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celiac3270

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celiac3270 last won the day on May 25 2018

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  1. I tried a pizza from Namaste...absolutely the worst thing ever. It had a soy cheese thing--looked okay from the box and the first deceptive bite it was actually okay--then you start to really taste it--the soggy, disgusting crust, the soy cheese...disgusting. Inedible.

    The first bread I tried was worse than Ener-G...it was just as tasteless, but it was like... WET, hardened saw dust.......

  2. Skip the toilet paper -I tried a different brand this morning and it doesnt work well--It was recycled I think--so its organic cotton if anyone wants to try it but from your replies it doesnt sound like you all arent into trying anything that isnt already in the New England Journal of Medicine .  Such is life I guess.  Steve

    <{POST_SNAPBACK}>

    I want proof...I've been sick too long to risk everything on something like that. There are so many gimmicks for using pills, enzymes, liver flushes, pressure points, etc. So pardon me, but I want medical evidence behind this.

    So as my autoimmuine disease of the gut  not Celiac tell excuse my ignorance about celiac-is everyone 100% cured by being 100% gluten free?--Is everyone able and willing to go gluten free for the rest of their life so no other therapy would be necessary or helpful in any way?--If the answer is yes to these questions then why would anyone who follows that cure be here reading these posts on a Celiac website?-If there is no alternative to gluten free that is necessary or desirable?--Wondering-Steve (Lockett)

    <{POST_SNAPBACK}>

    I am ABSOLUTELY willing to be gluten-free for the rest of my life and quite frankly, I expect to do so. If a cure comes along, well, that's great, but I'm content with my lifestyle. I don't need to pop pills to be healthy, and that's what really matters.

  3. I think the logic behind it is this:

    1. It is not about security--you can still see the post (for example, under view new posts and on one of the final pages under the section in which it was posted.

    2. It makes things easier for moderators. A pinned topic tells us not to worry about it--it's been read and moved if necessary. It is not a duplicate post, nor is it spam.

    3. If not for this feature, we'd end up checking posts numerous times and many duplicates and misplaced posts would slip through.

  4. Gosh, I could spend my entire life on here... a new feature: BLOGS! I love new features...this is nasty (not literally--it's a figure of speech :lol: )

    Just a quick note to let you know that The Gluten-Free Forum now has a new Blog feature that allows registered members like you to create and maintain your own Internet blog. For those who don't know what a blog is, it is basically like your own diary on the Internet. In this case it is our hope that what you share in your blogs will greatly help other people with celiac disease.

    For more information please log into the forum's home page at:

    Open Original Shared Link

    and click "Blogs," or visit the blog page directly at:

    Open Original Shared Link

    Thank you,

    Scott Adams

    www.celiac.com

    www.glutenfreemall.com

  5. I have it! I also have Wheat-Free, Worry-Free, which has a section on testing reference ranges. This is my suggestion. I'll go find the page in my book, tell you what it is. Go to amazon .com...if you're a member you can use the "look through this book" feature thingy and plug in a page number...

    For Kids with Celiac Disease: pg. 146...

    Let me know if you need teh page for the other.

    To get to the table...go here:

    Open Original Shared Link

    and if you have an account with them (crucial), scroll over the picture of the book. An inside this book box will pop up...go to the search part of that box...type in 146. Choose page 146...remember that there are a limited number of pages that you can look at, though, so don't try to read the whole book or you'll get stuck and won't be able to see what you really want.

  6. It may relieve symptoms as Carrie suggested, but I cannot believe that it would actually prevent any intestinal inflammation or damage. Our bodies simply lack the ability to break down the gluten...I don't see how pressing anything can change that.

    I can understand where pressure might help in such cases as migraines, where pain is probably the largest factor, not damage or something, but in this case I'm doubtful. Do you eat gluten regularly with this technique? And, provided that you have been on gluten for three months, have you been tested again to see if the gluten is causing damage? There can be no visible intestinal damage and still rampant, damaging celiac.

  7. Regular Milky Ways contain wheat--so, as you suggested, of course, the minis also contain gluten (Milky Way Midnight is gluten-free). The Poppables are a dangerous area, so I just avoid them. You have to be...more careful with the minis. There was a major problem a few months ago with those variety packages of mini candies...malt was used in the glue for the wrappers and nobody knew they weren't gluten-free, because one would assume there was malt in some of the non-gluten-free candies, but that the others didn't contain malt. Big thing...so don't buy those variety packs. Stick with a bag of Snickers or a bag of Butterfingers, etc.

  8. Absolutely.

    Maltodextrin is gluten-free in the United States unless it states otherwise (i.e. says "WHEAT maltodextrin." The one exception to this rule is medication where you need to check out its source, but don't you nearly always have to call for medicine, anyway?

    Distilled vinegar is a big debate, but at least theoretically, it's gluten-free. The grain is removed in the distillation process, so it's gluten-free and also, it might not even be made with a gluten-containing grain such as wheat--what if it's distilled from...rice? Then there's no question!

    Yes, I think Velveeta is gluten-free--it's a Kraft company, anyway.

  9. I loooooove the Glutino bagels. And until a few months ago, I thought I was alone--then someone asked about the best bagel @ the delphi board and most others agreed...try it--it's not the same--a little lighter (I live in NY, as well), but it's the best thing I've found so far. What's funny is that at first I didn't like it, since I tried it right after getting diagnosed. Then my tastes adapted and now I love them and eat them every morning...

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