Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Would You Try Oats.....

beebs

By beebs
in Coping with Celiac Disease

Recommended Posts

Lisa Mentor
Lisa
Posted

Doc Osborn who has youtube videos about living gluten-free free has suggested that corn may not be ok for all who are gluten sensitive.

Isn't this the chiropractor, who wants to be the new gluten free guru? B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Dani, every time I scroll down and see your picture I think, "What a very pretty woman!" I'm sure everyone here will agree with me. Feeling pretty good, but my thinning hair is making it harder and harder to look good every day. (Time to start looking at wigs I guess. :huh: )

She IS a pretty woman. :)

Yeah, I have to agree. I am still battling the hair thing and the "I look so old thing"....

then again, someone said recently, OMG! you look 10 years younger...but if I looked 10 years older when I was sick...hey! that just puts me right back where I was before I got sick... hey!!!! :(:lol:

but yes, we are off topic...back to oats!!!

cahill Collaborator
cahill
Posted

I have been gluten free since 2009 and soy free since 2010 . I just recently reintroduced gluten free oats. I reacted so strongly it took me two weeks to even begin to function again.

I am a celiac that can not eat oats. I also do not tolerate most grains.

I can rotate corn in my diet occasionally but not on a daily basis . The only grain I eat on a regular basis is rice.

WinterSong Community Regular
WinterSong
Posted

I was really scared to try oatmeal, but I did just fine with the certified gluten-free oats. Love it!!!

dani nero Community Regular
dani nero
Posted

Bartful & IH, I'm sure you're both pretty beautiful as well :-) Thanks *red face*

IrishHeart Veteran
IrishHeart
Posted

Bartful & IH, I'm sure you're both pretty beautiful as well :-) Thanks *red face*

I dunno...hold on, I'll ask hubs...."babes, am I beautiful?"

...wait for it.

He says "Yes, dear".

:lol:

lucky97 Explorer
lucky97
Posted

So from what I see here, oats might give a digestive issue, but no damage? So maybe, seeing I don't get much by way of digestive issues, I might be able to eat them? It's been almost a year gluten-free now. I think I may just try oats, and if they work, I can get oat flour?

Now, something a bit off topic:

Dani, every time I scroll down and see your picture I think, "What a very pretty woman!" I'm sure everyone here will agree with me. Your old picture was nice, but this new one is even better. I just wanted to let you know. We all need a lift from time to time, and I hope this puts a smile on your face. You may not FEEL good, but you LOOK good. I'm just the opposite today. Feeling pretty good, but my thinning hair is making it harder and harder to look good every day. (Time to start looking at wigs I guess. :huh: )

That's a new one to me...gluten free oats (like Bob's Red Mill) can give some Celiacs "digestive issues," but that is not to be confused with being "glutened" and introducing something damaging to your intestinal tract? How in the world do you tell the difference? Unless you can look inside your intestines, I don't think you can.

I have had Bob's Red Mill oats and have felt fine, even within 6 months of going gluten free. How do I know I'm not causing damage down there with this food (but to be honest I don't eat it a lot)?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

I don't love oats - but to be honest, I despise rice porridge and most bread and all that stuff= so I am finding breakfast really hard - especially to find something filling. Arrghh.

Try teff porridge- I adore it. I get the whole grain teff from BRM, I only loosely follow the directions though. It's filling, more nutritious than oatmeal, and tasty!

JNBunnie1 Community Regular
JNBunnie1
Posted

Beebs, here is some interesting research on oats.

Some people react to Avenin in oats.

"There may exist a sub-set of celiacs who also have avenin-reactive mucosal T-cells, avenin being the oat counterpart to wheat's gliadin". You can read more here:

https://www.celiac.com/articles/840/1/Oats-Intolerance-in-Celiac-Disease/Page1.html

Also:

Open Original Shared Link

Open Original Shared Link

I've only read the first article so far, but this is enough for me to stay away from oats. I've always been a subscriber to the 'better safe than sorry' school of thought. I also have never tried oats, they were not considered safe when I started the gluten free diet, and I never bought the whole 'we think it's safe now' thing. I need to have it proven to me, I'm so demanding! :P

Victoria6102 Contributor
Victoria6102
Posted

When I posted a topic awhile ago saying that I accidentally ate oats and it gave me GI symptoms, people replied and said that if oats do bother me, they will damage md like gluten. Now I'm confused? Can anyone clarify?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Positive biopsy

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each...
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

      This technology is currently years away, as it will need to go through an extensive FDA approval process.
    3. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease...
    4. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    5. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,996
    • Most Online (within 30 mins)
      7,748
    IwannabHealthy
    Newest Member
    IwannabHealthy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.