Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Wanted To Share A Photo Of What's Left On My Upper Back And Scars

Flasaltwater

By Flasaltwater
in Dermatitis Herpetiformis

Recommended Posts

Flasaltwater Apprentice
Flasaltwater
Posted

Thought this might help someone else compare what they have its so hard to try and figure out what rash you have. This is whats left of mine on my upper back and scars from a years worth a bad rash.

My skin is ruined basically, this is the most painful and itchy rash I have ever had in my life yuk!

Do I need to be eating Gluten to get my skin Biopsy on Monday? I do still have some breakouts.Sorry about the size ill try to edit

101_0957.webp

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

DH scars are usually purplish red and last for a long time rather than leaving white scars. Your scars look nothing like mine did. However I am not saying that you don't have DH. In addition celiac can cause skin problems other than DH. I also had cystic acne type sores and those faded to a white color but I haven't had one since I went gluten free. Hopefully whatever your problems are with your skin it will resolve after you have been gluten-free for a bit and the scars will fade.

Link to comment
Share on other sites
Flasaltwater Apprentice
Flasaltwater
  • Author
Posted

Most of those are about a year old. I do have the purplish scars on my behind and legs and arms those are my fresher scars. I do also tend to pick at them they drive me crazy, these scars were all at one time fluid filled itchy painful bumps. I hope they can give something to make them go away ill try to post the ones on my arms later. My cousin who is celiacs gets these white scars after time goes by maybe has something to do with our skin color all I know is I want it to go away

.

Link to comment
Share on other sites
pricklypear1971 Community Regular
pricklypear1971
Posted

Most of those are about a year old. I do have the purplish scars on my behind and legs and arms those are my fresher scars. I do also tend to pick at them they drive me crazy, these scars were all at one time fluid filled itchy painful bumps. I hope they can give something to make them go away ill try to post the ones on my arms later. My cousin who is celiacs gets these white scars after time goes by maybe has something to do with our skin color all I know is I want it to go away.

My biopsy was supposed to be Thursday. Spoke with my derm and he wanted to postpone it because he wants fresh, new rash to biopsy. He thinks it's the best way to get a positive. So, we agreed to wait til I have another big oops and do it in the first 48 hours.

That doesn't mean you can't get a good one - just his preference and my reluctance to do anything to make mine flare up on purpose.

So far I don't have scars from mine, but did have the purple under the skin until I reduced iodine. I still see pink under the skin but it isn't anything like it was. Do far no white patches.

Link to comment
Share on other sites
Flasaltwater Apprentice
Flasaltwater
  • Author
Posted

This is one of the back of leg just under my bottom. This is a few of the scars that are bigger because these were the bigger had more fluid in them.

IMG_0304-1.webp

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

The ones on your leg do look like the scars I had, I still have a couple on my back even though I haven't had DH in ages. I hope your lesion free soon. I know they itch and hurt like the dickens!

Link to comment
Share on other sites
Bubba's Mom Enthusiast
Bubba's Mom
Posted

That's what my bumps look like! They are purple after they first heal..which takes forever, and then they leave a white spot. I have them on my upper arms and a couple on my legs right now. I find it impossible to leave them alone!

My Celiac wasn't diagnosed by my skin problems, but I think they're related? I'm interested to see what you find out.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hopeful1950 Apprentice
Hopeful1950
Posted

The doctor that helped me diagnose my DH said that "vitiligo" (white spots)is common with celiac and DH is celiac. These pictures look exactly like what I am dealing with. First I get an incredibly itchy feeling under the skin, then it raises up into a little bump with fluid (still itchy). Usually it gets scratched because of the intense itching. These lesions stay around for a long time until the blistering cycle stops, then they heal and leave the purple mark. They do tend to raise up and itch over and over even after they have a scab. When the purple mark fades, they often leave the white spots especially on my arms, upper back and back of the neck.

Often when they have healed and have started to fade, they will blister again in the same spot. Or they will blister around the edges of a scab. This stuff is really miserable to deal with and I fought it for 8 years undiagnosed so now it is taking an incredibly long time to clear up. Although there are many similarities between peoples' rashes (ie: itching) I think the aftermath can probably vary in appearance depending on skin type, color, previous sun damage etc.

I never could get a derm to do the biopsy correctly. Point the doctor to the area that is the most active and have him/her get the normal skin next to it. If they biopsy right on the lesion, the biopsy will be negative for DH. Oh and if they biopsy right on the lesion be prepared for it to go crazy and take about 6 months to heal.

Best of luck to you. Be sure to advocate for yourself and get the medical treatment you deserve.

Link to comment
Share on other sites
Flasaltwater Apprentice
Flasaltwater
  • Author
Posted

The doctor that helped me diagnose my DH said that "vitiligo" (white spots)is common with celiac and DH is celiac. These pictures look exactly like what I am dealing with. First I get an incredibly itchy feeling under the skin, then it raises up into a little bump with fluid (still itchy). Usually it gets scratched because of the intense itching. These lesions stay around for a long time until the blistering cycle stops, then they heal and leave the purple mark. They do tend to raise up and itch over and over even after they have a scab. When the purple mark fades, they often leave the white spots especially on my arms, upper back and back of the neck.

Often when they have healed and have started to fade, they will blister again in the same spot. Or they will blister around the edges of a scab. This stuff is really miserable to deal with and I fought it for 8 years undiagnosed so now it is taking an incredibly long time to clear up. Although there are many similarities between peoples' rashes (ie: itching) I think the aftermath can probably vary in appearance depending on skin type, color, previous sun damage etc.

I never could get a derm to do the biopsy correctly. Point the doctor to the area that is the most active and have him/her get the normal skin next to it. If they biopsy right on the lesion, the biopsy will be negative for DH. Oh and if they biopsy right on the lesion be prepared for it to go crazy and take about 6 months to heal.

Best of luck to you. Be sure to advocate for yourself and get the medical treatment you deserve.

This is exactly how it feels and is for me I must have gotten into something today I'm itchy pretty bad right now. I live in Florida so I am sure there is some sun damage from extended times at the beach.

I will be sure that she is aware of how to do this biopsy. I need her to do it right. I have photos with worse scars then that I am newly Gluten free and I have made some major boo boos with food with Iodine in it. Tonight is not a good night I'm also sure that I have been accidentally Glutened by my family.

Some of my digestive symptoms are starting to get better. My bathroom runs have calmed down tremendously. I'm actually able to sleep at night now unless I'm itching of course.

I'm a hot mess right now.

I just to thank everyone for responding to my post.

Link to comment
Share on other sites
pricklypear1971 Community Regular
pricklypear1971
Posted

I got into a few somethings including my dog's shampoo - wheat germ oil. Noticed too late.

I have a few new bumps on my otherwise healing rash but they are minuscule in comparison to what they were.

Another week of low iodine. Hurray for me. Ugh. I just want ice cream and cheese back.

I think carageenan really tears my DH up.

Link to comment
Share on other sites
eatmeat4good Enthusiast
eatmeat4good
Posted

Carageenan is terrible for my DH too.

My scars are pure white like that after they completely heal...Just exactly like your pics.

Mine are on my face and chest.

My elbows and lower back didn't scar...neither did my leg.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748
    Aventine
    Newest Member
    Aventine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      50 YO Male Recently Diagnosed with Celiac Disease

      By trents · Posted

      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
×
×
  • Create New...