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Latest Celiac Disease News & Research:
Everything posted by Kaycee
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ARCHIVED Timeline For Progress On gluten-free Diet
Kaycee replied to KevinG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Kevin, I don't think it would be possible to come up with a timeline or resource for our progress. We are all different, we all have different health problems that may not necessary be related to gluten, as in other tolerances and diseases. And dare I say, when we start the diet, we are bound to make mistakes by thinking something has not got gluten in only... -
Same here, it always has to be now. Catherien
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My insomnia is not chronic, I wouldn't even call it insomnia. Just occassionally, esp if I have eaten anything a bit dodgy, like gluten, I find it very tough to sleep restfully. So I would rather get up and do something quietly. On another matter, does anyone know what component of chocolate would be the bit that keeps me awake and have bad dreams? Is...
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Well it is nearly 3am in the morning and I can't sleep. I think it is one of those nights, where I have been glutened as I have been tossing and turning, and had a couple of stomach issues previously, as in yesterday. It is so quiet, I can even hear the cat snore! Not even the teenage boys are awake. So I am up, don't want to toss and turn all...
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ARCHIVED So Scared....bone Density Scan Showed Osteoporosis
Kaycee replied to chgomom's topic in Coping with Celiac Disease
chgomom I really feel for you and everyone else who has osteoporosis. It is not fair. I admire your positive attitudes, and the thoughts that this will not "run the show" All the best Catherine -
ARCHIVED Anyone Have Any Tips On How To 'trace' Gluten?
Kaycee replied to chick2ba's topic in Coping with Celiac Disease
I am sorry, but I would like to help, but it seems to me you are doing everything I would recommend doing, especially in having a food diary. Obviously you have not seen any patterns emerging. It could be your toothpaste, makeup, shampoos, vitamins etc. Are there other people in your house that eat gluten? Could it be a case of cc? Sorry I can... -
Hear hear, my ****don't stink. So true, never an embarassment any more. And further on, the gas situation has improved beyond my wildest dreams. All I have to worry about are the stools that don't sink, and minor d now and then. Must say, I have clocked up 11 day d free. Wow, so excited, probably the longest I have gone for quite a few years. Time to...
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ARCHIVED How Quickly Do You Feel Your Symptoms?
Kaycee replied to mamatide's topic in Coping with Celiac Disease
Within two hours, I start to feel that I have been glutened, as in sore bloated stomach, and that progresses to the other syptoms. Catherine -
ARCHIVED Where's The Most Inconvenient Place You've Realized You've Been Glutened
Kaycee replied to jkmunchkin's topic in Coping with Celiac Disease
I really take it to heart that most of these tales come from our prediagnosed stage of our disease. It must mean hopefully are getting our health back and are getting on top of this disease. Just a wonderful thought. Catherine -
If Bristol Stools need people for improving the scale or revising it, where would they go? But do we really fit into the rigid scale they have produced as there does not seem to be much room for variations. I've checked out this Scale before, and I have never got back to a three. When was I last a 3? Still linger in the 4's, but most of the times, it...
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I agree totally with all the above. One time it can be normal, then an hour later skinny. But even if I have had a bout of D, the next time can be normal. Or else, if I've missed the loo visit for a day, the next time it can be loose, but not constipated. It is confusing, but I just try not to sweat over it. To me this all feels normal now. At least...
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ARCHIVED Where's The Most Inconvenient Place You've Realized You've Been Glutened
Kaycee replied to jkmunchkin's topic in Coping with Celiac Disease
Why is it called rush hour. Sorry gone off track. Maybe you have given rush hour a new meaning. But I am not laughing. Catherine -
ARCHIVED Where's The Most Inconvenient Place You've Realized You've Been Glutened
Kaycee replied to jkmunchkin's topic in Coping with Celiac Disease
Here is my icky story. It would seem before being diagnosed, that the minute I went to town to shop, I would have to find the loo because I needed it quickly. Always embarassing as it was not pleasant on the nose for others. The most inconvenient, embarassing time for me, was pre diagnosis, the previous night I had celebrated my birthday at a restuarant... -
Ursula, thanks for that, or I would have been non the wiser. It is a bit scary to think because I am nearly 50 that I have spent nearly 5 years waiting in queues. I guess next time I can take my book while I wait. Catherine.
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And my son thought when I was young Adam and Eve were there. That means I must be younger than you, by a smidging. Guilty of going on computer before work. Have always tiltled my head sideways, so I was ready for that phone! Catherine
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How could Alfred Hitchcock not have a belly button? I thought the only ones without bellybuttons would've been Adam and Eve. Interesting to say the least.
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ARCHIVED Fear I'll Never Get Well
Kaycee replied to Yenni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
akJenny, I felt very much the same way you felt at the beginning. My first thoughts were dark and I was thinking, oh well this is the beginning of the end. Told you they were dark. I doubted I would come right. That was 9 months ago. I think we go through a grieving process, as we are grieving for how things were, and eventually you will go through disbelief... -
Lister, since I have been gluten free some things do smell quite different now. Cooked chicken at the supermaret smells so weird and horrible now, not that I will eat it as they are stuffed, but the others think hey this is great, and think it smells still the same. I notice I cannot walk up the bread aisles without thinking yuck that stinks. It seems...
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ARCHIVED Question For People Who Have Been Diagnosed For A Long Time
Kaycee replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Kathy Ann, I have not been diagnosed for long, only 9 months, but it feels so long. At first I was shell shocked, but I am at the stage where I am quite comfortable with coeliac. At times I can sort of forget, as it is not constantly on my mind, cooking tea is second nature again, nearly automatic. My health picked up immediately, the silly thing is... -
Kathy Ann and all you newbies your needs have been, or will be met here. 1. I've felt welcomed and part of the team here and my questions get answered. 2. For assurance and evidence I am pointed in the right direction or else advised of other sites on the internet. I have so many sites to visit. 3. Oh, if everybody ignored all my innocent and naive...
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ARCHIVED Is There A Way Of Making This Site Look More Like Work?
Kaycee replied to Matilda's topic in Board/Forum Technical Help
We must have a paranoid company, being a school I guess that explains it. Our IT person tells us they keep an eye on thing, but never does our IT person say it is sooooo not worth their time reading the emails. I guess there is just so little email traffic, they have all the time in the world to read them. Matilda, at least it is not porn you are looking... -
ARCHIVED Is There A Way Of Making This Site Look More Like Work?
Kaycee replied to Matilda's topic in Board/Forum Technical Help
Matilda, They will be just jealous, and feel like they are missing out on something if they saw. You sound like you work in a very relaxed environment as far as access to the net is concerned. You are lucky. We work in a very restricted office, and any venture away from educational sites we get rapped on the knuckles. One employee got roasted for looking... -
Tell me what is the preservative that is not gluten free, so I know what to look out for. The one I am currently drinking has 220 which is sulphur dioxide. I can't see anywhere where that would have gluten. Catherine
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ARCHIVED Weirdly Hoping I Have It!
Kaycee replied to Beaker's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Beaker, My blood tests results came back weakly positive according the the doctor, and that was after about 5 weeks being what I thought was a pretty good effort at being gluten free. The doctor had no doublt about it being coeliac. I have not had a biopsy yet, and he did say that even if that came back negative, he would still believe I had coeliac. ... -
1. FIRST NAME? Catherine 2. WERE YOU NAMED AFTER ANYONE? My middle name after my grandmother Yaka, with Jessie being english equivalent. How that comes about I don't know. 3. WHEN DID YOU LAST CRY? When I got told off for putting peas back in a serving dish. naughty I know. 4. DO YOU LIKE YOUR HANDWRITING? no, that's why I correspond by email ...