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lovegrov

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Latest Celiac Disease News & Research:

Everything posted by lovegrov

  1. lovegrov
    I think steroids can give you a false negative on the biopsy but do not know if they have any effect on the blood tests. richard
  2. lovegrov
    Deby, I also scoffed at the idea of a 504 for celiac at first but I've since read about too many schools where they refused to work with the student and parents at all. No effort to avoid contamination, no reading of labels, no substitutes when doing projects involving gluten, no storage space for special foods. If my child had celiac disease I don...
  3. lovegrov
    Based on fevers, weight loss and very bad night sweats my doctors were convinced I had lymphoma, even after they diagnosed celiac disease. Even had the PET scan. It was all caused by celiac disease. richard
  4. lovegrov
    What kind of symptoms do you have? Is it worth it to you to try the diet and see? Did they mention doing a biopsy? richard
  5. lovegrov
    You might be able to deal with this without medication, but I can't imagine you won't need counseling -- and I don't mean this as a criticism. This is some pretty serious stuff and I would think needs serious help. And this is from someone who's having anxiety attacks. richard
  6. lovegrov
    You should always check medications but the fact is almost no medications use wheat as a binder. The VAST majority of medications are gluten-free. richard
  7. lovegrov
    "Yes, the school should have to provide her a lunch and breakfast that is glutenfree, but what else is there that the school should have to do about it?" Yes, this is what we're talking about. This is what should be in the 504. richard
  8. lovegrov
    Celiac does qualify for a 504 and I have no problem with the school being required to help with accommodations, particularly at the elementary school level, but demanding that the daughter be allowed to come in late (unless there's something we don't know) seems ridiculous. richard
  9. lovegrov
    If you have the Joy of Cooking cookbook the blue cheese dressing recipe in there is better than any commercial dressing I've had. richard
  10. lovegrov
    All other Coke soft drinks are almost without question gluten-free, but they won't say so apparently because they have less control over the ingredient suppliers for those products. richard
  11. lovegrov
    Also Kroger and Breakstone. richard
  12. lovegrov
    The official word on ALL liquor is that it's gluten-free unless they add gluten after distilling. And I can't remember finding a liquor that had gluten added yet. This is not, of course, a guarantee there isn't a liquor with gluten, but I think of scotch as safe. richard
  13. lovegrov

    ARCHIVED Dh Insude Nose?

    lovegrov replied to tmc's topic in Dermatitis Herpetiformis

    I used to have it inside my nose occasionally. richard
  14. lovegrov
    I'm not on a real tight budget but I rarely buy specialty gluten-free food. I cook my own meals from primarily fresh ingredients and I rarely eat out. If you must have bread, cookies, cake etc, start experimenting with making your own. Some of the flours that cost an arm and a leg in a health food store are extremely cheap at an international or Asian market...
  15. lovegrov
    Great reminder on the Ro-tel. And it's gluten-free!! richard
  16. lovegrov
    That list I gathered by calling companies and asking others on various forums and then checking it out. The list is preserved in the archives of the delphiforums celiac forum. richard
  17. lovegrov
    This list is not complete. Some are subsidiaries of larger companies also listed, but not all subsidiaries of the larger ones are listed either. There are more companies than this. richard Aunt Nelly's Balance Baskin Robbins Ben & Jerry Betty Crocker Blue Bunny Butterball *lists wheat only Breyers Campbells Cascadian Farms Celestial Seasonings...
  18. lovegrov
    Even if "nacho cheese" (not sure exactly what you're talking about) has MFS in the ingredients, all you have to do is check with the manufacturer. The vast majority of MFS does not have gluten. I personally like the melted Velveeta, esecially when you toss in some hot sausage or other things. Sweet rice flour is not nearly as gritty as white rice flour...
  19. lovegrov
    This was a symptom for me when I got really sick before diagnosis and it continued for several weeks after. Then it disappeared. richard
  20. lovegrov
    It sounds like this person is in pain and needs immediate relief. This kind of product will never get near his/her mouth. I'd go for the relief and to heck with the gluten-free status (this is something I would seriously doubt would contain gluten anyway). richard
  21. lovegrov
    I would agree that just a positive Igg isn't an absolute diagnosis (although I do know people who had a positive biopsy after just a positive Igg). Of course I don't know if you have celiac disease, but if you never really followed the diet very well, then there's absolutely no way for you to know if going gluten-free would help or not. Until you go COMPLETELY...
  22. lovegrov
    It does sound like the board is being stupid and spiteful, and they CERTAINLY should not change her eating allowances. But I do have a problem with this: "During the summer of 2003, the student's mother became concerned about the effects of stress and loss of sleep on her daughter because the middle school's start time was changed to one-half hour earlier...
  23. lovegrov
    I don't mean to be flip, but I'm having a hard time imagining how this product would ever make its way into your mouth. I wouldn't worry about whether it's gluten-free or not. richard
  24. lovegrov
    Well, just to frustrate you some more, nobody can tell you how long to eat gluten for certain because it depends on the individual. Most experts would say that if you've been strictly gluten-free for a while you need to eat gluten for three months. Yes, three months. The fact that you've improved on the gluten-free diet and and are feeling much sicker...
  25. lovegrov
    Jack is gluten-free because of distilling. Beer is not. richard
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