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Paper Mache?


Mrsjames

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Mrsjames Newbie

I'm new to this forum and so happy to have found it! I recently discovered that my son and I are gluten intolerant. My son was properly diagnosed with a couple of blood tests but the doctor wanted total confirmation, by putting him back on a diet with gluten for 6 months and then conducting an intestinal biopsy.

My husband and I opted to forego the 6 months of torture to our little guy and just went ahead and began a gluten free diet for him. At the same time to support his new dietary restrictions, I too went gluten free and found that after years of suffering various skin rashes and phantom inflamation flares from swollen knees, wrists and feet, to year long bouts with Iritis, that I too felt much better.

We have been living gluten free for a year of so now and my son and I are finally feeling healthy.

Recently, I did a paper mach


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ravenwoodglass Mentor

You likely inhaled flour particles from the air. Flour stays airborne for quite some time and even the tiniest amount is enough to flare the antibody reaction.

julandjo Explorer

I react to topical gluten! I was at the salon last summer and had a cut and style. On the way home I started itching and burning, and discovered an angry red rash, but only on my left arm and left calf. It made no sense... until I realized that my left arm and left calf were exposed when my stylist was spraying hairspray on me. I liked the hairspray so much that I had bought a can of it when I paid. I whipped that can out and read the ingredients and whaddya know? Wheat starch was like the fourth ingredient! So yeah, it's totally possible. (And the salon let me return the hairspray for a full refund. :P )

Darn210 Enthusiast

. . . and on another note . . . in case anyone looks at this thread wondering what to do for paper mache projects . . .

Here is a link to a recipe that uses corn starch, water, and glue (elmer's):

Open Original Shared Link

We did a paper mache school project, and all we used was one part water to one part elmer's and it worked fine . . . so well, that we can't seem to throw it out as my son is quite attached to it.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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