Jump to content

Jestgar

Advanced Members
 View Profile  See their activity

  • Posts

    9,196

  • Joined

  • Last visited

  • Days Won

    42

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jestgar

  1. Jestgar
    Antibodies should last a while, and your one day challenge probably boosted them. Please let us know when you get the blood test back. I'm sure everyone will want to know.
  2. Jestgar
    I do understand that you are secure. I was suggesting a gentle way out for her. If you burn the bridge too completely, she would have no one to turn to if she did decide to take control of her life. I have no personal experience with this kind of thing, but my sister-in-law left my brother because he refused to take care of himself. Even that didn...
  3. Jestgar
    To say that is you now making judgements about her lifestyle. Why don't you just say the truth. You are moving towards a healthier way of life and right now she isn't supportive in a way that you need. You hope that ultimately this doesn't end your friendship but you understand that sometimes people change in different ways. Until you can find yourself...
  4. Jestgar
    I think most of us are just on one side of this. We know what CC can do, how it feels to be glutened, how exciting it is to find something new to eat etc., but I have an inkling of what it's like to be on the other side. I'm not sure if I should hang my head in shame here, or if my behaviour redeemed me, so I'll just tell the story. Several years...
  5. Jestgar
    Here's something to show your ped. It shows that the DQ1 genotype is associated with celiac AND ALSO microscopic colitis that may be affected by gluten. Fine KD, Do K, Schulte K, Ogunji F, Guerra R, Osowski L, McCormack J. High prevalence of celiac sprue-like HLA-DQ genes and enteropathy in patients with the microscopic colitis syndrome. Am J Gastroenterol...
  6. Jestgar
    Me too. Ranges from a mild headache to my eyes trying to escape through the front of my head. Totally depends on the amount of gluten.
  7. Jestgar

    ARCHIVED Yikes!

    Jestgar replied to penguin's topic in Publications & Publicity

    I did read one research paper in which one woman who had been gluten-free for more than 10 years slowly re-introduced gluten with her doctors checking her Ab levels and (I think) villi. They found that she did NOT produce antibodies to gliadin. So it is possible.....
  8. Jestgar
    Leah, This is an incredible list! Thank you so much for compiling it! J
  9. Jestgar
    Wow!! Good for you! I've also been trying to convince my whole family to investigate this but have been completely unsuccessful. I was beginning to feel like a nag so I stopped, but maybe I'll try your more subtle approach of feeding them gluten-free food and trying to let them make the connection.
  10. Jestgar
    Since the response to gluten is an immune response, not an allergic response (well, you might have both), it might help to think of this as your body responding to something attacking it. Like when you get a stomach virus. Your body "knows" its a bad thing and does everything it possibly can to get rid of it. Maybe some people's bodies try harder to protect...
  11. Jestgar
    I received an unsolicited, nasty pm from someone and I believe others have as well. Is there an avenue for reporting this so abusive people can be controlled?
  12. Jestgar
    You know, after thinking about this for a while, I wonder if one of the reasons he continues to advocate for a biopsy is political. If he were to lose credence with his fellow physicians I imagine it would make a lot of what he's trying to do more difficult.
  13. Jestgar
    I'm going to interject my own little bias here. I am a research scientist and I have been doing this for 20 years. I've worked with both MDs and PhDs. I have found that the average physician is not very intelligent, as I define the word. They learn to memorize series' of symptoms and events and assign a diagnosis to the best fit definition. They do not...
  14. Jestgar
    I think most of those shows happened several years ago and although undoubtedly docs still receive gifts from drug reps, I think it's much harder to justify. Where I am, they recently decided not even to allow the drug reps to provide lunch for the conferences. And they have ethics conferences where they discuss whether or not your free coffee cup with...
  15. Jestgar
    This is an immune response and the immune system works as a cascade. (Think of a pyramid of cards. You knock down the top one and chances are that all the layers underneath will fall as well.) This means that for each molecule of gliadin that you eat, your body responds by alerting 10 or 20 cells and each of these cells send out alarm signals to 10-10...
  16. Jestgar
    I kind of feel a need to defend MDs here. I work in a research lab that's connected to a hospital and I frequently go to training conferences and listen to the little baby docs learning their trade. I think they have somewhat conflicted training. I believe every single resident that I have heard or talked to truly wants every person to be well. Unfortunately...
  17. Jestgar
    Anything that causes inflammation in your intestines (or anywhere in your body) is going to increase your risk of cancer in that area and increase arterial damage in your whole body.
  18. Jestgar
    I have fasciculations and have all my life. They haven't changed at all since going gluten-free.
  19. Jestgar
    I recently read a paper in which they evaluated the tTg test and found that in people with less than total destruction of the intestine, the tTg results are only 60% specific. This means that 40% of people with partial intestinal destruction have flase negative tTg results.
  20. Jestgar
    Hi, I'm on Bainbridge and I work in Seattle. I was just realizing that although I've lived in Washington pretty much since I was 8, I don't think I've ever in been to Olympia...
  21. Jestgar
    I think that one of the effects of gluten is to accentuate things that you already have. Mild sensitivities become more pronounced. Mild allergies become more obvious. If you've had these things for years, maybe they are just more painful or more itchy now and that's why they're bugging you.
  22. Jestgar
    You might also be mildly allergic to wheat. Maybe your ER visit was caused by something that usually causes a mild reaction, but combined with increasing gluten issues was suddenly and dramatically worse. My last gluten meal caused me to spend the morning in the bathroom throwing up and subsequently my face swelled up. I am mildly allergic to wheat...
  23. Jestgar
    The antibodies will stay in your blood for several months after stopping gluten, although the exact amount of time isn't really clear. They should reappear almost immediately after starting to eat gluten again. As for the biopsy, that's harder to answer. If you had minimal damage, it might have faded enough not to be seen and might take a long time...
  24. Jestgar
    When I was having really bad urticaria my boss (who is an MD) gave me a variety of options. Allegra, 2x the recommended dose Allegra and benadryl, (benadryl at night because it causes sleepiness) OTC claritin (apparently better than other non-sedating antihistamines) Also from reading I saw that for some people the H2 blockers: Cimetidine (Tagamet...
  25. Jestgar
    Ya know, if you think about how sexy someone sounds when speaking English with a foreign accent, ya gotta figure that speaking French with an American accent must sound pretty sexy to a native French speakers ears.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.