Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Type One Diabetic For 18 Years, Related To Celiac?


angelfaerie

Recommended Posts

angelfaerie Newbie

hi, I've been a diabetic for 18 years, and just recently, my doctor told me my stomach problems, (extreme bloating, irregular bowel movements and others) are most likely being caused by celiac disease, but no formal tests were done. I've been advised to drop gluten, and since doing so, some of my stomach problems have gotten less problematic. I'm just wondering if its common to have celiac and type 1 diabetes together, and if so, is anyone able to throw some ideas how i can still eat with a diet plan suited for both? thanks for any help i can get, i may be small but my appetite, not so much


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Type 1 diabetics are one of the groups that are supposed to be screened for celiac as they are a group that has a higher rate of the disease. Your doctor really should have done a blood test before you started the diet. You may want to see if you can get a referral to a dietian knowledgable about both to give you a bit of help with it. We do have some type 1 folks here who hopefully will chime in and give you a bit of guidance. The way you should eat is basically the same as you are for the diabetes but without gluten containing foods.

IrishHeart Veteran

Yes, there is a connection between diabetes and celiac. Celiac is associated with many autoimmune diseases.

I have been trying to convince my sister to be tested as she has both type 1 diabetes and is hypothyroid, but she won't do it. :(

I applaud your doctor for making the connection between diabetes and celiac, but agree with Ravenwood that you should have been tested first before going gluten free. Wonder why he did not do that?

Glad you are noticing an improvement in your gastro symptoms!

I found this article for my sister, but maybe you might like to read it?

Open Original Shared Link

There are many people on here with diabetes who can be more helpful to you. Best wishes!

cyberprof Enthusiast

There are a couple diabetics who hang out here and I hope they'll give you some personal advice. But from what I've read, the problem with combining a gluten-free diet and a diabetic diet is that most gluten-free replacement foods don't have much fiber and have a lot of simple sugars which mess up blood sugar. I think it will be important to eat lots of protein, veggies, dairy and fiber more brown rice, quinoa and buckwheat and less gluten-free pastries, bagels.

Counsulting a dietician (should be covered by insurance but worth it if not) would be really helpful, IMO. Good luck!

(P.S. I'm one of those people who think that wheat may trigger diabetes and other autoimmune diseases. Interesting to see if they ever find out what causes diabetes.)

elye Community Regular

(P.S. I'm one of those people who think that wheat may trigger diabetes and other autoimmune diseases. Interesting to see if they ever find out what causes diabetes.)

I have long pondered the relationship between celiac and other autoimmune diseases. I've been a type one diabetic for thirty-eight years, and an undiagnosed celiac until five years ago. SOMETHING caused my autoimmune system, all those years ago, to send out antibodies that ended up killing off my islets of Langerhans. I know that gluten causes an autoimmune reaction within my body... . . . ..so it makes great logical sense to believe that gluten caused the destruction of my insulin-producing beta cells. Couple that with the latest data claiming that one in eight type ones are celiac (the number is likely higher, as SO many people with gluten issues are undiagnosed) and the idea of celiac/gluten intolerance "causing" diabetes becomes quite compelling.

I find the gluten-free diet a valuable tool in keeping my blood sugars in tight control. Carbohydrates cause blood sugar to rise, particularly refined carbs. Once I eliminated gluten, I inadvertently got rid of almost all the refined, processed foodstuffs in my diet. My blood sugar has always been well-controlled, but once I started the gluten-free diet, things got even better. It really was a blessing in many ways, this diagnosis. . . . .. ...just gotta keep reminding my self of this every now and then! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.