Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Central Pa

DavidB

By DavidB
in Introduce Yourself / Share Stuff

Recommended Posts

DavidB Apprentice
DavidB
Posted

Hi!

Newbie here wondering if anyone is from Central PA? looking for a support group, stores, anything else you can share! I am in Annville PA very close to Hershey and Harrisburg PA

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Hi David-Welcome to the board!

I don't live in PA anymore, but I went to high school and PSU. My parents still live in Mechanicsburg and I'm home often. I was diagnosed after I moved away, but my mom has gone to numerous events, etc., in the area. Apparently the Harrisburg support group is great---she met the president of the group and thought she was wonderful. Also, if I remember correctly, once a month, there is a meeting at Hershey Med Center for new Celiacs. There is a new Giant grocery store that opened recently (over in Camp Hill, I think) and they apparently carry a lot of gluten free products. They did a gluten-free cooking class there over a three week period that my mom went to. Someone who works there (nutritionist? not sure) has family members who are Celiac so she was very informed about it.

Also-Outback Steakhouse has a gluten free menu (lists which items are safe). You can find it on their website, or request it when you go in. :D

Some of the health food stores in the area (and Giant) carry Tinkyada brand pastas---they are the hands down BEST!

blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi David

I am from Harrisburg and I am not sure how far you travel through the area but there is a store in Linglestown that carries great bakery items, they are frozen but they taste great. they are made in NEPA by a husband who is a chef of 17 years and a wife who has celiac. The store in Linglestown is called Water to Go, and it is on Linglestown Rd. The baked items are by The Grainless Baker.

www.grainlessbaker.com

Also if you PM me I can give you some more info.

It's a hard adjustment at first but once you started feeling better it is all worth it.

yep...the hospital does have a support group..I am such a bad employee I forget that they offer things like that here. I am just more excited to go home at the end of the day :). The Camp Hill giant has alot of stuff. Sometime in the next year or so there is a Wegmans coming to Silver Springs and they carry a huge section of gluten-free food. I shop in their Scranton store and every time I get there always new products.

DavidB Apprentice
DavidB
Posted
  • Author

Thanks !!!

ryebaby0 Enthusiast
ryebaby0
Posted

There's also a gluten-free bakery in McVeytown, which is kinda far from you (north of Harrisburg, between Hbg and State College) but does do mailorder. You can find it on the web, the name is Gluten Free 4 Me...And if you ever happen to be in Pittsburgh, there are two Whole Foods there, plus in the metro PHilly area are many many Wegman's...

Joanna

gabrielle Contributor
gabrielle
Posted

Hiya!

I live in Ephrata- Lancaster County. The support groups that I know of are in Reading, PA at the Reading Hospital- and that would be way out of your way :(

BUT... I wanted to tell you about The Grainless Baker. They are in PA and they can ship their goods to you. They are absolutely wonderful- their bread crumbs taste like "normal" bread crumbs! Here's their web-site:Open Original Shared Link

You can search the site and see if their products are in a store near you! Good luck~ Gabby

OOps, I should have read all of the posts before i posted... sorry to be redundant.

  • 1 month later...
Guhlia Rising Star
Guhlia
Posted

I'm from Lititz, PA (Lancaster area). I can't believe there are people so close to me with celiac! I mean, I can, I've just never met anyone that had celiac other than myself. Do either of you from the Lebanon/Lancaster area have a list of local restaurants that are safe? We do Outback and Carabbas in Lancaster, but I'm definitely itching to expand my horizons.

There's a support group at one of the Lancaster hospitals, but I can't remember which one. I guess that's probably a little out of your way too. I'm sure some of the Lebanon/Hershey hospitals have support group meetings as well. I'll let you know if I here anything since I'm only about 10 minutes from Anville.

Do you ever go to Linda's Speedway in Lebanon or LANCO Speedway in Schaefferstown???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I'm from Lititz, PA (Lancaster area). I can't believe there are people so close to me with celiac! I mean, I can, I've just never met anyone that had celiac other than myself. Do either of you from the Lebanon/Lancaster area have a list of local restaurants that are safe? We do Outback and Carabbas in Lancaster, but I'm definitely itching to expand my horizons.

There's a support group at one of the Lancaster hospitals, but I can't remember which one. I guess that's probably a little out of your way too. I'm sure some of the Lebanon/Hershey hospitals have support group meetings as well. I'll let you know if I here anything since I'm only about 10 minutes from Anville.

Do you ever go to Linda's Speedway in Lebanon or LANCO Speedway in Schaefferstown???

Guhila--My husband and I love to drive to the Lancaster area to shop and take in the beautiful countryside--Lititz is one of our favorites, though! What a lovely town you live in--all of the stone houses and little shops.

Guhlia Rising Star
Guhlia
Posted

David, I forgot to mention Stauffer's of Kissel Hill in Lititz when I posted before. They have an aisle of gluten free food. It's celiac heaven! Oregon Dairy in Lititz also has a gluten free section. I think there are probably other mainstream grocery stores too that carry stuff. I know Giant is starting to carry some stuff (and I believe they'll order things for you if you speak to the manager). Stauffers will definitely order things for you if you have specific needs/wants.

Jerseyangel, I grew up in Lititz and we absolutely love it here. We moved back a few years ago and I'm so glad we did. On one of your ventures, you should check out Stauffers for munch food for the car ride home. They have tons of Glutano treats as well as lots of other stuff. They even started carrying the Wellshire kids chicken nuggets! :) Yum!

jerseyangel Proficient
jerseyangel
Posted

Guhlia--Thanks for the tips--I'm going to make a note of the places you suggested :)

Guhlia Rising Star
Guhlia
Posted

Jerseyangel, next time you're out this way, check out the castle on E. Woods Drive. It's a sight to see if you've never been there. If you're heading North on 501, make a right onto E. Woods. You can only see it from the road when there are no leaves on the trees. It's really pretty cool and it's just a minute or two off of the main road.

jerseyangel Proficient
jerseyangel
Posted
Jerseyangel, next time you're out this way, check out the castle on E. Woods Drive. It's a sight to see if you've never been there. If you're heading North on 501, make a right onto E. Woods. You can only see it from the road when there are no leaves on the trees. It's really pretty cool and it's just a minute or two off of the main road.

Ooh--thanks! We love stuff like that--I'm adding that to the Stauffer's note!

Mahee34 Enthusiast
Mahee34
Posted

check out the post on Dillsburg, PA.......GREAT gluten free store! in close proximity to harrisburg, carlisle, york, !

Guhlia Rising Star
Guhlia
Posted

Thanks Mahee!!! I can't wait to check it out!

  • 2 weeks later...
karenwinslow1 Newbie
karenwinslow1
Posted

Another newbie! My 9 year old has celiac and we are travelling to State College PA this summer for a weekend to take her older sister to the University. Just wondering if anyone knows of any restaurants in the area that cater to or offer gluten free menus. She had one bad experience in a restaurant right after she was diagnosed and is a bit skittish when we are travelling and eating out now. I will also bring some items with us since the hotel has a fridge and microwave. Thanks for any ideas or help in advance!

Guhlia Rising Star
Guhlia
Posted

When we vacationed in Florida I lived on McDonalds apple dippers and fruit and yogurt parfait (w/o granola), Wendy's chili, and Carrabba's and Outback. I hope that helps. I'm not familiar with State College at all.

  • 2 weeks later...
NicoleAJ Enthusiast
NicoleAJ
Posted

Hi Karen,

I'm actually a grad student in State College. Golden Wok Chinese restaurant has two gluten free options--chicken and mixed vegetables with white sauce and white rice and chiken and baby spinach (lunch only) with white rice and white sauce. They know it as wheat rather than gluten, but I've never had a problem there, so if you just let them know, you'll be fine. Also, the Tavern has a single option that I always know is safe--chicken and wild rice; get it with the spinach salad which has a safe, gluten-free dressing. I have had gluten problems with other side dishes there, so I wouldn't risk getting anything else--by the way, the chocolate mousse is gluten free and absolutely delicious (no whipped cream though). Also, I posted on another board about this, but Gamble Mill Tavern in Bellefonte is quite pricey (they have a website), but if you call the day that you go to dinner there, the chef will make a list of all of the things you can and cannot have, and the food is unbelievable! Great for special occasions. Also, we do have an Outback here with a gluten free menu--I've only gotten sick there once out of probably 30 visits. In addition, if you call ahead to your hotel tell them you have medically necessary foods that must be refrigerated and microwaved--many hotels set aside micro/fridge combos for guests with special dietary issues. Either you can bring lots of gluten free food for her and store it in the fridge, or we have two great options for shopping. First, the Wegman's grocery store on Lowes Blvd has a gluten free section and labels all of their Wegman's brand products that are gluten free--quite a long list available on their website. In addition, we have a small store called Nature's Pantry on Rte 26 that has tons of gluten free stuff. I think your daughter should be totally fine here--I've been living here since a month after my diagnosis, and I've had very few problems--as long as I don't risk going to places that have no clue about my issues.

Let me know if you need anymore info--I'm happy to help!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and...
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

      Ijmartes71 I son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties...
    3. cristiana
      - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Just to say that I too was hesitant to come off dairy products completely @dsfraley. Milk, yoghurt and soft cheeses definitely caused bloating. This bloating gave me rib and pelvic pain, and I remember the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu. Milk, yoghurt and soft cheeses also...
    4. trents
      - trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Yes, that is the suggestion.
    5. Wheatwacked
      - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Anyway, I have no problem with grass fed milk other than the price. Maybe I should move to Ireland or New Zealand. They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week. A year ago I had over ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,563
    • Most Online (within 30 mins)
      7,748
    joniverse
    Newest Member
    joniverse
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By knitty kitty · Posted

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Second chance

      By Mari · Posted

      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By cristiana · Posted

      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By trents · Posted

      Yes, that is the suggestion.
    • Wheatwacked
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Wheatwacked · Posted

      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.