Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iv Nutrient Therapy

bluedove

Recommended Posts

bluedove Newbie
bluedove
Posted

Despite eliminating gluten, dairy and legumes I have been coping with fatigue and mood issues. I am working with my family doctor but recently began seeing a naturpathic doctor who has placed me on IV nutrient therapy and a further 3 week hypoallergenic diet to search for other food intolerances.

1) has anyone tried IV nutrient therapy (Myers cocktail) and was it successful?

2) how often do people get sick throughout the year? Do I have to become ocd and turn into a major pita to avoid cross contamination

3) any ideas on how to treat CC muscle pain\neuropathy when CC happen? Missing 2 days of work each time is causing problems with my employer. I thought I was doing well this year :(

Allergic rhinitis and chronic sinus 2010 (no longer an issue since gluten-free and DF)

celiac disease & lactose intolerance- 2011

No legumes- 2013

*Supplementing daily with D,C,zinc, complex B, calcium citrate, L-glutamine powder, and will be adding flax oil, hmf powder probiotic, phytosine, and have weekly IV therapy for another 4 weeks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I'm assuming your real doctor re- tested your Celiac antibodies and they have gone back to normal? He has tested your thyroid? He has blood tested to see what things you are lacking - like vit D, iron, ferritin, B12, etc?

bluedove Newbie
bluedove
Posted
  • Author

Thank you for your reply. Thyroid screen appears normal. Ferritin was at 29 in December- am taking an iron supplement as well. My skin arms, legs and scalp are often itchy but I don't have any sores or DH that I can see.

bluedove Newbie
bluedove
Posted
  • Author

Whoops- and yes, the antibodies have returned to within normal ranges

kareng Grand Master
kareng
Posted

Not sure why you would have an IV if something if your levels are all good?

1desperateladysaved Proficient
1desperateladysaved
Posted

It sounds like you can't afford to have problems with cross contamination.  Preventing problems is the very best way to solve it.  Eat foods you prepare away from contamination worries.  Once you are ill you kind of have to wait it out.  Some people say that extra fluids helps once you are glutened..

 

I actually can't remember the last time I was ill.  Oh, yeah it was about a year ago.  I have had troubles with gluten, is that what you mean?  Mostly, I need to function straight through anything like that.  Brain fog and fatigue pretty much aren't an excused absence in my line of work.  Motherhood.

  • 1 year later...
CaliSparrow Collaborator
CaliSparrow
Posted

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Why would asking valid questions be "running off" the OP?

squirmingitch Veteran
squirmingitch
Posted

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F

How do you know the op was "run off"? Plenty of times people ask questions & then just disappear - it doesn't necessarily mean they were run off.

notme Experienced
notme
Posted

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F

ohhhhhhhhhhhh kaayyyyyyyyyyyyyyyyy.......................???  i don't see your point, but, wow, thanks for letting us know nearly a year later.   ;) 

ravenwoodglass Mentor
ravenwoodglass
Posted

If that was true then the thing to do would have been to contact Scott. At the time. I don't see what your purpose is posting that a year later. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    4. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    5. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.