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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. I'm sorry to hear about your experience. It's not uncommon to have some discomfort or pain after an esophageal dilation procedure, especially if biopsies were taken. The fact that you're still struggling to drink liquids and experiencing pain a week later is concerning, though. Since you've already been to the hospital and had a CT scan that came back fine...
  2. Where did you hear that young adults with (untreated) celiac disease die within a year?! While it's possible that some people who are untreated could die if they continue eating gluten, the likelihood is still relatively low. In general, if someone with celiac disease goes 100% gluten-free, especially when they are younger, they can expect to have a...
  3. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  4. Taylor Farms Pacific, a Tracy, Calif. establishment, is recalling approximately 19,976 pounds of ready-to-eat (RTE) apple walnut with chicken salad bowl products due to misbranding and undeclared wheat allergen, the U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) announced today. The product may contain wheat, a known allergen, ...
  5. I'm sorry to hear about the challenges you've been facing with celiac disease, but it's great to hear that you've experienced some improvements and are taking proactive steps to manage your health. Fingernail issues can sometimes indicate deficiencies in certain nutrients, despite taking supplements. Since you're already on a regimen that includes vitamins...
  6. Welcome to the forum! If he is getting gluten in his diet, and the evidence points that way, it seems like the most likely place would be at his day care program, but you did not mention whether or not your household is gluten-free. If there is regular gluten foods in your home, it's possible he could be sneaking some from time to time. When he's at...
  7. It's difficult to say how long it took for you to reach this stage of damage, probably years, but now it's time to focus on recovery. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment...
  8. If you know that gluten causes your symptoms, then there is no need to be retested unless you need a formal diagnosis for some reason. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  9. I just did a very thorough clean on all of my cooking equipment, dishes, utensils, etc., but everyone has different sensitivity levels. I live in a mixed house gluten vs. gluten-free, but we've managed to keep things safe for us who are gluten-free.
  10. The number of genes associated with celiac disease is more than two, but there are two main genes that are commonly tested for celiac disease susceptibility. These genes are HLA-DQ2 and HLA-DQ8. HLA-DQ2: The majority of individuals with celiac disease (about 90-95%) carry the HLA-DQ2 gene. HLA-DQ8: Around 5-10% of individuals with celiac...
  11. It's understandable that you're concerned about gluten contamination, especially after being diagnosed with celiac disease. While high temperatures can help break down some proteins, including gluten, it's important to note that it may not completely eliminate the risk of cross-contamination, particularly on porous surfaces like grills or slow cookers. For...
  12. Determining the appropriate daily calorie intake for an individual requires considering various factors beyond age, gender, height, and weight, such as activity level, metabolic rate, and overall health. However, as a rough estimate, the average daily calorie requirement for a sedentary 22-year-old male who is 168 cm tall and weighs less than 50 kg could...
  13. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  14. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  15. It would probably make sense to start out with your doctor's recommendation, and be sure any meds and supplements you take are gluten-free, and the get a follow up test for your iron level in a few months. Most people can still absorb iron if they take a supplement, but it is possible you could require an infusion if your levels don't increase over that time...
  16. Congratulations! Symptoms can vary quite a bit from person to person, and most people report the opposite--diarrhea when eating gluten which usually goes away after a while on a gluten-free diet, but constipation is also a fairly common symptom that our members report.
  17. Prilosec and PPI's in general are some of the most overprescribed drugs ever, and it has become clear that prolonged use can have very negative side effects caused by decreased nutrient absorption--the exact thing that celiac disease causes when it destroys your villi. They certainly should not be prescribed for DH alone.
  18. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score. Many biopsy...
  19. The only way to actually eliminate celiac disease as a possibility would be to get a blood panel done for celiac disease. This article might be helpful, but even if you don't have celiac disease, approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away o...
  20. Yet another interesting vitamin D study: Vitamin D Not Tied to Clinical, Histologic Features of EoE https://www.medscape.com/viewarticle/vitamin-d-not-tied-clinical-histologic-features-eoe-2024a10004hr
  21. You could put her on a gluten-free diet, and then for at least 2 weeks before her endoscopy put her back on a heavy gluten diet, but be sure to discuss this with her doctor. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat...
  22. Although it seems unlikely, if you are supersensitive it may be possible. Consider wearing a covid-type mask when you are doing this job, just to eliminate it as the issue. Also, do you eat outside your home? Eating at restaurants is a common source of gluten contamination.
  23. It is possible that the meals you ate were cross-contaminated, and since you were on vacation perhaps you also ate at more restaurants than usual, which is also the most common source of gluten cross-contamination. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section...
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