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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Beverage replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Finding out I’m coeliac whilst pregnant
Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster. I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs... -
- Beverage replied to Ading69's topic in Traveling with Celiac Disease3
Seeking Gluten-Free Advice for My Trip to South Korea!
Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. -
- normagain commented on Scott Adams's article in Spring 2024 Issue12Exploring Other Causes of Villous Atrophy Beyond Celiac Disease
Thanks Knitty Your knowledge of the b vitamin is unreal. I don't recall ever having heard of the riboflavin influence on candida and look forward to a little more help in controlling the beast. Carbs are a problem for me particularly bread, rice and pasta. Worse was my addiction to refined sugar, however, pleased to report that I gave it up for the most... -
- trents replied to MMH13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms20Not Sure What to Think
That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.- 1
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Posts
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Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster. I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
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Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that.
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That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
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I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still. Help!
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Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
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