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celiac3270

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celiac3270 last won the day on May 25 2018

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  1. I agree that the best way to avoid this situation is to avoid situations that would result in spyware and keyloggers. I'm very diligent about computer security and this is what I use:

    Spyware Protection

    Open Original Shared Link

    Open Original Shared Link

    AOL Spyware Protection (it stinks, but AOL demanded I accept it :P )

    McAfee (came w/ computer)

    Virus Protection

    McAfee (came w/ computer)

    Open Original Shared Link

    Firewall

    McAfee (once again, 18-month subscription came w/ computer)

    You don't need this many, but get a good virus protection, a firewall is a must, and I find you usually should have at least 2 anti-spyware programs to stay completely clean... Spybot and Adaware are the most popular, and since they are free, it doesn't take much to protect yourself. Adaware updates on its own and you can schedule scans, Spybot you have to update, but you can also schedule scans. I haven't had any major issues-- a few tracking cookies that EVERYONE gets no matter what, but even those are few and far between. Provided that you don't download things from random sites or visit shady sites, you shouldn't have any issues with keyloggers, anyway.

  2. Blog system is down. I've been trying out how to delete mine-- I privatized it so it's gone for everyone else, but I can't figure out how to completely get rid of it.

    While trying to figure it out again tonight, I realized that the system is down--don't know if that's intentional (which is fine with me) or not... but I wanted to let you know in case it was unintended.

    Anyone know how to get rid of the blog?

  3. My opinion:

    Celiac magazines are nice to read (and I do read them), but are not going to be a primary source of information for you when you're starting the diet....

    Books:

    Wheat-Free, Worry-Free is the book I recommend most often. It's a phenomenal resource, complete, trustworthy, etc. Dr. Green's "Celiac Disease: A Hidden Epidemic" is the best medically, weaker on lifestyle. The Gluten-Free Bible is filled with inaccuracies about products' gluten-free status and recommends certain things you should avoid (ask me if you want to see a longer thread about it). The author has a great writing style, just not so accurate info, so you should be careful about reading that before you read something more authoritative, as Danna Korn's or Dr. Peter Green's book(s).

  4. Few of my friends know I have celiac. I low-key it... they know I have dietary restrictions due to some allergy-like thing, but I have avoided the term "Celiac disease"--the ending, "disease," is something I don't want to have to explain.

    Hi, my name is maggie and I have had celiac for 2 years, Ive just turned 16 and I am having the worst time trying to stay gluten free. Now that I drive Im on my own more and Ill stop and get a sandwich and I wont get sick...which is weird cus I always used to get sick even when I got a little gluten. Anyways I know that the gluten is hurting my body but its soo hard! I hate this disease! Its worse when Im out with friends and they are eating a mudslide its soo hard not to eat some! I used to be really good with my diet but now it just seems like Im fallin apart and I need some adivce! Thanks!

    I guess I'll divide up my reply to this into 1) Staying gluten-free, and 2) Not getting sick from gluten:

    1) The more freedom you have, the more this becomes your disease, your responsibility, your decisions. Since your parents aren't there to keep you honest, you have to do it to yourself. It's basically about the will [power] to be healthy and not give in and have a bite of pizza at the expense of your nutrition, intestinal health, immune system, and overall well being. Oftentimes this will power not to eat the gluten comes from the symptomatic repercussions that you feel after eating gluten. If you don't have this, I suppose it's harder: you have to look ahead to the long-term consequences. If you cheat once a month, or so, it's the equivalent of not even following the diet. And just because you have one bite of ____ instead of the entire ______, doesn't mean that it does less damage. Once the immune response is triggered, it's done.... (don't interpret this as meaning that if you mess up on the diet accidentally, you should indulge, though).

    2) I started to go into this in #1, but wanted to mention one more term quickly. The period of adolesence is often known as the "honeymoon period," and is the reason people used to think you grew out of celiac. Celiacs often get sick and then during puberty, may find that they have no outward symptoms, promting them to think they're cured (or know they're not, but not care since they don't feel the repercussions). Often symptoms will return later in life when gluten is ingested. Also remember that you may not feel the damage the first time you get sick if you've healed... in other words, it may take a few mess-ups for you to start feeling the outward symptoms, even if villous damage has been occuring from the start.

    -celiac3270

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