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Would You Try Oats.....


beebs

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Lisa Mentor

Doc Osborn who has youtube videos about living gluten-free free has suggested that corn may not be ok for all who are gluten sensitive.

Isn't this the chiropractor, who wants to be the new gluten free guru? B)


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IrishHeart Veteran

Dani, every time I scroll down and see your picture I think, "What a very pretty woman!" I'm sure everyone here will agree with me. Feeling pretty good, but my thinning hair is making it harder and harder to look good every day. (Time to start looking at wigs I guess. :huh: )

She IS a pretty woman. :)

Yeah, I have to agree. I am still battling the hair thing and the "I look so old thing"....

then again, someone said recently, OMG! you look 10 years younger...but if I looked 10 years older when I was sick...hey! that just puts me right back where I was before I got sick... hey!!!! :(:lol:

but yes, we are off topic...back to oats!!!

cahill Collaborator

I have been gluten free since 2009 and soy free since 2010 . I just recently reintroduced gluten free oats. I reacted so strongly it took me two weeks to even begin to function again.

I am a celiac that can not eat oats. I also do not tolerate most grains.

I can rotate corn in my diet occasionally but not on a daily basis . The only grain I eat on a regular basis is rice.

WinterSong Community Regular

I was really scared to try oatmeal, but I did just fine with the certified gluten-free oats. Love it!!!

dani nero Community Regular

Bartful & IH, I'm sure you're both pretty beautiful as well :-) Thanks *red face*

IrishHeart Veteran

Bartful & IH, I'm sure you're both pretty beautiful as well :-) Thanks *red face*

I dunno...hold on, I'll ask hubs...."babes, am I beautiful?"

...wait for it.

He says "Yes, dear".

:lol:

lucky97 Explorer

So from what I see here, oats might give a digestive issue, but no damage? So maybe, seeing I don't get much by way of digestive issues, I might be able to eat them? It's been almost a year gluten-free now. I think I may just try oats, and if they work, I can get oat flour?

Now, something a bit off topic:

Dani, every time I scroll down and see your picture I think, "What a very pretty woman!" I'm sure everyone here will agree with me. Your old picture was nice, but this new one is even better. I just wanted to let you know. We all need a lift from time to time, and I hope this puts a smile on your face. You may not FEEL good, but you LOOK good. I'm just the opposite today. Feeling pretty good, but my thinning hair is making it harder and harder to look good every day. (Time to start looking at wigs I guess. :huh: )

That's a new one to me...gluten free oats (like Bob's Red Mill) can give some Celiacs "digestive issues," but that is not to be confused with being "glutened" and introducing something damaging to your intestinal tract? How in the world do you tell the difference? Unless you can look inside your intestines, I don't think you can.

I have had Bob's Red Mill oats and have felt fine, even within 6 months of going gluten free. How do I know I'm not causing damage down there with this food (but to be honest I don't eat it a lot)?


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JNBunnie1 Community Regular

I don't love oats - but to be honest, I despise rice porridge and most bread and all that stuff= so I am finding breakfast really hard - especially to find something filling. Arrghh.

Try teff porridge- I adore it. I get the whole grain teff from BRM, I only loosely follow the directions though. It's filling, more nutritious than oatmeal, and tasty!

JNBunnie1 Community Regular

Beebs, here is some interesting research on oats.

Some people react to Avenin in oats.

"There may exist a sub-set of celiacs who also have avenin-reactive mucosal T-cells, avenin being the oat counterpart to wheat's gliadin". You can read more here:

https://www.celiac.com/articles/840/1/Oats-Intolerance-in-Celiac-Disease/Page1.html

Also:

Open Original Shared Link

Open Original Shared Link

I've only read the first article so far, but this is enough for me to stay away from oats. I've always been a subscriber to the 'better safe than sorry' school of thought. I also have never tried oats, they were not considered safe when I started the gluten free diet, and I never bought the whole 'we think it's safe now' thing. I need to have it proven to me, I'm so demanding! :P

Victoria6102 Contributor

When I posted a topic awhile ago saying that I accidentally ate oats and it gave me GI symptoms, people replied and said that if oats do bother me, they will damage md like gluten. Now I'm confused? Can anyone clarify?

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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