are you a vegetarian? If not, salmon is very high in good fats, and extremely nutritious. My kids always scarfed it down. They also loved casseroles that I made with Tinkyada rice pasta (or you could just use rice), ground meat, tomato sauce (read labels!) and shredded cheese. You could use non-dairy shredded imitation cheeses, but you must be VERY...
  7. Fiddle-Faddle
    Are you a vegetarian? If not, salmon is very high in good fats, and extremely nutritious. My kids always scarfed it down. They also loved casseroles that I made with Tinkyada rice pasta (or you could just use rice), ground meat, tomato sauce (read labels!) and shredded cheese. You could use non-dairy shredded imitation cheeses, but you must be VERY...
  8. Fiddle-Faddle
    I did have shingles many years ago, and when my DH-type rash occured, it LOOKED very much like the shingles rash except it wasn't confined to one nerve pathway. It was on both arms, and completely symmetrical. In fact, that was how I discovered the gluten connection--I googled "symmetrical rash" and thyroid (I assumed it had something to do with my thyroid...
  9. Fiddle-Faddle
    I understand what you are saying, but if we are defining celiac by gluten-induced villi damage, then it's a moot point what is causing the reaction to gluten; the result is ultimately the same. If you are lucky and don't have doctors who dither for 11 years before looking for it, you might catch it before there is extensive villi damage. Certainly, it...
  10. Fiddle-Faddle
    Actually, I think you are close to the real truth. Having gluten intolerance but not celiac (as defined by villi damage) only means that you haven't YET damaged your villi. There are people on this board who do not have the celiac genes, yet have had positive biopsies. I think it's similar to the concept of autism--there is a broad spectrum, from...
  11. Fiddle-Faddle
    That just boggles my mind that people don't get that celiac disease is just gluten intolerance gone unchecked. It's like saying that you are only allergic to peanuts if you have a severe anaphylactic reaction, and if you only have a mild reaction, you're not! True, celiac and gluten intolerance are not allergies. But the peanut allergy comparison...
  12. Fiddle-Faddle
    The trend is finally starting to move away from the idea that a biopsy is needed to confirm celiac. Biopsies are invasive, and less accurate than the bloodwork. There is also a serious issue faced by some on this board: an offical, biopsy-confirmed diagnosis of celiac disease can result in being denied health insurance and life insurance. Since the...
  13. Fiddle-Faddle
    Hi, Danielle, From the links I found, it sure looks like "Nutcracker Syndrome" is totally different from Superior Mesenteric Artery Syndrome. Weird, huh? So either the info on the links I found are wrong, or your doctor is. Or maybe both are wrong? I dunno, it's way beyond my scope of knowledge. Sorry I'm not more helpful. Any possibility that...
  14. Fiddle-Faddle
    Hey, don't beat yourself up! You're newly gluten-free. It took me MONTHS to get the hang of things, and I still sometimes forget to read labels. Be nice to yourself. You've had a tough few years!
  15. Fiddle-Faddle
    Welcome, jessdreams! Your reactions to gluten-containing meals are textbook celiac reactions or gluten-intolerance reactions (celiac is basically gluten intolerance that has gone unchecked and damaged the intestinal villi). Reactions do vary from person to person. Some people explode out both ends on consumption of gluten, some have no obvious reaction...
  16. Fiddle-Faddle
    Interesting. I wonder if it's related to dermatitis herpetiformis? Or perhaps, like IBS, it actually IS a celiac-related condition, they just call it bullous pemphagoid because they've never heard of celiac?
  17. Fiddle-Faddle
    "Way to go!" to all the girls, and "way to go" to all the parents, for raising girls who have found better things to do than hang out at the mall.
  18. Fiddle-Faddle
    I have it and like it. There is an awesome recipe for "faux pho," which is a wonderful Thai/Vietnamese soup with chicken, shrimp, rice noodles, chicken broth, coconut milk, clam juice, fish sauce, curry,lime, ginger, etc. I was trying to figure out how to make that even before going gluten-free!
  19. Fiddle-Faddle
    The gardening and pond-installing is great for you, no doubt, but I think the kind of exercise that would help lower blood sugar is the aerobic kind, like walking for an hour straight. Do you have time to try something like that?
  20. Fiddle-Faddle
    I did a quickie search, and didn't see any reference to either celiac or "Nutcracker Syndrome" in the descriptions. I'll keep searching...
  21. Fiddle-Faddle
    How about when the dermatologist (whom you've begged to do bloodwork) says that your blood work is perfectly normal--and your IgG is 64 (and normal is under 16 at that lab)?
  22. Fiddle-Faddle
    I get a much better rise if I use a non-metal pan (glass works better for me than silicone). I also let it rise covered, in a warm oven (I preheat the oven for 2 minutes, then turn it off). Hope that helps!
  23. Fiddle-Faddle
    Could be. I know I read something quoting Michael J. Fox as having drunk many, many beers during his "partying years," but just because I read it doesn't mean it's true! You're also correct about the Diet Pepsi.
  24. Fiddle-Faddle
    Did it help you?
  25. Fiddle-Faddle
    You know, Rinne, I think you've brought up something very, very important. Women are generally exposed to a vast number of chemicals that men are not, such as hairspray, hair dye, makeup, makeup remover, nail polish, nail polish remover, and perfume. And I suppose we ought to add all the cleaning products (full of chemicals), as most women still do the...
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