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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Do You Know If You Are Super Sensitive?
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5 posts in this topic

How do you know if you are a super sensitive celiac or super sensitive to gluten? I can eat almost anything and not feel sick. I went to the GI because of the diarehha,weight lost, iron anemia. HE DID a endoscopy and the biopsy said most likely celiac. i had a celiac panel and other celiac related blood test done after being gluten free for a couple weeks. it came back saying i have celiac sprue. after the biopsy i was thinking it was something else, but since the celiac panel and other test were positive for celiac i am actually a little releived. I KNOW THIS IS LIFE CHANGING. I will try my best to stay gluten free and pray for the best.

I do have like eczema or some type of rash all over my legs and some on my arms. i was wondering if this could be related?

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You react to things that don't usually make the average celiac sick. Some of us, myself included get really sick from anything processed and labeled gluten free.

Your rash is probably related. I get something similar when glutened. It could be DH as well.

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Most people would not consider themselves super sensitive until they had ben on the diet for a few months, had taken all possible precautions to avoid gluten or cross-contamination from gluten, had eliminated other possible causes for symptoms (such as additional intolerances like dairy), and were still experiencing almost constant symptoms of glutening.

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I don't think you can tell if you are Super sensitive until you have done the gluten-free diet really well for at least 6 months. It takes time to heal & get in the "groove". And to make sure its not milk or something else prolonging the GI issues.

You need to get the basics down before you can tell if you need to delve further and to lower levels of gluten than the majority of Celiacs.

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I do have like eczema or some type of rash all over my legs and some on my arms. i was wondering if this could be related?

In answer to your other question, it is possible that yes, your rashes are related to celiac.

Many of us have had rashes and sores clear up since going gluten free. It takes time for you to see symptoms improve, so try to be patient. :)

If you have DH, eczema or psoriasis, those are diagnosed and often treated with medications, along with the gluten-free diet.

Best wishes!

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