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Night Terrors, Sleep Disorders And Celiac


jeremy'smom

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jeremy'smom Newbie

My four year old has suffered with night terrors since birth. The problem goes away according to the strictness of our gluten free diet. (thank god he was finally diagnosed 8 mos. ago) My problem is this, when i realize that he is having a reaction during the day (uncontrollable diarrhea), i know that we will all suffer thru the night, hours of screaming, moaning and sleep walking. i am wondering if anyone can give information about supplementing minerals, or ways to soothe the inflammation of the duodenum (since a typical reaction lasts about 48 hours)

Thanks!


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flagbabyds Collaborator

I am a 13 year old celiac who was diagonised when i was 20 months. I have had severe sleep walking problems in the last two months but we found a cure a couple weeks ago. The thing to do is to wake the child up 15 minutes before the time you expect the child to start sleepwalking. I don't know if this will work but it sure has for me

MOLLYDS

SofiEmiMom Enthusiast

Dear Jeremy's Mom:

I wish I had an answer for you...I would be interested in what other people say about this as well. My daughter who is almost 4 has the exact same problem, minus the sleep walking. She wakes up screaming several times a night when she has a gluten accident. I know it's coming too when during the day she cries at absolutely everything. I can certainly relate to how you are feeling. It's so difficult. Just wanted to let you know you aren't alone.

kejohe Apprentice

Hi there, I posted in the sleep catagory not too long ago about my son's sleep issues. He's three now, and still has trouble sleeping through the night. He was diagnosed about two years ago, and since then it seems like his night time issues have lessened but he still wakes up 3 and 4 times a night with the occasional night terror as well. He used to have the terrors once every couple of nights, now it's about once or twice a month.

There was a mention of a digestive enzyme that may help a little. I believe it comes in a pill form, but I do not know if they have a childrens dose. You might research it a bit at your health food store to see what is available and then talk to your kids gastro doc or pediatrician. It's worth a try anyway.

I know what it's like to have your baby screaming and to be unable to wake them up and calm them is heart breaking. I hope that this helps a little, if only to let you know that you are not alone.

  • 1 year later...
snoopylian Apprentice

My three year old suffers night terrors when he eats gluten too. When going gluten-free it was a nice surprise to begin sleeping through the night. I'm sorry to hear that others have experienced this but it also nice to know that we aren't alone there.

In regards to your question, I AM NOT A DOCTOR - but I've done a lot of reasearch on probiotics, digestive enzymes, essential fatty acids, homeopathic remedies, acupressure etc since my son was born with severe eczema three and a half years ago. I've also picked the brains of many nutritionists, homeopathic practioners, and anyone who has any knowledge on the prior mentioned subjects. :) Anyway, I think probiotics daily would help. And I would give him a double dose when he accidentally consumed gluten. You can do some research on probiotics if you're interested. Basically, probiotics are good bacteria that most of us are lacking. They promote a healthy intestinal balance therefore aiding in strengthening your immune system. We use acidophilus pearls by Enzymatic Therapy - the best price I've found is at this website - Open Original Shared Link. Whole Foods sells a liquid probiotic, I can't remember the name, that is supposed to be really powerful & good but it is very expensive.

In regards to digestive enzymes I give my son THERA-ZYME DGST-P, which comes in powder form. I get it from an oriental medicine doctor who does acupressure, acupuncture, kinesiology, allergy desensitisation etc. I don't know if you can order the enzymes via telephone or website but their # is 972-473-9070, website- www.integratedcenterfororientalmedicine.com

Well I hope that has helped. Good luck.

  • 7 years later...
AlwaysLearning Collaborator

Whoa, seven years late seeing this thread!

If you're looking for a simple cause, I read that sleep walking/talking/night terrors can be triggered by acid reflux. So I suppose it could make sense that a person suffering from a digestive problem would be more likely to have these night-time problems.

You could try asking a child if they have any of the symptoms of acid reflux.

If you determine that they do, perhaps limiting foods that are known to cause acid reflux to earlier in the day could be enough to at least lessen the problem?

And I know many parents limit how much water their children drink in the evenings to lessen the chance of bed wetting, but for most adults drinking some water would be the first choice for diluting stomach acid.

Another way to combat acid reflux is to eat foods in the order of how quickly they leave the stomach. So vegetables first, carbs in the middle, and meats last. That is supposed to avoid having the salad start to rot on top as it waits for the steak to move out of the way, something we should all be paying attention to.

And though the medical community used to say that acid reflux was normal in children, now I'm seeing them recommending to mention the symptom to your child's doctor, and that it should go away after infancy.

I know when I was a kid, I thought acid reflux was normal, and I was a big-time sleep walker and talker. I do know that my adult relatives who suffer from night terrors attribute them to acid reflux and GERD.

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    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
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