celiac3270

I put 9-12 months, but if this is for research or something, don't use my number . I just took much longer cause I had another problem which gave me terrible, but celiac-like symptoms. So for all I know, I could have lost my celiac symptoms in two weeks and then my malrotation caused the problem for the remaining months. I know that in reality, it should have been under six months for me, because I had an endoscopy about six months in and it said that my villi had grown back 100%--and some people feel better before their villi have grown back--people shouldn't still feel sick once they're completely healed--which is why I started getting tested for other problems.

Dr. Green doesn't take children so, since I'm only 14, I see Dr. Joseph Levy. Everyone, it seems, who has ever had him has been extremely pleased--he takes the time to talk to you, confident, reassuring, etc. He's only a pediatric doctor, though....I assume that you meant my normal GI, who specializes in celiac, at Columbia

Columbia Presbyterian -- the same hospital that Dr. Greene and my GI (celiac-specialist) practice at.

And thank you....the swelling went down a little bit with the pill--and I've just been relaxing, posting, and reading (right now it's Bringing Down the House -- a NY Times bestseller that I'm really enjoying right now).....no further incident w/ anything

What a song .......builds, kinda like the 12 days of Christmas.

I was back at the hospital a little sooner than expected: about 2:30 (Eastern time). This morning I had some swelling....I'm pretty open about things, but I won't go into a tremendous amount of detail here--just the scrotum becoming very enlarged and they told me to come in. It's some sort of infection with the epidydimus (sp?) ...antibiotics for 10 days....released around 6:30, though and hoping I won't be leaving home again for a little while.

Ooh...many options! I live in New York City--there are many posts on here about NYC, but I can't find all the ones I'm looking for...so, some links:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link -- see the key on the side for the abbreviations that tell you which foods are gluten-free.

Open Original Shared Link

Open Original Shared Link

There was an article in the latest Living Without magazine in the "grapevine" section entitled "The Hunt for a Gread Machine". I'll try to summarize the points of this article--I assume that that's okay because I'm listing the source and not copying word for word:

Okay, basically, there are two helpful ways to find a good bread machine, she learned. The Gluten Free Pantry and Red Star Yeast. The Gluten Fee Pantry's site is at Open Original Shared Link and it has a section on how to make bread, tips on programming the machine for gluten-free bread, etc. Red Star Yeast has a hotline where they list bread machines that are good for gluten-free bread: 800-423-5422.

The author says that it's helpful to have a machine that can be programmed to have only one kneading and rising cycle--this is better for gluten-free dough.

She reviews two bread machines priced at over $200, so I won't go into those. She does say that the Breadman TR2200C is "programmable" and there isn't a monstrous difference between it and the higher priced Zojurushi X-20.

Then there are the much lower cost bread machines (such as a Sunbeam 5833 for $38.95), but with those, she says, you need to be there to "set the bake cycle" and it's generally very inconvenient.

Finally, Susan Adamson says that she bought the Breadman Ultimate. It's programmable with a "horizontal loaf pan" and can be purchased for $72.79 at amazon .com.

If you would like to order a back issue of the magazine, you can do that or subscribe at Open Original Shared Link. This is also good because it can help you decide whether or not you might like to subscribe, though keep in mind that the amount of gluten-free stuff in it varies from issue to issue (it's for alergies and food sensitivities, so it's not 100% celiac). I found this one had much less on celiac than the other issues usually do.

Monday -- Surgery Day -- The doctor told me I was very lucky to have gone 14 years without a serious problem. Any one of the hundreds of times I've been sick, my intestines could have coiled around a vein cutting off the blood supply and essentially killing an organ. I had to sit around in the waiting room all day until about 4:00 in the afternoon (since they were squeezing me in on an "emergency basis." In the procedure, they made three incisions--one in the bellybutton, one about halfway between my belly button and the left-most part of my abdominal area, one on the right. The incisions were small--maybe three centimeters each. They stretched out my intestines (side to side) as much as possible in the "LADS Procedure". They also took out my appendix since it's in the wrong spot as a result of all this and as a result of this, if I ever got appendicitis they would never find it--too dangerous so they took it out since it doesn't do much for me anyway. When I woke up I had a tube that went from my stomach through my throat and up into my nose and out into a container. They had suction on it so it was removing a greenish liquid from my stomach. The doctors said that since they had to touch the bowels and intestines so much, they sort of froze up. My throat and nostril got really sore from the tube over the next few days. I also had an IV of course, and some oxygen since I wasn't breathing as deeply as they wanted. The oxygen tube was removed a day later. I was in a room with a little child and I couldn't sleep much because to ladies on the other side of the curtain had loud childs music playing all night and were talking in Spanish extraordinarily loud--the way I might yell, or at least raise my voice--plus the child cried a lot. I got moved to a private room the next day by the nurses who felt sorry for me .

Tuesday, Wednesday -- Recovery -- They took the oxygen tube out, but the other tube hurt so much. I still wasn't allowed to eat or drink anything. The cuts weren't as bad as the throat pain...I had morphine to control any pain I had, but I stopped using it when I was told it could slow up bowel progress--I didn't want to sit there for days waiting. They moved the tube about an inch higher since it was a little low in my stomach--really painful. I sat in a chair for a half hour Tuesday, but it made me nauseous and dizzy. Oh, and I started walking Wednesday since that would also help me to recover and get things moving--with a stand of all the drips and pain meds.

Thursday -- I walked a tremendous amount (for post-operation)--49 laps around the floor, which consisted of four long hallways--with my stand of meds again . Still the tubes down my throat, but they were, to my relief, removed late in the day--due mostly to my walking-- and they let me eat a lemon ice (gluten-free) and a little chicken broth--hot water with an unopened package of "Herb Ox" powdery stuff to put in it--also gluten-free, of course.

Friday -- The doctors told me that I could start eating solid foods without any restriction--though I made sure to eat slowly and walk after eating to keep things moving so I wouldn't aggravate anything and need the tube put down again. 1st BM....lol....I'm not sparing any details. I did a lot more sitting in the chair--actually, Thursday I spent most of the day walking, second most in a chair, then the least time in my bed and Friday I was a little tired, but I sat in a chair again for most of the day. They disconnected the drip from the IV in my hand and reconnected it later to give me something else. I was extremely surprised when the doctors came in around 5:30 and said I could go home if I wanted to, since on Wed./Thurs. had been predicting Saturday--maybe late afternoon--and only that soon because I was so diligent about walking and sitting up and trying to recover.

Thank you

P.S. What was really cool was that one of the nurses--she added the medications to my drip and stuff on--Wednesday, I think--was celiac herself! Had never heard of celiac.com, checked for celiac sites on the internet, or known that there were gluten-free restaurants in NYC. She asked if I could e-mail later, which I will--and visited the message board while I was in the hospital

I know that this has been such a big topic among celiacs, but I was surprised to see an article in the latest Living Without magazine. If you get it, the article is at the front in the "from the grapevine" section. If you don't have it, I could summarize the person's choices and why she picked the machine that she did--

I know I've read the actual article--but this was all I could find in my e-mails about it--from Jessica's USA Silly-Yak support group. I think this tells you my opinion on oats--I strongly concur with Kaiti:

There is an article in the most recent issue of Gluten Free Living. It talks about contamination of oats.

A registered dietician took 12 containers of rolled or steel cut oats that represented 4 different lots of three brand names. The brands being McCanns, Country Choice, and Quaker.

The ELISA R5 test was used on the 12 samples. All of the brands showed contamination!!!

McCann's

1st- below level of detection (so under 3ppm)

2st- below 20ppm

3nd- 23ppm

4rd- 725ppm

Country Choice

1st- below 20ppm

2nd-4th ranged from 120-210ppm

Quaker

All four tested from 338-1807ppm

Under 20ppm is the codex standard used to determine Gluten free.........but all of the brands showed some crazy levels of contamination and were inconsistent. I wouldn't trust them!!

There's no oatmeal that I woudl eat, but there's a "Rice and Shine" cereal made by Arrowhead Mills, which is pretty good--as a replacement of course--and I used to eat oats all the time.

Here's my update which I will complete tomorrow and copy to this thread, as well, I guess:

Open Original Shared Link

Monday -- Surgery Day -- The doctor told me I was very lucky to have gone 14 years without a serious problem. Any one of the hundreds of times I've been sick, my intestines could have coiled around a vein cutting off the blood supply and essentially killing an organ. I had to sit around in the waiting room all day until about 4:00 in the afternoon (since they were squeezing me in on an "emergency basis." In the procedure, they made three incisions--one in the bellybutton, one about halfway between my belly button and the left-most part of my abdominal area, one on the right. The incisions were small--maybe three centimeters each. They stretched out my intestines (side to side) as much as possible in the "LADS Procedure". They also took out my appendix since it's in the wrong spot as a result of all this and as a result of this, if I ever got appendicitis they would never find it--too dangerous so they took it out since it doesn't do much for me anyway. When I woke up I had a tube that went from my stomach through my throat and up into my nose and out into a container. They had suction on it so it was removing a greenish liquid from my stomach. The doctors said that since they had to touch the bowels and intestines so much, they sort of froze up. My throat and nostril got really sore from the tube over the next few days. I also had an IV of course, and some oxygen since I wasn't breathing as deeply as they wanted. The oxygen tube was removed a day later. I was in a room with a little child and I couldn't sleep much because to ladies on the other side of the curtain had loud childs music playing all night and were talking in Spanish extraordinarily loud--the way I might yell, or at least raise my voice--plus the child cried a lot. I got moved to a private room the next day by the nurses who felt sorry for me .

Tuesday, Wednesday -- Recovery -- They took the oxygen tube out, but the other tube hurt so much. I still wasn't allowed to eat or drink anything. The cuts weren't as bad as the throat pain...I had morphine to control any pain I had, but I stopped using it when I was told it could slow up bowel progress--I didn't want to sit there for days waiting. They moved the tube about an inch higher since it was a little low in my stomach--really painful. I sat in a chair for a half hour Tuesday, but it made me nauseous and dizzy. Oh, and I started walking Wednesday since that would also help me to recover and get things moving--with a stand of all the drips and pain meds.

Thursday -- I walked a tremendous amount (for post-operation)--49 laps around the floor, which consisted of four long hallways--with my stand of meds again . Still the tubes down my throat, but they were, to my relief, removed late in the day--due mostly to my walking-- and they let me eat a lemon ice (gluten-free) and a little chicken broth--hot water with an unopened package of "Herb Ox" powdery stuff to put in it--also gluten-free, of course.

Friday -- The doctors told me that I could start eating solid foods without any restriction--though I made sure to eat slowly and walk after eating to keep things moving so I wouldn't aggravate anything and need the tube put down again. 1st BM....lol....I'm not sparing any details. I did a lot more sitting in the chair--actually, Thursday I spent most of the day walking, second most in a chair, then the least time in my bed and Friday I was a little tired, but I sat in a chair again for most of the day. They disconnected the drip from the IV in my hand and reconnected it later to give me something else. I was extremely surprised when the doctors came in around 5:30 and said I could go home if I wanted to, since on Wed./Thurs. had been predicting Saturday--maybe late afternoon--and only that soon because I was so diligent about walking and sitting up and trying to recover.

I agree with Kristina (mysuicidalturtle)--

Also, you could wear something that would trigger a question, giving you the right, I suppose, to mention celiac. Such as the Making Tracks for Celiacs Bracelet or a pin--just a thought--don't know what the laws restrict.

Any candy can contain gluten--in terms of hard candies, Jolly Ranchers are gluten-free. I know that some conversation candies are gluten-free--not sure which ones--Russel Stover lists gluten on the package and I made a post somewhere with many lists from common Valentines Day companies.

Girlygirl--MSG does not contain gluten so it would not affect us physically the way gluten was. MSG can trigger symptoms in people--celiac or not--but although the symptoms might resemble those of celiac, it wouldn't be due to gluten in the ingredient--I think that's what people were confused about.

When did they change? I know they at least were gluten-free--if they aren't still. Yeah--very sure they are gluten-free.

Momof3,

If you e-mail Scott, he can change your username for you--then you can keep your personal statistics, signatures, PMs, etc.

They may be, but I wouldn't eat them. I had read another article on this study, but this was recently on Jessica's support group, USA Silly-Yaks

There is an article in the most recent issue of Gluten Free Living. It talks about contamination of oats.

A registered dietician took 12 containers of rolled or steel cut oats that represented 4 different lots of three brand names. The brands being McCanns, Country Choice, and Quaker.

The ELISA R5 test was used on the 12 samples. All of the brands showed contamination!!!

McCann's

1st- below level of detection (so under 3ppm)

2st- below 20ppm

3nd- 23ppm

4rd- 725ppm

Country Choice

1st- below 20ppm

2nd-4th ranged from 120-210ppm

Quaker

All four tested from 338-1807ppm

Under 20ppm is the codex standard used to determine Gluten free.........but all of the brands showed some crazy levels of contamination and were inconsistent. I wouldn't trust them!!

Quaker is the worst of all of these--stay away in my opinion.

Many don't see any change in 3 weeks--give it a few months and you should feel extraordinary.

I drink their apple juice--I believe that all juices are gluten-free if they're 100%--can't help you with the "Mauna" drink.

Cool--thank you--another link to add to "my favorites"

Manishewitz makes soups--Kosher, I guess, which I had been eating.

Kitchen Basics makes a natural chicken broth or something like that--gluten-free--says it on the box. I haven't tried it, but it was recommended to me.

Herb Ox -- the powdery stuff that you put in hot water--gluten-free--I had it in the hospital and the Clan Thompson booklet says it's gluten-free.

To edit: I'm sorry, I thought you said chicken broth, not beef broth--I'll leave this up, anyway, but sorry I can't help with your actual question.

Yes--not eating will make your metabolism slow down--thinking that it's starving. Thus, you will not only have the discomfort of not eating, but your body will cling to every calorie it can. That's why diet programs always stress eating breakfast to get your metabolism going and not skipping meals.

Do try to get some support from someone you can see face to face, as well--it doesn't need to be a parent, but try to find someone.

I got my bracelets today--and my Living Without magazine