celiac3270

Yes--I'm sorry--the company name was only in the subject of the message and I forgot to put it in...lol...

Thank you --it's been 19 days now w/o getting sick--I haven't gone that long in over a year!

Really? Who else has this? Also, I'm not trying to suggest that you have that-- do you still get that symptom or was it just in the past? If you no longer get the symptom, I think it would effectively rule out malrotation. If not--well, you said it started as a child...so who knows?

Okay, thank you!

The following companies list gluten on the label:

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Butterball *lists wheat only

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

ConAgra *lists wheat only

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

Richard compiled this list and posted it at the Delphi Forums board and today, at this board

Hi,

I know everyone's been asking about some form of gluten-free makeup and I saw this list on another support group, so I'll post here:

For those of you interested. Here is a list of all the products that

are gluten free.

The following products are gluten-free:

Gluten-FREE Products:

Cleansing Cream

Toner

Skin Conditioning Oil

Bio-Hydria Gentle Exfoliant

Bio-Hydria Naturesomes

Bio-Hydria Alpha Complex Moisture for Day SPF 8

Bio-Matte Oil Free Cleanser

Bio-Matte Oil Free Toner

Bio-Matte Oil Free

Moisture for Day SPF 8

Bio-Matte Oil Free Moisture for Night

Clear Advantage Acne Wash

Clear Advantage Refining Toner

Clear Advantage Acne Lotion, ASF for

Men Cleansing Scrub, ASF for Men Soothing Shave Gel

ASF for Men Moisture plus AHAs

Cleansing Gel

Herbal Foot Care

Aromassentials Sea Salt Scrub - Awaken

Aromassentials Massage Oil

Hmm...I don't know--I used to have a strange abdominal symptom--not sure if it was celiac or the malrotation, but when I felt sick, all the muscles in my stomach would tense up completely--making it look I had really amazing abs and my stomach would....get sucked inwards--without me trying to or anything....I think that was malrotation, not celiac, but another weird stomach thing. Sorry I can't help with your situation, cause mine was basically the opposite.

https://www.celiac.com/st_prod.html?p_prodi...-48105166870.36

This is a recommended doctors list from celiac.com. For Kentucky they have one entry:

Kentucky

M.K. Younoszai, M.D

Pediatric Gastroenterologist

Medical Towers North

Suite 513

Louisville, KY 40202

Tel: (502) 629 5796

There's a section on the celiac.com site about doctors recommended by other celiacs. Here's what it had to say about New Jersey:

New Jersey

Dr. Erickson, M.D.

Gastro Associates

Montclair, NJ

Debra R. Goldstein MD

1511 Park Ave.

South Plainfield, NJ 07080

Tel: (908) 755-6633

Dr. Peter Green

Columbia Presbyterian Hospital

Phone: 212-305-5590

Fax: 212-305-3525

Lawrence Pickover, M.D. - Gastroenterologist

East Brunswick and New Brunswick, NJ

Tel: E. Brunswick (908) 390-9200

Tel: N. Brunswick (908) 846-2777

Jack Rubin, M.D. - Gastroenterologist

East Brunswick and New Brunswick, NJ

Tel: E. Brunswick (908) 390-9200

Tel: N. Brunswick (908) 846-2777

Zalman R. Schrader, M.D. - Gastroenterologist

101 Old Short Hills Road

West Orange, NJ 07052

Dr. Lawrence Stein

1) Morristown (973) 455-0404;

2) Denville (973) 625-5985

Not sure if this is at all helpful....just wanted to point it out...good resource for others to. Here's the link: https://www.celiac.com/st_prod.html?p_prodi...-48105166870.36

I go to Dr. Levy (but he only takes kids) at Columbia Presbyterian. The nutritionist you're probably refering to is Anne Lee -- Dr. Green sends all his patients to her if they need to see a nutritionist.

Also, I had my surgery done at Columbia Presbyterian. It's a very clean, new-looking hospital--nice nurses--good doctors.....I would definitely go there above any other hospital.

Oops...sorry--I posted it one minute too late

Medaka, if you e-mail the companies and ask about their labeling, policies, you can find out. Richard compiled this list and also posted it on Delphi...I would assume through e-mailing or calling the companies.

Yes--they'd told me that about the number, too, but I had forgotten about it after awhile. Thanks

It's not that short. In comparison to how long someone will be gluten-free, (for the rest of his or her life) it is--but I think that one year is a big step--it's usually when symptoms are leaving or have already left, when you know the ropes of the diet very well, etc. I've only been gluten-free for a year, but I already feel like I know so much about celiac, even though it's been a short time in relation to how long I'll be on a gluten-free diet--66 years if I live till 80

(Just to add a thought I've just had - why on earth don't they make testing for celiac disease routine? It could actually save the NHS money because the 'side effects' of celiac disease wouldn't then happen - ie some cancers, a lot of osteoporosis, a lot of unnecessary testing for 'other causes' of symptoms such as 'gastro problems' and anaemia, etc etc. Plus there's also the cost to the nation as a whole of all the time taken off 'sick', when ONE blood test (plus a fairly simple procedure, if necessary) would prevent all this!)

I think I might already be turning into a 'campaigner'on this issue!

Yes--you're making very valid points --especially since it's so common--1 in 133 have it and 97% of celiacs aren't getting proper treatment (the gluten-free diet--in most cases because they don't know they have celiac disease to begin with). It would make so much sense for the governments of a lot of these countries to screen for it--the US, UK, and all the Northern European countries (Norway, Sweden, etc.). Your points about increased productivity, prevention of cancer and other complications are very good

That's great! Fun to watch, cause I've never seen anything on the news about it. I went crazy though, when they wrote "allergic to gluten" on the bottom of the screen!...lol. And then the news person said "I'm a little sensitive to wheat." Maybe she has it? Great to see, though--thank you so much!

Yes--I read that article in....about four online support groups... ...just never thought to share here--will keep an eye out for things like these in the future.

And that's great--celiac is getting great publicity and this might help someone with osteoporosis get a diagnosis.

My DW bought a tube of "Lay's Stax". They are the same thing as Pringles basically. I was looking at the label expecting to find the dreaded "modified food starch" which would mean uncertainty and thus my inability to enjoy them, when I saw printed on the side of the can right above the bar code, "This product is naturally free of gluten."

Other than on specialty health products, I have never seen this on any other packaged food before. How nice would it be if everybody did this? I don't normally eat a lot of this type of thing, but you can bet I'll be getting these from now on, as long as they keep this text on the label!

I know--that's terrific! This is a big step--now companies not only have gluten-free lists or ingredient listing policies, but a name-brand mainstream company wrote gluten-free on the package the way a specialty food company would in a health food store! A major victory for us all...maybe some other companies will follow this lead

I had heard about this before....and also about the dedicated lines Kaiti mentioned.

I can sympathize with you--

People used to think it was all in my head as well--my mom couldn't understand why I would get sick so often--little did she know I had celiac and malrotation. The doctors thought it might be that I wanted attention....ugh...but at least people know it wasn't in my head now.

Peppermint is very helpful with the nausea -- and Peppermint Altoids are gluten-free.

I find that Sprite is also good when I'm not feeling well--but I usually let it sit out so that much of the fizz gets out of it--then you don't get bloated or gassy, as well.

Jello is made by Kraft. Any foods made by Kraft are gluten-free as long as there is no mention of wheat, rye, or barley in the ingredients list. Kraft has a policy that they will not hide these ingredients under a name such as "natural flavors" or "modified food starch."

Heinz ketchup is gluten-free.

There is a pdf file with a two-week gluten-free menu: Open Original Shared Link

Finally, consult the food, products, and medications section--where many of your questions might already be answered--

Yes--we have been having many more visitors. I've been watching the bottom of the main page, which tells how many people we've ever had on at a time and the date. It keeps growing--I think it's at 66, now--from less than a week ago.

I was e-mailing another person from the board who couldn't get on either--until recently when I was able to get on again--so I knew it's wasn't just me.

In my opinion--not safe. Both wheat and barley grass are on the forbidden list on celiac.com. The problem is that some of the seeds (which contain gluten) might still get into the the supplement--the contamination is too likely--I would not take that supplement.

Today I got this message when I tried to log in:

Bandwidth Limit Exceeded

The server is temporarily unable to service your request due to the site owner reaching his/her bandwidth limit. Please try again later.

--------------------------------------------------------------------------------

Apache/1.3.33 Server at www.glutenfreeforum.com Port 80

From what I understand, the bandwidth limit can be reached when there's a large amount of activity--is that the reason or is there another one? Thanks, Scott-- I just want to know if we're getting so popular that this might become a problem or if there was some construction going on with the site or something--thanks.

But any crumbs would be enough to cause intestinal damage--whether or not they caused symptoms.