Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Night Terrors, Sleep Disorders And Celiac


jeremy'smom

Recommended Posts

jeremy'smom Newbie

My four year old has suffered with night terrors since birth. The problem goes away according to the strictness of our gluten free diet. (thank god he was finally diagnosed 8 mos. ago) My problem is this, when i realize that he is having a reaction during the day (uncontrollable diarrhea), i know that we will all suffer thru the night, hours of screaming, moaning and sleep walking. i am wondering if anyone can give information about supplementing minerals, or ways to soothe the inflammation of the duodenum (since a typical reaction lasts about 48 hours)

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I am a 13 year old celiac who was diagonised when i was 20 months. I have had severe sleep walking problems in the last two months but we found a cure a couple weeks ago. The thing to do is to wake the child up 15 minutes before the time you expect the child to start sleepwalking. I don't know if this will work but it sure has for me

MOLLYDS

SofiEmiMom Enthusiast

Dear Jeremy's Mom:

I wish I had an answer for you...I would be interested in what other people say about this as well. My daughter who is almost 4 has the exact same problem, minus the sleep walking. She wakes up screaming several times a night when she has a gluten accident. I know it's coming too when during the day she cries at absolutely everything. I can certainly relate to how you are feeling. It's so difficult. Just wanted to let you know you aren't alone.

kejohe Apprentice

Hi there, I posted in the sleep catagory not too long ago about my son's sleep issues. He's three now, and still has trouble sleeping through the night. He was diagnosed about two years ago, and since then it seems like his night time issues have lessened but he still wakes up 3 and 4 times a night with the occasional night terror as well. He used to have the terrors once every couple of nights, now it's about once or twice a month.

There was a mention of a digestive enzyme that may help a little. I believe it comes in a pill form, but I do not know if they have a childrens dose. You might research it a bit at your health food store to see what is available and then talk to your kids gastro doc or pediatrician. It's worth a try anyway.

I know what it's like to have your baby screaming and to be unable to wake them up and calm them is heart breaking. I hope that this helps a little, if only to let you know that you are not alone.

  • 1 year later...
snoopylian Apprentice

My three year old suffers night terrors when he eats gluten too. When going gluten-free it was a nice surprise to begin sleeping through the night. I'm sorry to hear that others have experienced this but it also nice to know that we aren't alone there.

In regards to your question, I AM NOT A DOCTOR - but I've done a lot of reasearch on probiotics, digestive enzymes, essential fatty acids, homeopathic remedies, acupressure etc since my son was born with severe eczema three and a half years ago. I've also picked the brains of many nutritionists, homeopathic practioners, and anyone who has any knowledge on the prior mentioned subjects. :) Anyway, I think probiotics daily would help. And I would give him a double dose when he accidentally consumed gluten. You can do some research on probiotics if you're interested. Basically, probiotics are good bacteria that most of us are lacking. They promote a healthy intestinal balance therefore aiding in strengthening your immune system. We use acidophilus pearls by Enzymatic Therapy - the best price I've found is at this website - Open Original Shared Link. Whole Foods sells a liquid probiotic, I can't remember the name, that is supposed to be really powerful & good but it is very expensive.

In regards to digestive enzymes I give my son THERA-ZYME DGST-P, which comes in powder form. I get it from an oriental medicine doctor who does acupressure, acupuncture, kinesiology, allergy desensitisation etc. I don't know if you can order the enzymes via telephone or website but their # is 972-473-9070, website- www.integratedcenterfororientalmedicine.com

Well I hope that has helped. Good luck.

  • 7 years later...
AlwaysLearning Collaborator

Whoa, seven years late seeing this thread!

If you're looking for a simple cause, I read that sleep walking/talking/night terrors can be triggered by acid reflux. So I suppose it could make sense that a person suffering from a digestive problem would be more likely to have these night-time problems.

You could try asking a child if they have any of the symptoms of acid reflux.

If you determine that they do, perhaps limiting foods that are known to cause acid reflux to earlier in the day could be enough to at least lessen the problem?

And I know many parents limit how much water their children drink in the evenings to lessen the chance of bed wetting, but for most adults drinking some water would be the first choice for diluting stomach acid.

Another way to combat acid reflux is to eat foods in the order of how quickly they leave the stomach. So vegetables first, carbs in the middle, and meats last. That is supposed to avoid having the salad start to rot on top as it waits for the steak to move out of the way, something we should all be paying attention to.

And though the medical community used to say that acid reflux was normal in children, now I'm seeing them recommending to mention the symptom to your child's doctor, and that it should go away after infancy.

I know when I was a kid, I thought acid reflux was normal, and I was a big-time sleep walker and talker. I do know that my adult relatives who suffer from night terrors attribute them to acid reflux and GERD.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    5. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,361
    • Most Online (within 30 mins)
      7,748

    BarryZ
    Newest Member
    BarryZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.