Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Find You Are More Sensitive The Longer You Are Luten Free?


HaileyRay812

Recommended Posts

HaileyRay812 Rookie

I am curious if any of you have noticed you have more symptoms the longer you stay gluten free? The longest I have gone so far is 2 weeks and then when I got back on gluten, I instantly was so itchy and lethargic! I also would feel like I was getting hives. Most of my symptoms in the past have been gi and sinus infections. The longer I am off gluten, will I react stronger and stronger to it as it completely leaves my system?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Austin Guy Contributor

I've only been off gluten for 90 days, but getting accidentally glutened now makes me feel much worse than it did when I ate it regularly. So for me, it seems that I am more sensitie now.

starrytrekchic Apprentice

It made me feel much worse for about a year, then things started getting significantly better.

RacerX35 Rookie

I have been gluten free for just over a year now and believe that I have become more sensitive. I can't even eat a pepperoni off the top of a pizza anymore. I did last time and had a minor siezure in bed and I believe that it was from the pepperoni.

Later,

Ray

stephharjo Rookie

I am more sensitive as well. 1 1/2 weeks I was gluten free and accidentally ate tacos where the seasoning had wheat in it and I was sick for two days.

GottaSki Mentor

We have several celiacs in my family and we all become more and more sensitive as time went on. One of my teen aged sons will occasionally (one item once every few months at school or social activity) ingest gluten on purpose, each time he became sicker and for longer. I think he's gone about 4 months without a slip now and he says he's done with tempting it.

SpiralArrow Rookie

I've definitely experienced this recently. Before I realized it could be gluten that was bothering me, I had problems like severe insomnia, constipation, bloating, constant brain fog and lightheadedness, higher anxiety, etc. These things are bad, but after having doctors tell me there was nothing wrong I was beginning to just accept this as something to expect every day. Everything was getting worse at a slow pace.

I went gluten free for 3 or 4 weeks, and now my reactions are terrible. I've spent almost a week now recovering from a stupid experiment that involved eating a muffin. I was bed-ridden with stomach cramps that prevented me from walking, terrible nausea, constipation, bloating, and I was on the verge of having panic attacks on my worst day. I felt like I was dying! The week was comparable to how ill I felt when I got swine flu, and that was no fun at all.

For some people, I think once your body knows what it's like to be free of a substance that is causing it damage, it REALLY lets you know if you're under attack again. :lol: Whereas before if you're eating daily doses of gluten there is no real time for your body to swing from recovering to being newly damaged again. If that makes any sense.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Hi,

I think you'll find variation on this board, as always; however, I will say that when I was a couple of years in to being gluten free my reactions were off the charts and now, as I'm into my 6th year, they may be a tad less dramatic. That said, I am supremely sensitive to the evil gluten and, frankly, am afraid of it for the way it makes me feel.

Most veterans of this board, however, I suspect might gently advise you that there is a LOOOOooonnnng learning curve with gluten sensitivity and, typically, (again, with caveats...), it can certainly take up to a year or more gluten free to rout out other suspect sensitivities and isolate your true gluten response. Sorry if that sounds alarming and heinously arduous but... there it is. Some are lucky and find they have no other intolerances and can simply eliminate obvious gluten and be just swell. Sadly for many of us, that is just not the case and the detective work can take more time than we'd like!

Good luck and good health to you!

lisa

mushroom Proficient

I am fortunate or (un)fortunate in that gluten is the mildest reaction of my sensitivities. Pure gluten (as in medications, which is often how I end up with it) causes mostly nausea and wanting to puke. But putting tomato with it as in pizza is a killer

cyberprof Enthusiast

I don't know if I'm "more" sensitive, I just recognize it better. About three days after diagnosis, I ate some boeuf bourguignon (a la Julia Child) that I had cooked and frozen half the recipe before diagnosis: The recipe has about 4 pounds of beef and 1/4 cup of wheat flour, meaning I ate about 1/10 of the recipe, which is about a 1/4 tablespoon of wheat. So I had been gluten-light about three days -- meaning I didn't eat anything knowingly but wasn't an expert yet on gluten-free -- and boy did I notice that boeuf bourguignon had wheat! But it's about the same level of reaction that I had last week after a dinner out, when I got an unknown quantity of gluten.

Skylark Collaborator

I got more sensitive after a few years gluten-free.

PainfulSpaghetti Newbie

I have a theory as to why this happens. A Gluten sensitivity / allergy, is an autoimmune disorder, and when we eat Gluten our bodies attack themselves. When we are eating it on a daily basis, a vicious cycle occurs, and the body is constantly fighting off the gluten attack. When you stop eating Gluten and then introduce it to the system again, your body is fighting at full force. Therefore the symptoms are far worse. Even a Tablespoon of soy sauce causes me to become itchy, and bloated and headachy and just plain ill. Think of it this way, when you are eating gluten on a regular basis, your body is sick, and after awhile it becomes almost accepted that you are. When you stop eating gluten all of the damage slowly starts to get better. But if you introduce it again, much like throwing a drop of gasoline on a fire that is almost out, your body "flares up".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.