Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constant D And Desperate

ndw3363

Recommended Posts

ndw3363 Contributor
ndw3363
Posted

I have been gluten-free for over 2 years - I rarely eat out and keep a completely gluten-free house.  I haven't changed my diet or my personal products at all.  But over the past two weeks, anything I eat goes straight through me.  I'm getting concerned (as well as extremely annoyed) and it's completely taken the joy out of eating anything at all.  I cut out dairy two days ago thinking maybe that was it, but nope...still having problems.  My candida symptoms have flared up a bit lately (found more than one good occasion for a glass of wine), so it's possible that that has something to do with it...but I wanted to check with all of you since I always get the best advice from here.  I just don't know what to cut - I am already soy free, mostly dairy free now, and gluten-free.  Supplements haven't changed either.  Diet consists of chicken, pork, very occasional red meat, fish, and veggies (broccoli, snow peas, spinach, green beans, garlic).  Today for lunch had homemade chicken salad w/ a few bean chips n' salsa (all things that I've eaten before with zero problems).  I'm at a loss and it's making me crazy - haven't noticed any significant weight drop yet, but I know that's the next thing to happen if this keeps up (and I do NOT have the weight to drop) - it's effecting my energy levels at the gym as well as my recovery time which is beyond frustrating.  Any help would be greatly appreciated!  SIBO, other intolerance, parasite...????? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Maybe you had a virus or food poisoning? I find its difficult to recover from those, sometimes.

Are you taking a probiotic? That helps me tremendously.

ndw3363 Contributor
ndw3363
Posted
  • Author

Yes, taking the same probiotic daily (PB8, gluten-free, dairy free, soy free).  I was using a Whey protein powder (gluten-free of course) for awhile and I thought that was the culprit.  But haven't had it for two days now, and still have to run to the bathroom approx 1 hour after eating anything.  Aside from that symptom and being more tired than usual, I really feel fine.  My anxiety is on high alert lately though and I do know I have a bit more stress going on (i.e. where does my money go, my ins is changing, the guy I thought was "different" turned into a typical  you know what), but I don't necessarily feel overwhelmed or anything.

pricklypear1971 Community Regular
pricklypear1971
Posted

I had a virus and it took a month for the exact thing to stop. I got pretty anxious about the possibility of some sort of relapse or new intolerance. And uhm, geez, the other stuff you have going on is enough to send one over the edge.

For me, anxiety did play a factor but most of all I had to be patient and eat really bland foods and take probiotics and digestive enzymes. I think the enzymes helped decrease the job my gi tract had to do...which helped.

All I know to offer is a food diary or elimination diet, otherwise. I'd hate for you to start eliminating foods if that's not what it is, though. It's a tough call.

And double check everything you've purchased - beauty products, the same brands of food (they do change things), etc. you never know. I've been shocked before.

Gemini Experienced
Gemini
Posted

I have been gluten-free for over 2 years - I rarely eat out and keep a completely gluten-free house.  I haven't changed my diet or my personal products at all.  But over the past two weeks, anything I eat goes straight through me.  I'm getting concerned (as well as extremely annoyed) and it's completely taken the joy out of eating anything at all.  I cut out dairy two days ago thinking maybe that was it, but nope...still having problems.  My candida symptoms have flared up a bit lately (found more than one good occasion for a glass of wine), so it's possible that that has something to do with it...but I wanted to check with all of you since I always get the best advice from here.  I just don't know what to cut - I am already soy free, mostly dairy free now, and gluten-free.  Supplements haven't changed either.  Diet consists of chicken, pork, very occasional red meat, fish, and veggies (broccoli, snow peas, spinach, green beans, garlic).  Today for lunch had homemade chicken salad w/ a few bean chips n' salsa (all things that I've eaten before with zero problems).  I'm at a loss and it's making me crazy - haven't noticed any significant weight drop yet, but I know that's the next thing to happen if this keeps up (and I do NOT have the weight to drop) - it's effecting my energy levels at the gym as well as my recovery time which is beyond frustrating.  Any help would be greatly appreciated!  SIBO, other intolerance, parasite...????? 

I hate to say it but I think if this has been going on for 2 weeks, you need to go to the doctor.  It could be many things but you have covered your bases as far as cc is concerned and you keep a gluten-free house. It may have nothing to do with your diet but could be SIBO or any number of things.  I will say it will take longer than 2 days of no dairy to see if it is a problem with dairy. 

I am so sorry you are having this problem.  Been there, done that and it is not easy.  I hope you can figure it out soon but don't wait too long......I am thin also and that can be problematic, as you know.  Good luck!

Juliebove Rising Star
Juliebove
Posted

Good luck with that!  Story of my life!  Finally figured out that eggs and dairy do that to me. Eggs waaay more so.  I am also intolerant to chicken and some herbs and spices.  And now daughter has had this problem several times.  They keep telling me that it is a virus.  Really?  Again and again?  We have also noticed that it is tied to her monthly cycle.  As soon as her period starts, so does big D!  And I used to get that too but...  For me it was one bout of it.  For her?  It's at least a full week.

dilettantesteph Collaborator
dilettantesteph
Posted

I hope that you have had some results by now and are doing better.  Was it something other than what you are eating?  Sometimes I have problems with things that I consume without changing anything.  Sometimes they have changed something.  I can find out by eliminating things one by one.  Either that or I go down to a just a few totally safe things until I get better and then add things back one by one.  Are you doing any better?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ndw3363 Contributor
ndw3363
Posted
  • Author

No, so far same ol same ol.  Actually not looking forward to eating lunch at all today - why bother right?  Going to attempt to go very bland this weekend and see what happens.  If this keeps up much longer, I will have to make a dr. appt - which I absolutely HATE to do, because all I'm going to hear is, oh I don't know - you want an antibiotic?  Anti-depressant?  Acid reducer?  Those seem to be the only three things any of my doctors could think to do in any given situation.  Oh, you have an itchy rash?  Here take Prozac - wtf??  Sorry, as you can see, I'm in a bit of a mood this morning.  But it's Friday so hopefully I can turn my mood around!  Thanks everybody!

Gemini Experienced
Gemini
Posted

No, so far same ol same ol.  Actually not looking forward to eating lunch at all today - why bother right?  Going to attempt to go very bland this weekend and see what happens.  If this keeps up much longer, I will have to make a dr. appt - which I absolutely HATE to do, because all I'm going to hear is, oh I don't know - you want an antibiotic?  Anti-depressant?  Acid reducer?  Those seem to be the only three things any of my doctors could think to do in any given situation.  Oh, you have an itchy rash?  Here take Prozac - wtf??  Sorry, as you can see, I'm in a bit of a mood this morning.  But it's Friday so hopefully I can turn my mood around!  Thanks everybody!

We completely understand!  You have not lost your sense of humor about doctors so that is a good sign.  I hope you feel better over the week-end! 

Juliebove Rising Star
Juliebove
Posted

When my D gets really bad I eat nothing but plain white rice.  If I tolerate that, then I might add unsweetened applesauce.  Then I might do a plain baked potato or instant ones made with water and Nucoa with plenty of salt and pepper.

Brandiwine Contributor
Brandiwine
Posted

I did this when u had really bad damage before I found out what I was doing to myself. Did you get glutened around the time it started? Eat out? Could be another food allergy that you've developed. Elimination diet seems to be the best fit here.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.