Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aweful Symptoms

Becky72

Recommended Posts

Becky72 Newbie
Becky72
Posted

I started having problems about 2 years ago. After i drank alcohol i noticed my heart would race at night. I would also sweat and my temp would actually go up. I finally went in to my doc and i went through a heart monitor for a week which did show my heart racing at around 120-130 . They also did a glucose monitoring thing they put in my stomach for a week. It showed my blood sugar would rise at night sometimes in the 200's and stay up till the morning then it would sometimes crash to about 50. I have had hypoglcemic symptoms most of my life. All of the times my blood sugar was high at night i had had alcohol that evening or alot of carbs.I had glucose tollerance test which was fine. My doctor also did blood tests which shoowed i had a very low ferritin level and my gliadin was high( almost tripled i think). She told me i probably have celiacs. I didnt want to belive it because i didnt want to have to go gluten free. She has put me on metformin to see if it my blood sugar but it has not helped my heart racing. I wish i could find someone els with my symptoms because it would be so much easier for me to accept. When i eat an offending food it is not an instant reaction. Sometimes i can feel my heart pounding right away and sometimes its not tilll the middle of the night. Some of the worst foods for me are popcorn, subway sandwiches, pretzels, ice cream,

. The wierd thing is if it is celiacs could a reaction be to raise my blood sugar? Also, i have had this type of reactions to foods without gluten...i am so confused. Recently i also had some bad ankle pain to where i couldnt walk and they did a bone scan and could see bone loss pretty bad! I had more blood work and had low vitamin D. I am also hypothyroid. Sorry so long! I hope someone can help me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

All of the problems you listed can be caused by celiac (not too sure about the blood sugar though). Are you not on the diet? If not, you really need to be. If the test was positive and the numbers were triple the normal range its not something to be ignored. Most if not all of your symptoms are probably due to the fact that you're still eating gluten.

Mango04 Enthusiast
Mango04
Posted

Hi - you should start by eliminating all gluten from your diet. If you still have some symptoms, you could have some additional intolerances to other things, such as dairy, corn or soy.

Nancym Enthusiast
Nancym
Posted

Celiac disease is believed to be a cause of diabetes and I know a lot of diabetics have BS problems at night.

Could you stop the drinking?

Becky72 Newbie
Becky72
Posted
  • Author
Celiac disease is believed to be a cause of diabetes and I know a lot of diabetics have BS problems at night.

Could you stop the drinking?

I havnt drank any alcohol in over a year. It causes my worst symptoms and just wasnt worth it! I was not diagnosed as having diabetes because my fasting and glucose tolerance test were normal. I even had the 5 hour GTT and it was fine...confusing to me.

Guest nini
Guest nini
Posted

what you described sounds a lot like what I used to go through years before my dx, at least 10 years ago... used to go out drinking after work and eat pizza's and other high gluten bar foods... didn't realize it at the time that it was related to Celiac. Had never heard of Celiac back then. I too quit drinking because I couldn't stand the way it made me feel afterwards, it just wasn't worth it. Even a tiny amount of wine seemed to set me off so it wasn't a hangover issue. I never really monitored my blood sugar back then but I knew I was having "hypoglycemic attacks" where my blood sugar would absolutely plummet... it's very possible I was having episodes where it was rising too...

you do have elevated antibodies, which indicates that YES gluten is a problem for you and like it or not, if you want to be healthy you need to eliminate gluten from your diet for ever.

Becky72 Newbie
Becky72
Posted
  • Author
what you described sounds a lot like what I used to go through years before my dx, at least 10 years ago... used to go out drinking after work and eat pizza's and other high gluten bar foods... didn't realize it at the time that it was related to Celiac. Had never heard of Celiac back then. I too quit drinking because I couldn't stand the way it made me feel afterwards, it just wasn't worth it. Even a tiny amount of wine seemed to set me off so it wasn't a hangover issue. I never really monitored my blood sugar back then but I knew I was having "hypoglycemic attacks" where my blood sugar would absolutely plummet... it's very possible I was having episodes where it was rising too...

you do have elevated antibodies, which indicates that YES gluten is a problem for you and like it or not, if you want to be healthy you need to eliminate gluten from your diet for ever.

Did your heart race? Mine can get so bad i cant sleep. It beats so fast and can last til morning. Most of the time i wake up with my heart racing. Sometimes i wake up in a sweat with it racing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

My heart used to be racing like that, and skipping beats. Also, I had pretty much the same symptoms as you before going gluten free (and many other things free). My heart doesn't race any more, and rarely skips now.

You really need to be gluten free. You will feel so much better!

Hoosiergirl Newbie
Hoosiergirl
Posted

My heart used to race at night when my symptoms first started. It happened a few times and then it just stopped. I started trying to be gluten free shortly after the first heart racing episode so maybe the diet took care of it.

Sheri

jams Explorer
jams
Posted

I had all of those symptoms AFTER going gluten-free. It was so bad last October that I went on Lexapro. I haven't had any since. I chalked it up to anxiety. :unsure:

I do agree that if your tests were positive, you need to go gluten-free. You may not even know some of the things that are going on with you until you go gluten-free and feel like what life is supposed to feel like!! That may not make sense to you, but it will to others with celiacs!! ;)

Good Luck!!

Guest nini
Guest nini
Posted

absolutely my heart would race, it would keep me up all night sometimes... I would get the sweats too...

Becky72 Newbie
Becky72
Posted
  • Author
absolutely my heart would race, it would keep me up all night sometimes... I would get the sweats too...

Thank you guys so much for replying. I am going gluten free today! I Live on an island in Alaska so gluten free will definaely be a challenge! Can anyone tell me what ice cream is gluten free? I Love Ice cream!also...does anyone know if starbucks mocas are...i have my doubts but its worth a shot...thank you !!!

SallyC Newbie
SallyC
Posted
Thank you guys so much for replying. I am going gluten free today! I Live on an island in Alaska so gluten free will definaely be a challenge! Can anyone tell me what ice cream is gluten free? I Love Ice cream!also...does anyone know if starbucks mocas are...i have my doubts but its worth a shot...thank you !!!

I don't know about Starbucks Mocas but there are several varieties of Bryers Ice Cream that are gluten free.

jerseyangel Proficient
jerseyangel
Posted

On the subject of Starbucks mocha and chocolate, there was a thread about it recently--

Open Original Shared Link

dawnhulio Newbie
dawnhulio
Posted

Becky72

Re: Blood sugars ranging from 200 to 50 in early morning...

I am a Type 1 Diabetic (28 years), also have autoimmune thyroid disease, a.k.a. Graves' Disease (irradiated five years ago) and am now getting testing done with EnteroLab to see what comes back regarding the celiac (quite common in folks with other autoimmune problems... long story!!!). B)

In regards to the wierd blood sugar readings, and let me just say I'm NOT a doctor and am only supplying my personal knowledge: after drinking alcohol, and even just a tiny bit of it, it can cause your blood sugars to rise temporarily while your body is breaking down the simple sugars contained in those drinks, especially ones made with mixers or wine. It's actually common for people to have their blood sugars TEMPORARILY rise after meals containing carbohydrates; they usually drop back into range within 30 - 120 minutes max. HOWEVER, with hypoglycemics, this can cause a dive into a low-blood-sugar status; usually your liver would release glucose, a sugar, into your blood stream to help compensate for this drop; it acts like a quick 'energy' release and is considered to be an emergency energy store.

Whether you are hypoglycemic or not, while the liver is busy metabolizing the alcohol in your system, it is unable to release that emergency energy reserve into your system (hence why diabetics are cautioned against drinking alcohol, if one's blood sugar takes the dive, the liver is unable to compensate, causing diabetic coma and/or death. Hypoglycemics don't take a dive that will create this problem, but it's nonetheless unpleasant to deal with).

Also, our bodies follow a circadian rhythm - the body naturally gets drowsy late at night, you sleep, and before you awake your body begins ramping up for the next day - including releasing extra insulin for your cells which are needing their stored energy to get you going. My insulin pump uses very little insulin from midnight to five in the morning; it then jumps up from 5-6-7 a.m. into the morning hours, or else I'll wake up with nastily high blood sugars. Low blood sugars can cause your heart to race because your body releases a little bit of adrenalin / cortisol, which are our bodies natural 'uppers.'

I'd say if you've been through the glucose tolerance tests and everything looks good, you probably are not dealing with diabetes; but evidence is showing that there may be a third type of diabetes (currently there is Type 1 (juvenile) Diabetes, which is always insulin-dependent; and Type 2, which is considered to be Adult-Onset and may or may not require treatment by a variety of options, including diet/exercise/pills (you mentioned Metformin) or insulin). I've heard the third type referred to as Type 1.5, but don't have much knowledge about it past that.

I wish you the best of luck!!! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.