Posted 11 August 2014 - 06:22 AM
I read Irish's responses differently. As arguably one of the most sensitive individuals on this forum - have become what we joked about for years "BubbleGirl"....
For over four years I have understood that many of the items I thought I was getting gluten from cc or other sources in actuality I was reacting to something else. Were these reactions triggered by celiac? In a way, my digestive system was destroyed from decades of undiagnosed celiac disease with mast cell disorder.
Every person with Celiac Disease needs to avoid all gluten as ingesting it does start the autoimmune cascade. I would argue that this cascade is different in each individual because we are each unique.
For me I much prefer language that unites us as those with Celiac Disease....there is enough trendy nonsense out there causing us problems.
Like it or not....many newly diagnosed or folks just starting to learn the facts about celiac disease are not celiac.com forum savvy enough to understand when someone is speaking as a "super-sensitive" which is why many of us try to keep these threads understandable for folks new to all things gluten-free.
At any given time there are between 400 and 1000 guests viewing the information in these posts. Now think about how many folks become active here. I have seen mainstream media quote posts on this forum. These are just a few of the many reasons I always answer folks from the facts known of celiac disease today and then from my own personal autoimmune puzzle.
I am no longer a moderator, but would call this thread done if I were.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/25/13 - MCAD
Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile
My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free
Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS
Get PROPERLY tested BEFORE REMOVING GLUTEN.
ALWAYS independently research health related information found on internet forums/blogs.
"LTES" a Gem