Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lectin Lock - Product Review

mushroom

By mushroom
in Food Intolerance & Leaky Gut

Recommended Posts

mushroom Proficient
mushroom
Posted

Those of you who have been around for more than a few months will know that for some time now I have been yammering on about lectins, and my suspicion that they are at the core of my other food intolerances. This 'gut' :blink: feeling was reinforced over the summer when I consulted Krispin Sullivan, a nutritionist, and by a cardiologist after I went into atrial fibrillation from one of my food episodes. I had been reading about this product called Lectin Lock and Krispin thought it would be good to try it. It is expensive, but a-fib is something I don't want to mess around with.

Basically, the problem with lectins (if you have a problem with them, and you can have a problem with one, or two, or several :o ) is that (to give a simplified explanation) they are a key, which key is attracted to certain kinds of sugar on the surface of cells in your body, let's call them keyholes. If you happen to have the right kind of keyhole that the lectin fits, it locks on to that cell and causes havoc in the body. The idea of Lectin Lock, is to provide in the gut the sugars that the lectins are attracted to and encourage them to lock on to those instead of the sugars on the cellular surface of the body. The gut can then process them through the intestine as waste.

Now obviously, I don't go around eating the foods to which I am intolerant when I can avoid it. There was one occasion (our book club meeting) where the hostess had gone to the trouble of making everything gluten free just for me, and I thought I should eat one of her mini-quiches. Upon biting into it I found tomato, and instead of panicking and making what could have been a scene, I ate it and said to self, 'Time for Lectin Lock.' I took two caps, and had no problems.

Yesterday, we had our Probus end-of-year Christmas lunch, and there three of we gluten-freers (in a group of 80 - that skews the stats a bit, doesn't it?) We all sat together at their request and they served us first with special meals which was very kind of them. Two problems - I think there might have been some lemon juice in the mustard sauce on the ham, and there was mandarin orange in the fruit salad. I ate everything, (including a tiny piece of roast potato) and waited to see what happened. Well, the familiar bloating, stinky gas and other problems started to rev up about 6 hours later, so it was time to test Lectin Lock again. Within an hour, the symptoms were gone, no a-fib, had a great night's sleep.

This product is for real in my book. It certainly passed both tests, the preventive - before symptoms got going, and the cure - once they started. It was amazing how the gas just.... went away :unsure:

I don't care what it costs, it's worth its weight in gold to me.:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Wow Shroom--that's very interesting and fantastic that it works for you! Is it available in stores?

mushroom Proficient
mushroom
Posted
  • Author

No, you have to order it online. Just google it :)

cassP Contributor
cassP
Posted

i actually have a lectin blocker pill from a doctor that i will just refrain from naming. it has 2 of your ingredients (N-Acetyl Glucosamine, and Fucus Bladderwrack) i feel better when i take it- but it can get pricey, so i dont take it regularly.

yours however also has the D-Mannose (which my personal favorite doc has said gluten has an affinity for and may bind to it).

btw- i overdid my last cheats on corn during thanksgiving- and I AM paying for it BIG TIME... no more corn for me :(

  • 2 weeks later...
Lisa79 Enthusiast
Lisa79
Posted

Thats great news, I will check google now :D

I have been seeing a homeopath for about 7 months and my lectin intolerance has improved, I still try avoid everything where I can but If I slip up I am not suffering as much as I used to.

mushroom Proficient
mushroom
Posted
  • Author

Update: I did have some problems (because of the delay) with hives after a day or two, not bad, but no GI problems from the citrus and potatoes

BUT THEN: :ph34r: Hub wanted potato salad (yearning for it and potato doesn't bother him) so I decided to make some for him. After I had put the dressing on the warm potatoes I just automatically did what I normally do, the cook by taste test :P , and actually did it a couple of times before I realized what I was doing. GAAAHHH. Rushed out to the car (because that's where the Lectin Lock lives - normally need to use it when I'm away from home) and took a couple of caps. Hey!, no problemo :D This stuff is for real.

Gutsy Girl Rookie
Gutsy Girl
Posted

Through keeping a food journal to the T, I realized I was reacting with brain fog and zombie-ness and bloating, among other things...to POTATOES. Of all things, I would have thought potatoes were pretty safe, bland, etc.

A few weeks ago, I cut white potatoes and all white potato products out of my diet entirely, and I'm happy because I feel clearer-headed now than I have for at least two years. Still not great and I sure do realize it when I mess up and get potato cc.

Then I had a friend send me this link about lectins: Open Original Shared Link

I read it and had an ah-HA! moment. As I'm one of those Celiacs who isn't healing (I've been gluten-free since 7/28/09 with a few disasterous cc incidents that landed me in the hospital), I know there's a lot more behind my problems than just "simple Celiac's" where you go GFD and feel great in a year or so.

I'm MISSING SOMETHING BIG.

But you guys seem to be in the know and some of you are veterans here, so here's my shout out. :)

There are so many directions I could go in. I'm ADHD and feel overwhelmed at the prospect of changing my diet YET AGAIN. I'm seriously considering an elimination diet, but HOW to do that is the question. Do I eliminate lectins? Or oxalates? Or salicylates (sp?) or...........I'm soooooo lost. I mean....I have to eat SOMETHING, right? :?

Please...ask me questions, guide me as you can with what you know - I am open to hearing suggestions and greatly appreciate any help ya'll are willing to give! :D In return, I'm glad to help especially along the gluten ataxia lines where I tend to know more. And I have a background in Occupational Therapy Assistant so I'd be glad to give practical suggestions about how to adapt and problem solve daily life sorts of things. :)

Thanks, ya'll!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gutsy Girl Rookie
Gutsy Girl
Posted

Is Rachel-24 still around?

She sure had some great ideas. I'm divulging an incredibly long thread very slowly (the "OMG...I think I'm on to something" one). It's like a billion pages long. LOL. :D

mushroom Proficient
mushroom
Posted
  • Author

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

Lisa79 Enthusiast
Lisa79
Posted

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

I also look forward to your reply, Lectins are still of great interest to me too :D

mushroom Proficient
mushroom
Posted
  • Author

Just got back on the board today and posted the following response to another poster on some of my experience with lectins, obviously not the same as yours, but it may be of interest. Fire back with any questions you have. You will find it at

  • 3 months later...
StephanieGF Rookie
StephanieGF
Posted

I was just wondering if anyone else has tried this product? I am looking for something to help with Corn CC when eating out...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.