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The Fireworks Are Still Flying

1desperateladysaved

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1desperateladysaved Proficient
1desperateladysaved
Posted

onedesperatelady may need a new name.  Getting giddy usually  happens right before my next dive.  Dive after dive has come to me since I began my hardest battle with mostly untreated celiac 6 years ago.  By battling I mean spending much effort to help my body work right, my plight with celiac began at least three decades ago.  Before it ended,  I even stopped eating all sweets and chocolate!  That's very un-American.

 

This time, I have cause to rejoice.  I feel better.  I jumped out of bed this morning with no alarm and before 6 am, because I wanted to get up!  My bedtime, throughout the battle has been 10 pm, but lately I experienced nights in which I wasn't tired yet.  In recent days, I spent hours in the garden and then began to ponder what to do with the rest of my day.  In past years I would drop on the couch with devastated energy.

 

Recently, my husband told me that things have been going better the last 9 months.  He perceives that I do have a problem with gluten, and it is getting healed up.

 

A few weeks back I did my second nutrient level tests.  Just yesterday, I heard the results.  My vitamin B levels, which had been low last November, sky rocketed.  Well, they were a little high.  My iron levels had recovered after a dip a couple of months back.  Other nutrient levels had come up to normal, except folatin and vitamin D.  This is the very first objective proof of my recovery since going gluten free, and I am very excited.

 

I would insert fireworks here, but I don't know hot to do it **.  Well, that is the best I can do.

 

I hope for all of you that you will have a day like this in which, you feel as if you conquered, and go on living an energetic life.  Have some flowers *** and get well!

 

D

 

 

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ravenwoodglass Mentor
ravenwoodglass
Posted

:)  :)  :)  

 

Since I don't know how to do fireworks either I thought I would 'blow up' smiley faces. (Well I tried to anyway but I guess there are only so many the board will allow us to post. <_< )

That's great news and thanks for posting it.

News like yours gives newbies hope.

Adalaide Mentor
Adalaide
Posted

4thFireworks04.gif

 

Always nice to remind those starting out that although the road can be long and difficult and at times seem impossible if they read some of these other threads, there is hope and healing.

seraphim Contributor
seraphim
Posted

You give me a shred of hope.

GottaSki Mentor
GottaSki
Posted

This is fantastic news!

Thanks for sharing...ill light a sparkler for you here...yep...I stashed a few away to spread the fun out over this weekend :)

frieze Community Regular
frieze
Posted

Open Original Shared Link

click   few differe t.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

Thanks how festive!

 

D

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notme Experienced
notme
Posted

so glad you are feeling better :)  it's awesome to feel awesome!  (it just takes a while, sometimes)  congratulations!   :D

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    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Need advice for some relief!

      By suek54 · Posted

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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