Jump to content

Fiddle-Faddle

Advanced Members
 View Profile  See their activity

  • Posts

    3,968

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    I told my now-11-year-old Aspie son several years ago. He had met 3 different severely autistic kids during the year before I told him, and I made apoint of talking afterwards about how they seemed different from other boys that he knew, and in what what ways. I named their behavior as autism, and discussed it in as much detail as I could. Then, when...
  2. Fiddle-Faddle
    Yes, it IS a choice. But I don't think formula should be considered an EQUIVALENT choice to breastfeeding. It is better than, say giving your baby cow's milk mixed with corn syrup, but not much better. It is not equivalent to breastmilk, and let's not pretend that it is.! If you and your oldest had been given formula rather than mother's milk, you...
  3. Fiddle-Faddle
    Heck, I'd say there's much less actual breast exposure when a woman nurses a baby than you'd see in any blue jeans or perfume ad!
  4. Fiddle-Faddle
    You are describing my 11-year-old son today, who presented as VERY autistic when with anyone besides for my husband and me when he was 3 years old. He now CAN make eye contact (usually doesn't, but now he CAN), he loves practical jokes (doesn't always understand timing, though, or when they might not be appropriate, and we taught him idioms. He still...
  5. Fiddle-Faddle
    Steve, when you get a chance, PLEASE post and let us know you are all right, okay? Or else, let us know how we can help...
  6. Fiddle-Faddle
    The Hep B vaccine is one of the 4 they gave my sons at birth. I remember trying to argue, asking why he needed it at all since I didn't see any risk for him. With my second son, I don't even remember being asked to sign any papers, and I think they vaccinated him without my consent! (Although it is possible that I was just too out of it after his birth...
  7. Fiddle-Faddle
    Canada is obviously way ahead of the States on that one. My oldest's birth was very similar, although he "caught up" after several months; however, things were complicated by heart defects (and then open-heart surgery when he was 2). Also, I had a long history of reactions to mercury in shots AND in eyedrops (I told every doctor I ever saw, but nobody...
  8. Fiddle-Faddle
    Absolutely correct--and I know that NOW, but had no clue they were planning to vaccinate so early when my first was born (3 weeks early and 48 hours after I went in to the hospital for a routine ultrasound, and I was in no condition to do research at that point!).
  9. Fiddle-Faddle
    Good point! How did you manage to keep her unvaccinated before symptoms showed up? My older two received their first vaccines in the hospital 4 hours after birth--we were told that that had been the standard for years.
  10. Fiddle-Faddle
    Wow, I never even thought to check the label of the egg noodles! What starch do they use? Potato?
  11. Fiddle-Faddle
    I just wanted to add--there are a number of adults on this board with Asperger's and/or "shadows of Asperger's" who might be able to add a lot of insight into what works for them. Add that to what insights all the parents have to offer, and you will be off and running!
  12. Fiddle-Faddle
    jayhawkmom, I know pretty much how you feel. My oldest was diagnosed with Asperger's about 8 years ago. There is an enormous amount of help available for you. Ultimately, though, YOU know your son better than anyone. You know how he thinks, how he feels, what makes him tick, and what sets him off. YOU will make the biggest difference in his life (and...
  13. Fiddle-Faddle
    If Hannah is having Lactaid Ultra, then she is not "off milk," as Lactaid Ultra is milk with lactase added to take care of the lactose. I second everything Ursa Major has written. If soy is not a problem (sorry if I missed any info on that), you might try soy milk, or almond milk if nuts aren't a problem. Some brands of rice milk, as you probably know...
  14. Fiddle-Faddle
    Hi, I hope you are feeling better. What a tough time you've been having! I just wanted to suggest that maybe brown rice is not the huge source of fiber that most people think--I believe there is much more fiber in fruit and vegetables. I hate to say it, but if you haven't been eating a lot of those (like, WAY more of them than the brown rice), then your...
  15. Fiddle-Faddle
    Hooray for Passover! Just be careful, as not all Kosher-for-Passover things are gluten-free. If it contains matzo meal, matzo flour, ground matzo, or matzo starch (and sometimes it's spelled, "matzah"), it still comes from wheat! Enjoy! Also, if you don't have an Asian store nearby (Asian stores are great places to stock up cheaply on rice flour...
  16. Fiddle-Faddle
    Ursa Major already wrote everything I would have suggested! To phrase it differently, the only other thing you should be looking for is a different doctor!
  17. Fiddle-Faddle
    Hope you are feeling better, Steve. Update us if you have a moment, okay?
  18. Fiddle-Faddle
    I think the problem is that it IS a choice--and I don't think it ought to be, any more than smoking when pregnant, or having breast augmentation at age 16. Clearly, there are always going to be women who legitimately NEED formula, for all kinds of reasons. But given all that we know today, I don't think it should be presented as a legitimate FIRST choice...
  19. Fiddle-Faddle
    Just read Jerseyangel's post, it was much better advice than mine!
  20. Fiddle-Faddle
    First of all--BREATHE. Take a minute to (attempt to) calm down. You have many reasons to be angry, heck, no , FURIOUS. But you need to remember that the gluten has almost certainly affected your abillity to reason, as well as affecting your anger response. It may very well have triggered "gluten-rage," or "gluten-Bipolar" or even "gluten-Stupidity...
  21. Fiddle-Faddle
    I was formula-fed. If you have medical issues, you might want to check with a lactation consultant--often doctors will tell you that you cannot breastfeed when you may be able to. I was told that I wouldn't be able to because for the first 5 days after my oldest was born,I had no milk. He wouldn't latch on (why would he, when there was no millk?). I...
  22. Fiddle-Faddle
    I'll try to figure out how to do a poll. In the meantime, is there any way to find out what was in the formulas (especially in tems of gluten) in the 1950's, 1960's, and 1970's?
  23. Fiddle-Faddle
    Oops--I missed your edit! That must have been SO frustrating for you. I have very grim memories of that pump. I had to be hooked to it every 3 hours for the first five days of my oldes baby's life--and i didn't get a single drop until day 5. Not one drop. He had formula for 5 days. ARRGH. The OBGYN told me at my 6-week appointment that the...
  24. Fiddle-Faddle
    Wow, this is very interesting. Do you think Minimal Change and celiac with DH are one and the same? And I always wondered what happened to jnkmnky, I learned so much from her. I didn't know she'd been banned.
  25. Fiddle-Faddle
    That's why I said I had to admit that sometimes it is necessary! Yes, celiac can affect milk supply. It can also affect thyroid, which directly affects milk supply. Another problem is that doctors usually recommend a feeding schedule of every 2-3 hours, and for most women, that is not nearly enough in the first few weeks to get your milk supply...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.