Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gained Over 60Lbs And Cant Loose It.

Cindy Anderson

By Cindy Anderson
in Related Issues & Disorders

Recommended Posts

Cindy Anderson Newbie
Cindy Anderson
Posted

I was diagnosed 7 months ago at the age of 40 and I have gained 60 lbs. Little more complicated. I also was diagnosed with anorexia because I did not like food this is how they found out that I was celiac. I am eating more. Very diligent on the no gluten. Working on gluten in bandaids and make up and such now. But I am so frustrated and depressed about the weight. I have been added on iron for low iron, I have been put on a multi due to low nutrients, I have been put on vit d 5000 a day, I have been put on fiber and a stool softener because I am constipated all day. They have checked me for my thyroid it is just fine. They are now also checking my heart because I have developed an arrhythmia and either have signs of just had a small heart attach or on the verge of one. How long does it take a body to heal before I can start leveling off on the weight and feeling better. ANy thoughts. Oh I just had double food surgery in Feb. so the exercise has been a slow process but I move more than I did when I did not have the foot surgery.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gary'sgirl Explorer
gary'sgirl
Posted

Hey there Cindy, :)

 

I really think that with the weight issue it's just depends on the person and what all is going on inside the body. I have gained a lot of weight and it has all been mostly over the last two years when I have barely been able to eat. Just to try to understand what my body was doing, I weighed myself several times when I was so sick that all I could tolerate was broth to eat, and on two separate occasions of only eating (well, I guess it's actually drinking :) ) broth I gained 7 to 10 pounds. Now if that doesn't prove that it's not all about caloric intake then I don't know what does! :blink:

 

My doctor told me that when your body is so damaged and trying to heal itself in an effort to protect your cells it will surround each cell with fluid, and that can make you "gain" weight really fast, but it's not true weight in the same way that, say, gaining "fat" is.

I don't completely understand it, but my sister who has had some really bad health problems had this happen to her and she gained a lot of weight, but over the past couple of years she slowly has been getting better, and she is smaller that she has ever been. I think when she really gets well completely she probably should gain a little bit back. 

 

All that to say, just don't give up, and don't let the weight gain get you down if you can help it. :) I try to look at it as just a part of this process to my body healing and I try, though hard at times, to not put any time constraint on myself. I don't know if that helps you at all, but I hope you can find some encouragement in it. :) But if not know that your not the only one. ;)

 

Hang in there and don't lose hope!

cyclinglady Grand Master
cyclinglady
Posted

As long as your are eating healthy and not getting even a tiny bit of gluten into your diet, your body weight should eventually level off.  Now, you should not be consuming more (or even less) that the recommended calorie amounts for your height and age (google for calorie count for you).  

 

You didn't mention how damaged your intestines were.  If you were a Marsh Stage III or IV, that can explain the constipation issues (no villi to push that food through!)  It takes time to heal villi!

 

Think about gentle swimming or water aerobics for exercise, provided your doctor approves it (e.g. current heart issues).  

 

It took you years to get sick and it will take a few years to get better.  Please be patient and embrace the new healthier you!  

  • 2 months later...
disham Newbie
disham
Posted

I have been diagnosed with Celiac for a little over a year now, and I also have gained more weight being on a Gluten Free diet. It's EXTREAMLY FUSTRATING. I have always been over weight due to a Thyroid issue but with meds I have been able to keep it somewhat under control and have stayed healthy other then the weight issue. Now I feel like its a bigger battle and I hate it so much. This weight gain is really scaring me.

 

If you too, have experienced weight gain what have you done with the diet to help it? Could really use some insight.

 

Dawna

w8in4dave Community Regular
w8in4dave
Posted

Try eating a more natural diet like eating Fresh veggies and Meat instead of a bunch of gluten-free pre packaged foods. Alot of gluten-free pre packaged foods have alot of corn in it. If we eat to much of it. Guess what it does? It makes us gain weight. Since I have been corn intolerant it makes it so much easier to eat. Fresh fresh fresh! :) Just a suggestion.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.