Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Fireworks Are Still Flying


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

onedesperatelady may need a new name.  Getting giddy usually  happens right before my next dive.  Dive after dive has come to me since I began my hardest battle with mostly untreated celiac 6 years ago.  By battling I mean spending much effort to help my body work right, my plight with celiac began at least three decades ago.  Before it ended,  I even stopped eating all sweets and chocolate!  That's very un-American.

 

This time, I have cause to rejoice.  I feel better.  I jumped out of bed this morning with no alarm and before 6 am, because I wanted to get up!  My bedtime, throughout the battle has been 10 pm, but lately I experienced nights in which I wasn't tired yet.  In recent days, I spent hours in the garden and then began to ponder what to do with the rest of my day.  In past years I would drop on the couch with devastated energy.

 

Recently, my husband told me that things have been going better the last 9 months.  He perceives that I do have a problem with gluten, and it is getting healed up.

 

A few weeks back I did my second nutrient level tests.  Just yesterday, I heard the results.  My vitamin B levels, which had been low last November, sky rocketed.  Well, they were a little high.  My iron levels had recovered after a dip a couple of months back.  Other nutrient levels had come up to normal, except folatin and vitamin D.  This is the very first objective proof of my recovery since going gluten free, and I am very excited.

 

I would insert fireworks here, but I don't know hot to do it **.  Well, that is the best I can do.

 

I hope for all of you that you will have a day like this in which, you feel as if you conquered, and go on living an energetic life.  Have some flowers *** and get well!

 

D

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

:)  :)  :)  

 

Since I don't know how to do fireworks either I thought I would 'blow up' smiley faces. (Well I tried to anyway but I guess there are only so many the board will allow us to post. <_< )

That's great news and thanks for posting it.

News like yours gives newbies hope.

Adalaide Mentor

4thFireworks04.gif

 

Always nice to remind those starting out that although the road can be long and difficult and at times seem impossible if they read some of these other threads, there is hope and healing.

seraphim Contributor

You give me a shred of hope.

GottaSki Mentor

This is fantastic news!

Thanks for sharing...ill light a sparkler for you here...yep...I stashed a few away to spread the fun out over this weekend :)

frieze Community Regular

Open Original Shared Link

click   few differe t.

1desperateladysaved Proficient

Thanks how festive!

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

so glad you are feeling better :)  it's awesome to feel awesome!  (it just takes a while, sometimes)  congratulations!   :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

    2. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,371
    • Most Online (within 30 mins)
      7,748

    Susan Blodgett
    Newest Member
    Susan Blodgett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.