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Started Eating Gluten Free Yesterday.

Mrs.Stark

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Mrs.Stark Apprentice
Mrs.Stark
Posted

Hi everyone, I started gluten free yesterday. I'm convinced this may be what has caused me a few problems. I've always had extremely irregular periods and it didn't even start till I was nearly 18. After eating bready especially bagels I would have severe stomach cramping. My hair grows at a much slower rate than others and i'm having trouble losing weight. I have only been gluten-free for 1 day and have dropped 2 lbs.I was not calorie restrictive at all. I hope its not a coincidence because that is a lot for me. I'm also more tired than usual today. Anyone else have these symptoms? Is one day to fast to see any results? Thanks.

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1974girl Enthusiast
1974girl
Posted

Make sure you get your thyroid checked. It can cause late puberty and hair issues.

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. The first thing I am going to ask is if you have been tested for celiac. If you haven't it would be a good idea to get tested before you start the diet. You can call your doctor and ask for a lab slip for a celiac panel if your doctor has been aware of the problems you have been having. Once you have been gluten free even for a short time going back on gluten for testing can be quite a painful experience.

You doctor should also test your vitamin and mineral levels, especially B12 and D as well as test you for anemia.

IMHO it is unlikely that you would lose 2 lbs overnight from going gluten free. Some of us do lose weight after we have been on the diet for a bit for a variety of reasons but gluten free is not a calorie restricted diet. In fact many specialty gluten free foods are quite high in calories.

If your doctor resists testing you for celiac because you are over weight insist on it because of your symptoms. Many doctors don't realize that you can be overweight and celiac. I was the heaviest I was in my life pregluten-free but in my case it was because of edema because a long period of misdiagnosis had damaged my kidneys.

Do read as much as you can here as the diet has a bit of a learning curve and keep in mind that we can still need the diet even in the event that our celiac testing comes back negative.

IrishHeart Veteran
IrishHeart
Posted

I agree with all that Raven has said.

Get tested before you take gluten out of your diet.

shadowicewolf Proficient
shadowicewolf
Posted

Raven's right. Much easier now to go back on then it would be had you waited weeks.

Mrs.Stark Apprentice
Mrs.Stark
Posted
  • Author

Make sure you get your thyroid checked. It can cause late puberty and hair issues.

I have had my thyroid checked and It was within normal range. I developed in every other way except my period, so not sure if that really counts as late puberty.

GottaSki Mentor
GottaSki
Posted

I strongly agree with Raven's advice - call your doctor and ask to have all the tests Raven suggested ordered as soon as possible because you'd like to remove gluten and have learned that this will adversely effect the results of these tests.

Removing gluten can make an already difficult process much harder - don't remove it unless you are certain you don't wish to pursue a diagnosis.

Let us know if you have additional questions.

Good Luck :)

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DavinaRN Explorer
DavinaRN
Posted

Get tested first. I feel as if I'm dying, went gluten free for only 4 days. Endo finally answered and said she will run the blood work (tomorrow), so I have been eating gluten at each meal for last 10 days. Never thought I would be happy to never see bread or pasta again.

nvsmom Community Regular
nvsmom
Posted

Ditto everyone else. :)Great advice there...

I did lose weight, about 15lbs now, which began after I had been gluten-free about a month. My belly got noticeably flatter within about 2 weeks and proceeded any weight loss. It was a nice bonus to feeling better. LOL

Double check where your TSH was in the range if you can. I ended up with Hashimotos hypothyroidism because of untreated celiac disease, and for the first 10 years of it, my TSH was within normal range but at the high end of it (a 3 to 6 something in a range of .2-6) and I had hypothyroid symptoms (similar to celiac) the entire time. I am fairly confident that if the doctors had run a TPO Ab or free T4 test, I would have been diagnosed and treated much earlier... and felt better years ago.

Good luck to you, and welcome to the board. :)

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  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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