Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hip Pain At 23..help


Laurenskii

Recommended Posts

Laurenskii Newbie

My hips hurt terribly...I got glutened about 3 days ago and it has gotten significantly worse.

I'm way too young to be feeling like this. Hours after a hike it's AWFUL. Aching nagging pain.

Does anyone have this problem? Is there something else I can be doing to help besides making sure to not gluten myself?

I don't know if this will be overly relevant but I'm also dairy free. However, I feel like I'm getting enough calcium through almond/soy milks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Nightshade vegetables (potatoes, tomatoes, peppers and eggplant) are known to cause joint pain in some people. I was having a problem with arthritic-type pain in my fingers and back, and when I stopped eating nightshades it went away. They are cumulative, which means if you give them up for a while to clear your system of them and then eat them just once in a while, you should be OK. Of course, after a glutening, just about anything can cause problems. Maybe go off nightshades until you are over the glutening (give it a couple of weeks), and then try eating them again?

Adalaide Mentor

I know this may sound terribly insensitive, but I can't think of anyone I know who would go on a hike 3 days after they were glutened. It's like signing up for extra punishment. What a body needs after that is time to heal, and while you may not have been feeling particularly awful you did something that was very physically demanding when your body was trying cope with the assault that had just happened. It probably wasn't a hike, but this is something a lot of us have done and we all learned our lesson. Take it easy, let your body heal and make sure there has been ample recovery time before doing anything ambitious. Anything underlying will be amplified beyond comprehension after a glutening.

 

There are probably dozens of possible causes for the pain. I get pain in some of my joints from osteoarthritis. Honestly, nothing helps with this. A significant amount of my pain was caused by my histamine problem, and I've been able to manage it through diet. Much like the nightshade thing, it's a sort of cumulative thing and I just have to make sure that my cup not runneth over. Since you're also newly diagnosed and gluten free, it could simply be that you haven't had enough time to start feeling better and with time your hips will be less painful or not painful at all. A trip to the doctor (if s/he isn't a moron) wouldn't hurt just to make sure it isn't anything serious, but from there maybe just see if time helps if you aren't all gung-ho about trying out restricting your diet further.

cyclinglady Grand Master

All good advice!  Maybe you should get a bone scan.  Folks with celiac disease, even if they are kids, can have osteopenia or osteoporosis.  Your doctor may want you to add in more calicium in the form of supplements until you are properly absorbing vitamins and minerals, etc. 

mamafish Newbie

Have you had your thyroid antibodies checked?  Joint pain can be a symptom of Hashimoto's for some, and it often co-occurs with celiac.  (Also, for some people with thyroid issues, soy can aggravate things).

  • 1 month later...
Vicky-1989 Rookie

I'm 24 and have had problems with my hips for a couple of years now. It's like a deep ache/burning sensation that radiates down my leg - my doctor recently diagnosed me with hip bursitis, yours sounds similar!

pricklypear1971 Community Regular

I'm one that feels better after a glutening if I exercise. It's like it burns it out or something.

Anyway, sometimes gkuten can cause muscle cramps and hip flexors can cramp up. After I was gluten-free a while, and started working out, my hip pain went away. I think because I was moving and stretching.

You may also have soft tissue issues thanks to autoimmunity - so you may be prone to overdoing. In which case, rest and caution.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

    2. - Scott Adams replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fruits & Veggies

    3. - Scott Adams replied to yellowstone's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Cold/flu or gluten poisoning?

    4. - Scott Adams replied to hjayne19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Screening

    5. - Scott Adams replied to Jmartes71's topic in Related Issues & Disorders
      2

      New issue

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,090
    • Most Online (within 30 mins)
      7,748

    LVanderbeck12
    Newest Member
    LVanderbeck12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
    • Scott Adams
      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a hypersensitive system. This ambiguity is a significant source of anxiety. The key differentiator often lies in the symptom pattern and accompanying signs: gluten reactions frequently include distinct digestive upset (bloating, diarrhea), neurological symptoms like "brain fog," or a specific rash (dermatitis herpetiformis), and they persist without the respiratory symptoms (runny nose, sore throat) typical of a cold. Tracking your symptoms meticulously after any exposure and during illnesses can help identify your personal patterns. Ultimately, your experience underscores the reality that for a sensitive body, any immune stressor—be it gluten or a virus—can trigger a severe and similar inflammatory cascade, making vigilant management of your diet all the more critical. Have you had a blood panel done for celiac disease? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Your situation highlights a difficult but critical crossroads in celiac diagnosis. While your positive blood test (a high TTG-IgA of 66.6) and dramatic improvement on a gluten-free diet strongly point to celiac disease, the gastroenterologist is following the formal protocol which requires an endoscopy/biopsy for official confirmation. This confirmation is important for your lifelong medical record, can rule out other issues, and is often needed for family screening eligibility. The conflicting advice from your doctors creates understandable anxiety. The challenge, of course, is the "gluten challenge"—reintroducing gluten for 4-6 weeks to make the biopsy accurate. Since your symptoms resolved, this will likely make you feel unwell again. You must weigh the short-term hardship against the long-term certainty of a concrete diagnosis. A key discussion to have with your GI doctor is whether, given your clear serology and clinical response, would be getting a diagnosis without the biopsy.
    • Scott Adams
      Your experience of being medically dismissed for decades, despite a clear celiac diagnosis since 1994, is unacceptable. It is a tragic common thread in our community that the systemic failure to understand celiac disease leads to a cascade of other diagnoses—like SIBO, IBS, depression, and now the investigation of MS or meningioma—while the core autoimmune condition is neglected. The constant, severe flu-like symptoms and new neurological concerns are absolutely valid and warrant serious investigation for connections to celiac-related autoimmunity or complications like refractory disease. It is enraging that you must fight so hard to be heard. While I don't have a medical answer about MS or meningioma links, your instinct is correct: relentless symptoms require a specialist who understands celiac disease beyond the gut. Regarding the California proclamation, it is a symbolic advocacy effort; reaching out to the women mentioned may provide supportive community, but your advocacy with your local representative is the most direct action. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.