Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Night Terrors, Sleep Disorders And Celiac


jeremy'smom

Recommended Posts

jeremy'smom Newbie

My four year old has suffered with night terrors since birth. The problem goes away according to the strictness of our gluten free diet. (thank god he was finally diagnosed 8 mos. ago) My problem is this, when i realize that he is having a reaction during the day (uncontrollable diarrhea), i know that we will all suffer thru the night, hours of screaming, moaning and sleep walking. i am wondering if anyone can give information about supplementing minerals, or ways to soothe the inflammation of the duodenum (since a typical reaction lasts about 48 hours)

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I am a 13 year old celiac who was diagonised when i was 20 months. I have had severe sleep walking problems in the last two months but we found a cure a couple weeks ago. The thing to do is to wake the child up 15 minutes before the time you expect the child to start sleepwalking. I don't know if this will work but it sure has for me

MOLLYDS

SofiEmiMom Enthusiast

Dear Jeremy's Mom:

I wish I had an answer for you...I would be interested in what other people say about this as well. My daughter who is almost 4 has the exact same problem, minus the sleep walking. She wakes up screaming several times a night when she has a gluten accident. I know it's coming too when during the day she cries at absolutely everything. I can certainly relate to how you are feeling. It's so difficult. Just wanted to let you know you aren't alone.

kejohe Apprentice

Hi there, I posted in the sleep catagory not too long ago about my son's sleep issues. He's three now, and still has trouble sleeping through the night. He was diagnosed about two years ago, and since then it seems like his night time issues have lessened but he still wakes up 3 and 4 times a night with the occasional night terror as well. He used to have the terrors once every couple of nights, now it's about once or twice a month.

There was a mention of a digestive enzyme that may help a little. I believe it comes in a pill form, but I do not know if they have a childrens dose. You might research it a bit at your health food store to see what is available and then talk to your kids gastro doc or pediatrician. It's worth a try anyway.

I know what it's like to have your baby screaming and to be unable to wake them up and calm them is heart breaking. I hope that this helps a little, if only to let you know that you are not alone.

  • 1 year later...
snoopylian Apprentice

My three year old suffers night terrors when he eats gluten too. When going gluten-free it was a nice surprise to begin sleeping through the night. I'm sorry to hear that others have experienced this but it also nice to know that we aren't alone there.

In regards to your question, I AM NOT A DOCTOR - but I've done a lot of reasearch on probiotics, digestive enzymes, essential fatty acids, homeopathic remedies, acupressure etc since my son was born with severe eczema three and a half years ago. I've also picked the brains of many nutritionists, homeopathic practioners, and anyone who has any knowledge on the prior mentioned subjects. :) Anyway, I think probiotics daily would help. And I would give him a double dose when he accidentally consumed gluten. You can do some research on probiotics if you're interested. Basically, probiotics are good bacteria that most of us are lacking. They promote a healthy intestinal balance therefore aiding in strengthening your immune system. We use acidophilus pearls by Enzymatic Therapy - the best price I've found is at this website - Open Original Shared Link. Whole Foods sells a liquid probiotic, I can't remember the name, that is supposed to be really powerful & good but it is very expensive.

In regards to digestive enzymes I give my son THERA-ZYME DGST-P, which comes in powder form. I get it from an oriental medicine doctor who does acupressure, acupuncture, kinesiology, allergy desensitisation etc. I don't know if you can order the enzymes via telephone or website but their # is 972-473-9070, website- www.integratedcenterfororientalmedicine.com

Well I hope that has helped. Good luck.

  • 7 years later...
AlwaysLearning Collaborator

Whoa, seven years late seeing this thread!

If you're looking for a simple cause, I read that sleep walking/talking/night terrors can be triggered by acid reflux. So I suppose it could make sense that a person suffering from a digestive problem would be more likely to have these night-time problems.

You could try asking a child if they have any of the symptoms of acid reflux.

If you determine that they do, perhaps limiting foods that are known to cause acid reflux to earlier in the day could be enough to at least lessen the problem?

And I know many parents limit how much water their children drink in the evenings to lessen the chance of bed wetting, but for most adults drinking some water would be the first choice for diluting stomach acid.

Another way to combat acid reflux is to eat foods in the order of how quickly they leave the stomach. So vegetables first, carbs in the middle, and meats last. That is supposed to avoid having the salad start to rot on top as it waits for the steak to move out of the way, something we should all be paying attention to.

And though the medical community used to say that acid reflux was normal in children, now I'm seeing them recommending to mention the symptom to your child's doctor, and that it should go away after infancy.

I know when I was a kid, I thought acid reflux was normal, and I was a big-time sleep walker and talker. I do know that my adult relatives who suffer from night terrors attribute them to acid reflux and GERD.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748

    nursengul
    Newest Member
    nursengul
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...