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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Joint Pain / Bone Inflammation
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8 posts in this topic

I have been eating gluten free for 8 days to try to figure out if being gluten free could help with the joint pain and bone inflammation I have in the front and back of my pelvis.  My PCP told me that a diet change would not help and that I should just go to a doctor she has recommended and get cortisone injections.....which I will do anything to avoid.

 

My brother is gluten intolerant (never did medical testing) and gets acid reflux and SEVERE joint pain all over if he eats any bit of gluten.  He has always told me to try going gluten free to see if it helps me with my acid reflux and migraine headaches but I never took his advice until now.  I also just started taking anti-anxiety medication at the beginning of this year and read that anxiety could be a symptom of gluten intolerance.

 

Here's my questions:

     1)  How long should I wait until I stop taking my acid reflux medication as a test to see if the gluten free diet has elimated the acid reflux?  Normally if I miss one dose I notice it so it wouldn't take more than a day or two to find out.....I just wasn't sure how long the gluten will be hanging around in my body.

 

     2)  Can gluten intolerance cause actual bone inflammation or hardening of the joints?  These are the things that are showing up on my most recent x-ray.

 

Thanks,

    Wendy

 

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hi,

 

i can only answer one of your questions- about acid reflux. this was the only thing the docs found when i had my celiac tests. theres nothing wrong but reflux- heres 2 prescriptions for it. i just thought im not getting into taking medicines for this and that!!! - i went gluten and dairy free the next day (with a few mistakes). ive only had one problem with reflux since,when i ate strawberry smoothie.

 

everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

 

gluten can cause joint pain- its one of my symptoms. sometimes you find you have to give up somthing else as well- in my case it was dairy, and nightshade vegetables(potatoes,tomatoes,peppers and aubergines) and my newest one soya!

 

hope you have some success in sorting out your problems, welcome to the forum. im sure others will have more answers for you.

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If you don't get results I would do a full elimination diet with a strict food journal. Going gluten free isn't enough for me to keep my joint pain/arthritis at bay. I have many more intolerances to deal with but I am slowly introducing more and more into my diet (over time) and it is going very well. It all depends on how much damage you have going on (I'm guessing).  Fresh tomatoes are the worst offender for my joints.

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everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

I've been taking omeprazole for more years than I can remember.  If I don't take my daily dose I will have heartburn or acid reflux during that 24 hour period.  So my theory is that if I stop taking it once the gluten is out of my system that I should know pretty quickly if the diet change has helped....but I'm definetely not an expert!

 

I also think that the food log is a great idea that I'm going to try.  If I can get off of my prescription medications just from changing my diet I'm all for it.

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The gluten goes out of your system pretty much right away; it's the autoantibodies your body has made to fight it that take a little longer to clear.  Even so, as jhol says, the only way to know is to try it. ;)

 

I had arthritic bony protrusions on my fingers when I first quit eating gluten.  My joints have remodeled over the years since, and no more little knobby bits now :D  and they move freely.  Still a little bit chubby though :rolleyes:  along with my toes.

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I am newly gluten free (first of 2013) and found out by doing the JJVirgin elimination diet.  (the perils of watching PBS during the holidays... found her there) I have been on Celebrex for 4 years for arthitis in my hands and hips.  It was to the point that I was limping and was impacting my activities.  Guess what?  Now that I'm gluten free, I stopped taking the Celebrex and I'm absolutely fine!  If I get "glutened" my joints get a bit achy....

 

Hope that helps...

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The gastroenterologist I saw last week said there is no link between Celiac and fibromyalgia  (joint pain, body pain etc)

 

I don' t agree with him.

Sigh... why did I waste my time seeing that doctor.

 

Sassbo, that is encouraging. I believe it's all food related.

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Hi stormy wren, I'm afraid I don't know enough to help with your questions, but just wanted to say that long term use of acid reflux medication can interfere with vit B12 absorbtion, which can lead to a deficiency. You might want to check that out.

Jo

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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