How do you know if you are a super sensitive celiac or super sensitive to gluten? I can eat almost anything and not feel sick. I went to the GI because of the diarehha,weight lost, iron anemia. HE DID a endoscopy and the biopsy said most likely celiac. i had a celiac panel and other celiac related blood test done after being gluten free for a couple weeks. it came back saying i have celiac sprue. after the biopsy i was thinking it was something else, but since the celiac panel and other test were positive for celiac i am actually a little releived. I KNOW THIS IS LIFE CHANGING. I will try my best to stay gluten free and pray for the best.
I do have like eczema or some type of rash all over my legs and some on my arms. i was wondering if this could be related?
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4 replies to this topic
#2
GFreeMO
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Posted 13 January 2012 - 01:16 PM
You react to things that don't usually make the average celiac sick. Some of us, myself included get really sick from anything processed and labeled gluten free.
Your rash is probably related. I get something similar when glutened. It could be DH as well.
Your rash is probably related. I get something similar when glutened. It could be DH as well.
#3
mushroom
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Posted 13 January 2012 - 01:52 PM
Most people would not consider themselves super sensitive until they had ben on the diet for a few months, had taken all possible precautions to avoid gluten or cross-contamination from gluten, had eliminated other possible causes for symptoms (such as additional intolerances like dairy), and were still experiencing almost constant symptoms of glutening.
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#4
kareng
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Argh! Happy Halloween!
Posted 13 January 2012 - 02:15 PM
I don't think you can tell if you are Super sensitive until you have done the gluten-free diet really well for at least 6 months. It takes time to heal & get in the "groove". And to make sure its not milk or something else prolonging the GI issues.
You need to get the basics down before you can tell if you need to delve further and to lower levels of gluten than the majority of Celiacs.
You need to get the basics down before you can tell if you need to delve further and to lower levels of gluten than the majority of Celiacs.
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#5
IrishHeart
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Warrior Princess
Posted 13 January 2012 - 02:44 PM
I do have like eczema or some type of rash all over my legs and some on my arms. i was wondering if this could be related?
In answer to your other question, it is possible that yes, your rashes are related to celiac.
Many of us have had rashes and sores clear up since going gluten free. It takes time for you to see symptoms improve, so try to be patient.
If you have DH, eczema or psoriasis, those are diagnosed and often treated with medications, along with the gluten-free diet.
Best wishes!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
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Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
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