Posted 15 June 2012 - 11:45 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 17 June 2012 - 11:11 AM
Posted 29 June 2012 - 01:19 AM
Posted 03 August 2012 - 06:10 PM
Before I figured out I had all of the symptoms of celiac disease I was sure I had some type of Dysautonomia. I am not sure if it's a separate illness or not. I get dizzy when I stand up and my heart pounds, vertigo, ears ringing, and many other annoying life-limiting symptoms. All of that has to do with the autonomic nervous system not doing it's job which is to take care of the things you shouldn't have to think about. Things like breathing, and heart rate, body temp, to name a few. As you stand up the blood vessels in your legs are supposed to constrict to fight the force of gravity on your blood flow and keep the blood flowing to your brain. My blood pressure drops when I stand up making me come very close to passing out.
This has been happening since I was a child and I have adapted to this problem by not doing anything that causes it. For example, if I want to look for a pan in the lower kitchen cupboards I have to sit on the floor and not bend over making me dizzy. It's sometimes called postural hypo-tension.
I say all of this to make the point that I think sleep apnea is a dysfunction of the autonomic nervous system and I think gluten has all to do with it in my case. They have told me I have Fibromyalgia. Vitamin D is helping with the pain of that. I bruise terribly. My bruises are looking different-I'm lacking vitimin K. They are a different color than usual and going away faster now. I noticed this today. I am sleeping better. I'm still using the C-pap which helped right away when I started using it last March, but I feel much better since no gluten.
Now that I've been gluten free for 10 days those symptoms have almost disappeared. I was mentioning that to my husband today at the grocery store. I just realized I hadn't been dizzy for days. I think I have been showing symptoms of vitamin deficiencies my whole life due to what they called IBS which is likely celiac disease. I don't have health insurance so I won't be getting tested anytime soon.
It's totally worth it to get a C-Pap machine. It has helped, but if I can eliminate what causes my sleep apnea that would be amazing. I have something they call Alpha Delta sleep. I have awake brain waves during REM sleep. It wakes me up about every 2 minutes. I don't come fully awake but I never get fully rested. Even though my weight is an issue with apnea, I have had the Alpha Delta sleep at least since my 20's when I had a sleep study done about the same time I was diagnosed with FMS.
It's all too strange to not be connected. Just saying... I know what the placebo effect is. If I continue to feel even better as the months go by I'll know this is it. I'm so glad this forum is available.
Posted 22 August 2012 - 11:09 AM
I do not have a celiac diagnosis. My sister is not celiac, but she went gluten-free about 10 yrs ago. I have had about ten years worth of gastric reflux issues, have tried every medication for it with vary degrees of success. No long-term answer to my issues though, behavior mod helped for a while. That failed as well. I commented to my doctor several times, that I wondered if my issue wasn't acid production as much as lack of proper digestion. I got to the point that I felt like I was allergic to food in general. I never really got a response on that.
Recently, I was diagnosed with sleep apnea. In fact, I go tonight for a second sleep study to fit me for a CPAP. In the process of all of this, I took it upon myself to research my chronic symptoms. I was convinced that I was allergic to something. About 2 weeks ago, I decided to take it upon myself to cut gluten out of my diet. The result has been significant.
My husband says that I don't thrash about as much at night. I have had very few refux issues at night. I still am not sleeping as well as I should, but it's better. So, hopefully, the gluten-free thing and the CPAP will have me feeling better than I have in a great while.
I have to admit that I am a bit overwhelmed with the gluten-free adjustment. I have a lot of questions which I'll take to another board, as this thread seems to be geared toward the whole sleep issue.
Posted 03 January 2013 - 01:48 PM
I have just started the gluten free journey and after reading some of your posts, I wonder if going gluten-free will help my apnea.
I will let you know in a few months how it is going.
Diagnosed with Celiac Nov 2012
Posted 01 February 2015 - 08:09 PM
i have severe Sleep Apnea and wheat sensitivity and use a CPAP machine
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