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Latest Celiac Disease News & Research:
Everything posted by shai76
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Some doctors believe that the higher the "class rating" or IGE antibody response the more likely it is you could suffer anaphelectic reaction. But, from my experience and others I have talked to, you can be juts a class 1 and have a serious reaction, and be a class 4 and not have hardly any reaction. So the test measures how much the IGE antibodies go up...
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ARCHIVED N.a.e.t.
shai76 replied to StrongerToday's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you have life threatening food allergies like me don't risk it. You should at least have an epipen around. I don't see h ow it could help. The only proven treatment for food allergies is avoidance. Some people say the sublingual drops work, but insurance will not pay for it because it is an unproven treatment, and it should be adminstered only by professional... -
I hope you don't get too sick. Everyone must try hard who is gluten intolerant. It's not like a weightloss plan where if you slip it's not going to cause that much damage, you just get back on the die wagon again. This is a serious disease. I guess it is a bit easier for me to avoid those things because I am allergic to wheat and oats, as well as the celiacs...
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ARCHIVED Allergy Vs. Celiac
shai76 replied to nursestherapies's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can be allergic to wheat as well as gluten intolerant. You can be gluten intolerant and not allergic to wheat, or allergic to wheat and not gluten intolerant. I am allergic to wheat and oats as well as gluten intolerant. If I eat wheat I get hives, asthma, throat swelling, and then later stomach aches and bowel problems. -
Just curious, but why don't you trust allergists? I really think you should try going to one or a ENT. My allergist is great, and has a natural health councilor at the office, and they have a lab right there. I prefer the RAST (blood) tests. My allergist preferes to go by what your symptoms are when you eat the offending food rather then by the testing. I...
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ARCHIVED What Is Your Ethnic Origin?
shai76 replied to Emme999's topic in Related Issues & Disorders
Scandinavian, Japanese, German, Welsh, Irish...that is what I know of.....probably a little of everything. My family came to America in the early 1600's. -
ARCHIVED Secondary Food Sensitivities, Intolerances And Allergies
shai76 replied to ms-sillyak-screwed's topic in Related Issues & Disorders
I've had problems with reflux and tumy aches with constipation and diarhea since I can remember. I guess it was from the gluten. I also suffered from chronic hives my whole life. I was out of school a lot as a teenager for swollen sore glands and headaches any time it would rain,a nd I live in Pennsylvania so it rains a lot (which I find out now is from my... -
I'm the same way. I wear a titanium wedding band (that I bought on-line pretty cheap) and a stainless steel medical alert necklace. They don't cause problems.
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I have eosinophilic esophagitis, which is food allergy AND environmentally induced reflux and swelling of the esophagis from eosinophils (a type of pathogen fighting blood cells) taking residence in my esophagis. I never got to the point yet (knock on wood) where it swelled so bad food wouldn't even fit through, but I have got my reflux medication stuck...
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A lot of the stuff they use to clean your teeth contain milk, as well as medicines they might use to numb you or put you out. You should really tell the dentist that you can not have stuff containing gluten or dairy in your mouth or injected into you. If he doesn't get the picture tell him you've had life threatening reactions in the past. That will get him...
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ARCHIVED Omg It Is Worms
shai76 replied to Lister's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
LOL! There's been no cases of the bird flu in the USA. HA! -
ARCHIVED Allergy Testing
shai76 replied to nursestherapies's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The only time they tried the skin testing with me they injected me with very diluted dust in my arm and I broke out in hives on my backand had an asthma attack. You should have them do the blood tests (RAST) instead. A lot safer for sensitive people. -
I lost 22 pounds on weight watchers, but I don't even look at the books anymore. I just count every 50 calories as a point and that seemed to work well. Right now I mostly just concentrate on staying away from the things I am not supposed to eat. I noticed it is harder to lose weight since I went gluten free.
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ARCHIVED It's So Hard Sitting In A Restaurant Not Being Able To Eat
shai76 replied to Green12's topic in Coping with Celiac Disease
That happens with doctors for me. I have so many allergies and life threatening reactions that they often refuse to operate. I have wisdom teeth that need out but I can't find a doctor who will do it. They don't want to put me out, and they are afraid I will react badly to the medicines. So I have a pusing wisdom tooth and I have to live with it. At this... -
ARCHIVED Vegan Diet And Wheat/gluten Intolerance Or Celiac
shai76 replied to AndreaB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was vegan, but my food allergies have forced me to eat whatever I can eat. Vegan diets are very healthy, but can be unhealthy too, it depends on the vegan. You can eat nothing but pancakes and potato chips and still call yourself a vegan. A meat eating diet can be healthy as well, as long as you are not eating hamburgers with bacon and cheese for every... -
ARCHIVED It's So Hard Sitting In A Restaurant Not Being Able To Eat
shai76 replied to Green12's topic in Coping with Celiac Disease
Juliem, It is hard not being able to eat the things everyone else is, so I hope I didn't sound like I am trivializing your challenges as well. It's just doubly hard not being able to even go into those things, and as a person with chemical sensitivities you understand this more than most! It just gets easy for me at times to put the whole celiacs thing... -
ARCHIVED It's So Hard Sitting In A Restaurant Not Being Able To Eat
shai76 replied to Green12's topic in Coping with Celiac Disease
I can't even go into a restaurant. My food allergies are so bad even inhaling the food particles in the air causes me to have asthma and hives. I feel left out when my mom and sisters all go to breakfast together. I would love to go and just sit and drink tea, or have a little fruit or something, but just being near them while eating something with dairy... -
I've always had them. My sister and I callt hem "stinkards." I never knew they had an actual clinical name. My ENT said everyone gets them. I have noticed that the tube between my ear and my throat starts to itch when I have them bad. They increase with allergy problems too. I think they are probably related more to allergies than the intolerance. Everything...
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ARCHIVED I'm Running Out Of Thing To Eat : /
shai76 replied to klemmen's topic in Coping with Celiac Disease
You should also try reducing your overall chemical load. Go all natural. It's helped me tons. Try not to eat too many of those fake foods, like fake meat and sugar alternatives. Also reducing household chemicals, like cleaners and stuff, could help a lot! Food allergy testing could help as well. -
CVS sells medicated tar ointment. It's stinky and messy but it helps with my rashes better then anything that i available by presecription, even more then those steroid ointments. It might help until you can figure out what is causing the rash. It could even be food allergies (along with celiacs). Who knows? My son gets it from allergies.
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ARCHIVED Prilosec Forever
shai76 replied to penguin's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've had reflux my whole life (now 30) and my son has had it his whole life (almost 2). We both take prilosec twice a day for LPR (we reflux into our throats and it causes lots of damage), and it works great! There is a proper way to take prilosec and other proton pump inhibitors. If you do not take them the right way they may not be having an effect. Just... -
ARCHIVED Positive Blood, Negative Scope
shai76 replied to shai76's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks Ursula My son is almost 2 and has had reflux since birth, and multiple food allergies, just like me...lucky him. He doesn't eat wheat because he has allergic type reactions from it, and he has already shown allergic reactions to milk and soy and corn, so he is on a "hypo-allergenic" diet, and he takes prilosec twice a day (just like me). I love... -
ARCHIVED Positive Blood, Negative Scope
shai76 replied to shai76's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the reply! I'm going gluten free completey the past couple days. It's not that big of a change since I am allergic to wheat and oats anyway. But I have had a stomach ache the past fee days, really bad. It feels like someone punched me above my belly button,and my stomach swells up like I am pregnant any time I eat. It sucks. I'm really... -
ARCHIVED Celiac Reaction From An Allergy Test?
shai76 replied to katshow's topic in Coping with Celiac Disease
I am allergic to wheat, and gluten intolerant. The allergist does the RAST blood allergy tests for me because the skin pricks can cause reactions like you mentioned. I did have a skin prick for dust and had a anaphelectic reaction. I broke out in hives all over my body and had a terrible asthma attack, among other things. Skin prick tests can be dangerous... -
ARCHIVED Where Is Your Stomach Pain Located
shai76 replied to gointribal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I feel like I got punched really hard rigfht about my belly button. Sometimes the pain moves down and out then, but it is usually located right there above my belly button. For food allergies I get what feels like menstrual cramping in my large intestine, bellow my belly button. And the pain is more of a twisting, contractions sort of pain.