Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Recurrent Tonsillitis
0

18 posts in this topic

Is there a link between recurrent tonsillitis and undiagnosed Celiac? I know a lot of us seem to have had tonsillitis a lot before dx... my neice keeps getting tonsillitis and I'm convinced she at least has food allergies if not celiac based on other probs... she has had blood in her stool on more than one occassion and she's only 2...

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had recurrent tonsillitus from grade 7 to 12. I took so many antibiotics in that time period. I could see there being a link.

0

Share this post


Link to post
Share on other sites

She should just get them taken out, it really isn't that painful, and then after that your sister/brother might be more ademant to get the testing for celiac disease.

0

Share this post


Link to post
Share on other sites

weird...I always had tonsil problems to the point that I had to have an EMERGENCY tonsillectomy the day after Christmas two years ago...( yea I know, gotta be the only person the world...)

maybe there is a connection!?!

0

Share this post


Link to post
Share on other sites

I had recurrent tonsilitis for years - long before I knew anything about Celiac. I ended up getting my tonsils out at age 23. If I had known then what I know now, I think I could have avoided it by changing my diet then. My naturopath said that she sees people with chronic tonsilitis get better when they are diagnosed with food allergies and eliminate those foods.

0

Share this post


Link to post
Share on other sites




My second youngest daughter, Janet (20), has had tonsillitis a few times, and her tonsils are now enormous, she keeps getting strep throat, sore throat all the time, ear infections, sometimes bad pains in her legs............I think she may have Celiac disease, too. And last year once she had those enormous, gross blisters on her feet, and no clue why (they looked just like some of those worst, ugly pics of DH). Unfortunately, I don't know if the lab our doctor uses knows what they're doing when it comes to celiac testing, besides the fact that our insurance doesn't cover it.

When I asked my doctor to write me the order for a full panel of blood tests for celiac for both Susie and Janet, I saw her copy exactly what it says to test for in the celiac brochure I brought with me. I don't think she had a clue what she needed to ask for without my help. So, if she has never ordered those tests before, and the other doctors around are just as clueless, I wonder if the lab has ever done those. So, how do I then know that Susie's negative test results were valid?

And the lab never even sent the exact values, just a note stating that they were all negative. Very frustrating, especially if you have to pay for the testing yourself.

We still have the order for Janet (not dated, so still valid). But I am wondering if its even worth trying!

I used to have tonsillitis when I was little, and my tonsils were removed. Then, several years ago I had tonsillitis again, because my tonsils regrew just enough to be a problem again! I had tonsillitis several times these past five years. Now I only get a sore throat when I know I've had something that makes me sick (like yesterday, I don't know what it was, but I was up until five this morning, running to the bathroom with D every few minutes, and I have a sore throat). So, I really do think there is a connection.

0

Share this post


Link to post
Share on other sites

thanks for your input... I know I had recurrent tonsillitis for many many years and then had them removed in an emergency surgery when I was 17, my throat was closing up and I couldn't breathe.

Does anyone happen to know if there have been any studies done on this particular link or if it is mentioned anywhere?

0

Share this post


Link to post
Share on other sites

hmmm, not sure about a connection, but i had reoccurent tonsillitis also-all through high school, was miserable. got tonsills taken out summer before college. ouch! but worth it!

0

Share this post


Link to post
Share on other sites

Not sure if it is related to Celiac or just a plain common occurence, but I also had recurrent tonsillitis through my childhood. Finally had them taken out in my 20's........

Karen

0

Share this post


Link to post
Share on other sites

i had recurrant tonsillitis after my bout of mono in high school (which we think triggered all my health probs)...and finally made my ENT take them out at 19 yrs old...i was a music major and couldnt play my oboe, and was missing concerts...no good. :angry:

angie

0

Share this post


Link to post
Share on other sites

I had tonsillitis all the time that, when I was 20 I was on antibiotics for 3 months straight until they took them out. Then two weeks ago I had a sore throat, I went to a walk in clinic and the dumb doctor looks in my mouth and says;"Well you don't have tonsillitis." I told her that was good because I had no tonsils.

0

Share this post


Link to post
Share on other sites

I get recurrent tonsilitis in 8th grade, but that was from my CPAP and they forgot to give me the filter, so it was just circulating the bacteria through my mouth every night.

0

Share this post


Link to post
Share on other sites

I used to get tonsillitis frequently in my late teens and during my 20's. Whats strange about that is that those are the (only) years I didn't have any stomach problems that I can remember.

0

Share this post


Link to post
Share on other sites

I had constant strep throat and tonsillitis growing up. When I was 21 I got tonsillitis and it would come back within 36 hours after stopping the antibiotic. My (old) dr. had me on "maintenance dose" of pennicillan. I am now allergic to every antibiotic in the penicillian family - concidence? I think not! I did have my tonsils removed at age 21 too.

0

Share this post


Link to post
Share on other sites

I had recurrent sinus infections so they took out my adenoids, although I wish they would have gotten the tonsils while they were in there, then when I got mono it wouldn't have been nearly the hell it was. My mom was a nurse for 15 years and said she had never seen anyone that sick and survive...

and then the stomach problems started :rolleyes:

My mom had hers out in her mid-20s because of recurrent tonsilitis.

0

Share this post


Link to post
Share on other sites

I had tonsil problems my whole life. I got strep throat over and over again and it won't go away. I had to take anti-biotics numerous times. Now my tonsils have been swollen for years. Doctors can't figure out what is the problem. I sure it is from wheat. I read a couple of places that swollen tonsils are a sign of food allergies.

0

Share this post


Link to post
Share on other sites
I had constant strep throat and tonsillitis growing up. When I was 21 I got tonsillitis and it would come back within 36 hours after stopping the antibiotic. My (old) dr. had me on "maintenance dose" of pennicillan. I am now allergic to every antibiotic in the penicillian family - concidence? I think not! I did have my tonsils removed at age 21 too.

Same thing happened to me. After being on Penicillian for three months, I am now allergic to it.

0

Share this post


Link to post
Share on other sites
I used to get tonsillitis frequently in my late teens and during my 20's. Whats strange about that is that those are the (only) years I didn't have any stomach problems that I can remember.

I didn't have any gi issues either that I can remember during my constant tonsillitus, strept throat teen years.

I still have my tonsils and I love them.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,152
    • Total Posts
      919,607
  • Topics

  • Posts

    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,189
    • Most Online
      1,763

    Newest Member
    Raany
    Joined